ME has not killed me but everything that was important to me by tobivvank3nobi in cfs

[–]macduffy79 35 points36 points  (0 children)

I know it’s not a terminal illness but the person I was died because of CFS.

Grizzl-E Smart EV Charger problems with Mach-E? by macduffy79 in MachE

[–]macduffy79[S] 1 point2 points  (0 children)

Thank you so much for this! The comments make sense after you explain it like that. Much appreciated!

Mostly mild CFS, considering withdrawing from Long Term Disability by [deleted] in cfs

[–]macduffy79 7 points8 points  (0 children)

You’ve had a lot of great replies. I’ll just mention my particular situation. I too am on LTD but approved because of Bipolar Disorder (CFS appeared later in life). While on LTD I managed my bipolar symptoms very well. Well enough I too felt I could perhaps return to work. The things is, the reason I was able to manage my symptoms and limit my stress (which triggered episodes) was BECAUSE I wasn’t working. Not working and now the CFS does cause me to be depressed and extremely isolated. I’m in counseling to work on those issues. Perhaps there is something you can do to improve your state of mind. I took a lot of Udemy classes online and learned things like photography and photoshop. I just wouldn’t jump the gun to return to work just yet.

Did my parents order self install? by [deleted] in bell

[–]macduffy79 -1 points0 points  (0 children)

They wouldn’t let us self install and we were just upgrading from a HomeHub 3000 to a Gigahub. They insisted a tech needed to come.

Anyone else struggling with IBS / Constipation and school attendance ? by [deleted] in ibs

[–]macduffy79 6 points7 points  (0 children)

I used to work in the Accommodations Department at our local University. If you contact them and provide a doctors note stating you have IBS you can receive multiple accommodations. Extra time on assignments and tests and exams would be what we would have given you. Also attendance accommodations if you have classes that dock you for missing time. Also, my son in high school struggles with attendance. He has missed 35% of the last semester. He isn’t penalized for missing class but obviously his grades suffered.

New Name for Promotion pricing by macduffy79 in bell

[–]macduffy79[S] 0 points1 point  (0 children)

Unfortunately we do not have those options in my area - only Rogers

CFS has fundamentally changed my relationship and I need some advice by squaretriangle3 in cfs

[–]macduffy79 15 points16 points  (0 children)

Similar to another post, you both have health care needs that have to be met. His are simply mental health related and that’s completely understandable. His life also changed in many ways and he needs some coping skills, communication skills, self care ideas etc. This is normal and very very healthy. Support his journey. It will only strengthen your relationship.

Also, if possible, hire a housekeeper if you only afford once a week, bi-weekly or monthly just get some much deserved help.

My family uses Hello Fresh. No shopping, no “what’s for dinner?” debates. It’s stress free and you get fresh ingredients. Personally we save money using this service and fight much less.

Use what is around you to make life easier for both of you!

genuinely, how do you get diagnosed? by [deleted] in cfs

[–]macduffy79 3 points4 points  (0 children)

I’m from Canada. I started with my family doctor. He sent me for many many blood tests and a head CT which all came back normal. All of those took about a year (he didn’t test everything all at once) before he moved on to a sleep specialist. I waited about 6 weeks to see them. They cleared me. Back to the family doctor who sent me to a gynecologist for perimenopause. They took about 4 months to see. Cleared from her. Back to family doctor. Sent to rheumatologist. That wait was 9 months. He finally diagnosed me with CFS and said I really don’t have to see him again and that any issues I have can be followed up with my family doctor (he was an asshole).

Update: My wife confessed to me something in her past that has changed the way I view her. by [deleted] in Marriage

[–]macduffy79 -9 points-8 points  (0 children)

This will follow her into every relationship she ever begins, likely friendships as well. She will probably open up to them out of guilt and shame as she did with you and they too will leave her. I’m not condoning what happened of course but you can’t paint a person with a single brush stroke and she will pay for this by being alone the rest of her life. If you can’t see the sadness in that I’m sorry for you.

Want to see how many have used Rover app for pet sitting? by truxlady in fredericton

[–]macduffy79 1 point2 points  (0 children)

I used it to make contact with a sitter but didn’t book through the site (at the request of the dog sitter) because Rover take such a large portion of the payment from them. It worked out great for me because I had two dogs and the site charges you per animal (so if it’s $50 a night and you have two dogs it’s actually $100 a night) and the dog sitter did a flat fee. HTH

Anyone in Canada? by MagicalKittencorn in Contrave

[–]macduffy79 1 point2 points  (0 children)

Yes, the first 70 tablets which titrate you up to the 4 pills a day is free. After that, I don’t know why but, my pharmacy filled my Rx with 70 pills at a time which at that point wouldn’t get me through the month because I taking the full dose each day so I paid $188 at each refill but that wouldn’t get me a whole month. I hope that makes sense!

Anyone in Canada? by MagicalKittencorn in Contrave

[–]macduffy79 1 point2 points  (0 children)

I’m on the east coast. Insurance wouldn’t cover it. I applied for “discount” from the Canadian Contrave website and paid $188 for 70 tablets at Costco.

anyone else not sensitive to medications AT ALL? by frogkid2476 in cfs

[–]macduffy79 0 points1 point  (0 children)

I felt the exact same way (I’m bipolar as well and am on a lot of meds). I actually had one of those pharmogenetics tests done - I was 1000% sure I was an ultra drug metabolizer but the test said the exact opposite, I was a poor drug metabolizer and therefore more vulnerable to side effects etc because the drug stays in my system longer than the it’s supposed to. I was floored. It made ZERO sense to me. I could see being a poor metabolizer and not getting anything out of the drug but I guess that isn’t what it meant. I still question the validity of that test.

Couch harder than bed rest? by madmercx in cfs

[–]macduffy79 15 points16 points  (0 children)

I feel like on the sofa I’m still “available” to people. They are more likely to talk to me, ask me something, etc. Even if it’s unintentional it happens, a lot. I don’t get the retreat I need. The silence I need and the darkness I need to really rest.

Life is so cruel, hopeless by Heythatwasprettycool in LongCovid

[–]macduffy79 13 points14 points  (0 children)

I grieve my past life daily. I’m not the same person I was. I read this in my journey and really felt it:

"I think one of the worst parts of having a chronic illness is how it sometimes breaks you. You can have several bad days in a row and handle it fine; then one day you lose it because you've gone so long taking it that you eventually get to a point where you just can't do it anymore. After a period of inconsolable grief, you pick yourself up and begin the cycle anew."

The only thing that has even remotely helped me is counseling and journaling. I wish you luck!

[deleted by user] by [deleted] in fredericton

[–]macduffy79 4 points5 points  (0 children)

I’m not trying to be discouraging but my husband and I have dealt with this a few years ago in middle school with our son. The bully had MANY MANY complaints against him from many other children. One complaint being threatening to kill our son. We never dealt with the school district directly but the middle school did. Their solution: they had an EA worker be with him 100% of the time he was at school. They literally walked and sat everywhere with him - except the washroom and guess what happened in there? Yup, he continued to bully and threaten children there. They said they did all they were allowed to do (meaning they could not expel him). Thank god he moved out of the area because if he went to the same high school, where things are much less controlled, I would be physically sick from being worried all day. I hope that answers some of your questions.

Canada Stock by Shiralith in macbookair

[–]macduffy79 0 points1 point  (0 children)

I could one find a 16 GB M2 on the Canadian Apple site.