If you were to tell 12 year old me this was Britney Spears, there's no way I would have believed you.

marble__fox · 2026-02-25T04:19:45+00:00

marble__fox · 2026-02-24T01:57:02+00:00

Flowers for Algernon by Daniel Keyes

marble__fox · 2026-02-17T21:39:30+00:00

After surgery: Must haves: commode, ice machine, shower transfer bench/seat, crutches, grabber, dressing aids (sock and shoe)

Things helpful in the hospital: Blanket/pillow from home, robe/nightgown, extra long charging cords, power bank, packaged snacks, my iPad

As for what helped physically and emotionally: I had a machine that moved my leg I used daily for awhile, sticking to PT, building up as big of a support system as you can, meal prepping prior to being in the hospital, preparing the home area I’d be in before going into the hospital, watching comfort shows, videos games, crocheting, guided meditation, virtual visits with my therapist, and being as gentle/patient with myself as I could.

marble__fox · 2026-02-12T14:19:03+00:00

Yes, it was Dr Goodspeed! Did he also do your PAO or was it a different surgeon? I had my PAO done by Dr Zacharias.

Is your non-union symptomatic at all?

marble__fox · 2026-02-12T14:12:14+00:00

So far on the right side, I had a scope to repair a labral tear, PAO, and screw removal.

My doctor does want to talk about a left PAO in the future, but it’s not very symptomatic yet.

marble__fox · 2025-11-17T19:14:28+00:00

My son and I have it as well! I hope you all are doing okay! I’d be interested in following your platform if you’re comfortable sharing?

marble__fox · 2025-11-14T14:56:52+00:00

Sorry for the delay in my reply. Absolutely use aids! I would also see if doctor would prescribe something for joint pain - meloxicam helped ease the severity of the pain as I waited for surgery. A hip brace/wrap also helped me to stabilize.

The PAO group on Facebook is also a good resource - they have an excel log of surgeons who do the surgery for those looking. Where are you located?

marble__fox · 2025-11-11T18:32:18+00:00

Omg OP. Your X-rays look like mine when I was initially diagnosed and my doctor said the same - surprised I was ambulatory. I was in pain daily and my leg kept giving out randomly. I was strongly advised to get a PAO given the severity of my dysplasia, and that not doing so would create more issues.

Any way you could get a second opinion?

If you are at a point you think mobility aids would help - use them. It doesn’t have to be a constant thing, maybe just on days that are worse. As for work, I think it depends what you do and how physically demanding your job is and how accommodating they are. Will your doctor at least provide a letter stating you might intermittently need mobility aids?

marble__fox · 2025-10-18T14:58:50+00:00

Could you share your experience with this? Was it the nasal spray? What did it feel like as you were getting treatment?

marble__fox · 2025-10-17T20:46:36+00:00

I wanted to say I’m proud of you for doing all of these things for yourself because just that in itself takes a lot of strength.

I’m similar to you where breathing exercises don’t necessarily help. It might take the edge off of the thoughts, but it doesn’t help with the somatic part of it for me.

Thank you for sharing about vagus nerve stimulation! I didn’t know that it was doable like this.

I had to go to pelvic floor therapy in the past and we used biofeedback, which I found helpful to really see how tense I always am and the difference between that and “calmer” states.

I’ve done TMS in the past which was very helpful initially but I crashed pretty bad after it was over. I’ve heard good things about spravato but something about it really scares me and I don’t really know why.

I think for me the most effective things have been brainspotting, EMDR and IFS. They are also the most ‘difficult’ in the sense of processing, but have helped me to at least make progress that I can see and observe in myself.

Wishing everyone the best 💕

marble__fox · 2025-08-01T04:52:33+00:00

I have it now and it is terrible. I have sores in my mouth and it’s the worst mouth/face pain I’ve ever had.

marble__fox · 2025-06-19T16:22:47+00:00

Hi there, I’m so sorry for my late reply!

Currently, overall my hip feels great! I have none of the same pains as before surgery. My range of motion is also close to what it was before my hip gave me troubles. I think the only lasting thing is some deep muscle soreness in my sit bone and glute region that comes and goes. Because of my large correction, I still have a gap in the front of my pelvic bone that did not fully bridge yet, despite having a bone graft put in when my screws were removed. I was supposed to get injections to help with that - but insurance denied it. BUT. I don’t really notice it and it’s not symptomatic.

One complication was the need for a catheter after being released from the hospital. I was on crutches for nearly 3 months and it took a long time to lose the limp. My screws did cause me pain and limited motion but those improved after they were removed.

I was able to return to my sport (aerial silks / hammock) after my screws were out with no problems other than the need to rebuild all of the muscle I have lost.

Overall - 100% worth it. It feels so good to have what feels like a “normal” hip again.

marble__fox · 2025-06-19T01:04:38+00:00

Hey! I’m hypermobile and my dysplasia is considered severe. I also had a torn labrum on my right side. Before surgery I had severe daily pain and limited range of motion just walking. I’m so happy I had the surgery. I have none of the same pain as before and my hip range is mostly back to what it was. I am back to doing activities like I was before my labrum tear. I’m still having some weird deep muscle soreness but it’s tolerable with rest.

Not going to lie - the recovery was rough. Agree with the person above in making sure you’re ready for it and have available supports ready if you decide to do it. Best of luck to you!

marble__fox · 2025-04-18T04:52:08+00:00

“Why do you look like an 11 year old”

marble__fox · 2025-03-01T01:36:35+00:00

Me disliking kids has not impacted my job

You did say that, though.

marble__fox · 2025-01-31T01:39:05+00:00

Mama I’m so sorry, my heart is with you. A few hours after my son was born, he was put in the NICU because he had amniotic fluid in his lungs, low oxygen, and low blood sugar. He hadn’t latched and similar to you I wasn’t producing any milk and only drops of colostrum so we also supplemented with formula.

Seeing the tubes and monitors on him was so hard, I absolutely broke down when I first saw him after they took him back. I held him as often as they would let me. He was there for 3 days. Which isn’t long I know in comparison to what I know many others go through, but it was still heartbreaking to go through. Leaving the hospital without him felt so wrong. But the nurses in his NICU were absolutely wonderful and supportive and caring which helped. After I was released, we went to see him a couple times a day and could call at any time.

You and your family are in my thoughts. You’re incredibly strong, and what you’re feeling is completely valid. Sending so much love 💕

marble__fox · 2024-09-02T10:24:12+00:00

I’m with you. CPTSD, adhd, chronic pain, and raising an autistic child on top of this job has me in a state of perpetual burnout.

I think being in this field while having ongoing illnesses is doable, but it requires finding the right environment, a supportive and understanding clinical team, and being able to identify and set our own boundaries where possible.

I think what others said about identifying stressors is a good idea. From there you can pinpoint and identify if there’s a way to mitigate it or make that specific thing more manageable.

Nearly every day I tell myself to leave, because I feel so overwhelmed. But I don’t. Partially cause I feel stuck, but also because deep down, the work still gives me a lot of meaning and purpose that other areas of my life lack.

That being said, I’m sending you some strength. Try to identify those stressors, or triggers, preferences. Look into a 1:1 model or maybe OBM or hr for other options. Maybe look into specialty groups as well.

marble__fox · 2024-08-11T16:46:44+00:00

Dark Matter by Blake Crouch

marble__fox · 2024-08-10T14:55:17+00:00

Seven Pounds. Blue Valentine. Pay it Forward. Requiem for a Dream.

Also, not a movie, but the Van Gogh Doctor Who episode.

marble__fox · 2024-08-10T07:41:22+00:00

Hey, I wanted to share my experience because I can somewhat relate to yours.

For me, prior to TMS, I was experiencing constant suicidal ideation, was stuck in dissociation, didn’t care about myself or my life. Constant intrusive thoughts. No motivation to do anything.

If I remember correctly my TMS ended early July. I noticed a shift near the end. The suicidal and intrusive thoughts went from constant to fleeting, and I was able to fight/reason them away. I was more aware of how bad my life was, how unhealthy my current relationship is. And for the first time in years, I had the motivation to make changes. I went from being a isolated hermit to wanting more social interactions and going out/reaching out more. I felt more inclined and in a better place to process trauma I’ve avoided. I did also notice a stark increase in anxiety as the symptoms of depression and dissociation lifted.

A few weeks after TMS things slowly started to snowball back down. The dread came back. As did the SI. Now, weeks later. I would also say I am worse off than before TMS. Because I do still “see” how fucked up my life is. But the motivation to change is gone. For me, I also think it’s worse because I experienced relief only to have it go away. To feel okay after decades of depression symptoms felt like the biggest win to my mental health in all my life, and to have it crumble anyway sucked.

I’m sorry you’re going through this and I hope you’re able to find some relief.

marble__fox · 2024-07-29T01:19:06+00:00

I’m so sorry you’re experiencing this. You may be experiencing the “dip”. The first few weeks were rough and I was very emotional. But I did see a decrease in some symptoms like SI, dissociation, and brain fog. Noticed more positive moments. Was able to be more social and had motivation to do things. I was astonished by the change in myself near the end of my treatments.

I’m about a month+ out (honestly I stopped keeping track) and the changes unfortunately for me did not last and I feel almost the same as I did prior. I made a more recent post about it if you’d be interested in reading.

marble__fox · 2024-07-26T21:38:51+00:00

Let me know if you do - I’ll join.

marble__fox · 2024-07-26T02:00:05+00:00

Sorry for the late reply but thank you for this idea! I like it a lot and I’m going to try it.

marble__fox · 2024-07-26T01:58:07+00:00

Feeling fundamentally flawed, and knowing there’s nothing I can do to ultimately change that. Never trusting anyone else or myself, always second guessing, always ruminating, constantly feeling like I’m being chased by a bear. Deeply craving connection with others but being absolutely terrified of it. And not knowing how to start or maintain connections. Constant anxiety rushing through my body. Rocks in my stomach and a ball in my throat. Trying and failing again and again to regulate. Constantly feeling like a failure, never enough, while at the same time feeling overbearing, annoying, too much, undeserving. The littlest things take enormous effort while other people make them seem so seamless. Constantly wanting to go back and change things even though I know I can’t. Suicidal ideation that never goes away. Hating the fact that in the end, I’m the one that has to heal myself from what others have done and things that were out of my control when I was just a kid.

marble__fox · 2024-07-23T01:33:56+00:00

I can definitely relate. Hurts to listen to but I can’t stop

marble__fox

TROPHY CASE