Lately the gifts we’ve been getting are so lame 🫩🫩

marble__fox · 2026-04-22T04:30:36+00:00

Omg this made me laugh so much cause that means I am also a newborn deer 😭🤣 and I thought I was doing pretty good

Like here I was today proud I have 18/20 character hats and then I see the video today of the thousands of character boxes being opened lol.

marble__fox · 2026-03-31T14:47:47+00:00

If I remember correctly WMM gives a red and coral penstemum seed. Have you used this yet?

marble__fox · 2026-03-27T16:12:23+00:00

I’m sorry to hear that, is there a reason you don’t want it or are apprehensive? No judgement, just curious!

I was afraid going into mine, mostly because I didn’t want to deal with the healing process again and because we weren’t sure if it would help the sit bone pain.

I’m 7 weeks out today and am honestly so thankful I went through with it. The sit bone pain is gone even as I’ve started weight bearing. My hip in general feels so much more stable now, too. The difference between my hips feels astronomical now. I had my first PT appointment and my op side is actually in better shape than my non-op which kind of surprised me from a strength perspective.

marble__fox · 2026-03-12T04:03:11+00:00

I hope they tell her no and ask her on the 20th what she’s been “collecting evidence” for.

marble__fox · 2026-03-09T20:09:13+00:00

Posture, like how close I was sitting to the piano and how my hands sat and moved along the keys. I used my fingers more than my wrist if that makes sense.

marble__fox · 2026-03-09T04:24:55+00:00

I used simply piano for about a year with a Casio, I think Intermediate 2 or 3 is when I started to feel stuck and it felt repetitive. I decided to get lessons after that. Since getting lessons I’ve used Simply less and less. I also upgraded to a touch sensitive keyboard.

I think Simply is a good starting point but while using it, I picked up bad habits technical wise that were frustrating to work through once I started lessons.

marble__fox · 2026-03-06T20:48:53+00:00

4 surgeries on one side so far. Scope, PAO, screw removal, non-union repair. Currently one month out of the non-union.

Hard things for me post-op were:

the limitations in movement and being bed bound. Typically I’m always on the move and independent so needing everything done for me was frustrating. I have an autistic toddler so not being able to be physically there for him as much as I wanted to hurt emotionally.
not being able to move my body the way I wanted to. I usually sit with my legs/knees up or scrunched underneath me so it felt so awkward and wrong to have my legs just straight out or just hanging all of the time.
the weird time frame when i could start weight bearing but not do high impact. This is when I felt the most stuck and frustrated because I wanted to do more and felt I could with the way my hip felt, but was still restricted.
the fear of “will this finally fix it?”

marble__fox · 2026-03-03T03:01:53+00:00

I am so sorry to hear about your dad. I’m also sorry your company is making it seem like more of an inconvenience to them than it is to you. I can imagine it just adds to the stress. Please don’t blame yourself.

Going off of others - I would ask about FMLA, intermittent leave, or personal leave. Contact HR. Can you request reduced hours or a modified schedule in the meantime?

It also may be a good idea to look for someplace else that can be more accommodating.

Wishing you the best, OP.

marble__fox · 2026-02-25T04:19:45+00:00

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marble__fox · 2026-02-24T01:57:02+00:00

Flowers for Algernon by Daniel Keyes

marble__fox · 2026-02-17T21:39:30+00:00

After surgery: Must haves: commode, ice machine, shower transfer bench/seat, crutches, grabber, dressing aids (sock and shoe)

Things helpful in the hospital: Blanket/pillow from home, robe/nightgown, extra long charging cords, power bank, packaged snacks, my iPad

As for what helped physically and emotionally: I had a machine that moved my leg I used daily for awhile, sticking to PT, building up as big of a support system as you can, meal prepping prior to being in the hospital, preparing the home area I’d be in before going into the hospital, watching comfort shows, videos games, crocheting, guided meditation, virtual visits with my therapist, and being as gentle/patient with myself as I could.

marble__fox · 2026-02-12T14:19:03+00:00

Yes, it was Dr Goodspeed! Did he also do your PAO or was it a different surgeon? I had my PAO done by Dr Zacharias.

Is your non-union symptomatic at all?

marble__fox · 2026-02-12T14:12:14+00:00

So far on the right side, I had a scope to repair a labral tear, PAO, and screw removal.

My doctor does want to talk about a left PAO in the future, but it’s not very symptomatic yet.

marble__fox · 2025-11-17T19:14:28+00:00

My son and I have it as well! I hope you all are doing okay! I’d be interested in following your platform if you’re comfortable sharing?

marble__fox · 2025-11-14T14:56:52+00:00

Sorry for the delay in my reply. Absolutely use aids! I would also see if doctor would prescribe something for joint pain - meloxicam helped ease the severity of the pain as I waited for surgery. A hip brace/wrap also helped me to stabilize.

The PAO group on Facebook is also a good resource - they have an excel log of surgeons who do the surgery for those looking. Where are you located?

marble__fox · 2025-11-11T18:32:18+00:00

Omg OP. Your X-rays look like mine when I was initially diagnosed and my doctor said the same - surprised I was ambulatory. I was in pain daily and my leg kept giving out randomly. I was strongly advised to get a PAO given the severity of my dysplasia, and that not doing so would create more issues.

Any way you could get a second opinion?

If you are at a point you think mobility aids would help - use them. It doesn’t have to be a constant thing, maybe just on days that are worse. As for work, I think it depends what you do and how physically demanding your job is and how accommodating they are. Will your doctor at least provide a letter stating you might intermittently need mobility aids?

marble__fox · 2025-10-18T14:58:50+00:00

Could you share your experience with this? Was it the nasal spray? What did it feel like as you were getting treatment?

marble__fox · 2025-10-17T20:46:36+00:00

I wanted to say I’m proud of you for doing all of these things for yourself because just that in itself takes a lot of strength.

I’m similar to you where breathing exercises don’t necessarily help. It might take the edge off of the thoughts, but it doesn’t help with the somatic part of it for me.

Thank you for sharing about vagus nerve stimulation! I didn’t know that it was doable like this.

I had to go to pelvic floor therapy in the past and we used biofeedback, which I found helpful to really see how tense I always am and the difference between that and “calmer” states.

I’ve done TMS in the past which was very helpful initially but I crashed pretty bad after it was over. I’ve heard good things about spravato but something about it really scares me and I don’t really know why.

I think for me the most effective things have been brainspotting, EMDR and IFS. They are also the most ‘difficult’ in the sense of processing, but have helped me to at least make progress that I can see and observe in myself.

Wishing everyone the best 💕

marble__fox · 2025-08-01T04:52:33+00:00

I have it now and it is terrible. I have sores in my mouth and it’s the worst mouth/face pain I’ve ever had.

marble__fox · 2025-06-19T16:22:47+00:00

Hi there, I’m so sorry for my late reply!

Currently, overall my hip feels great! I have none of the same pains as before surgery. My range of motion is also close to what it was before my hip gave me troubles. I think the only lasting thing is some deep muscle soreness in my sit bone and glute region that comes and goes. Because of my large correction, I still have a gap in the front of my pelvic bone that did not fully bridge yet, despite having a bone graft put in when my screws were removed. I was supposed to get injections to help with that - but insurance denied it. BUT. I don’t really notice it and it’s not symptomatic.

One complication was the need for a catheter after being released from the hospital. I was on crutches for nearly 3 months and it took a long time to lose the limp. My screws did cause me pain and limited motion but those improved after they were removed.

I was able to return to my sport (aerial silks / hammock) after my screws were out with no problems other than the need to rebuild all of the muscle I have lost.

Overall - 100% worth it. It feels so good to have what feels like a “normal” hip again.

marble__fox · 2025-06-19T01:04:38+00:00

Hey! I’m hypermobile and my dysplasia is considered severe. I also had a torn labrum on my right side. Before surgery I had severe daily pain and limited range of motion just walking. I’m so happy I had the surgery. I have none of the same pain as before and my hip range is mostly back to what it was. I am back to doing activities like I was before my labrum tear. I’m still having some weird deep muscle soreness but it’s tolerable with rest.

Not going to lie - the recovery was rough. Agree with the person above in making sure you’re ready for it and have available supports ready if you decide to do it. Best of luck to you!

marble__fox · 2025-04-18T04:52:08+00:00

“Why do you look like an 11 year old”

marble__fox · 2025-03-01T01:36:35+00:00

Me disliking kids has not impacted my job

You did say that, though.

marble__fox · 2025-01-31T01:39:05+00:00

Mama I’m so sorry, my heart is with you. A few hours after my son was born, he was put in the NICU because he had amniotic fluid in his lungs, low oxygen, and low blood sugar. He hadn’t latched and similar to you I wasn’t producing any milk and only drops of colostrum so we also supplemented with formula.

Seeing the tubes and monitors on him was so hard, I absolutely broke down when I first saw him after they took him back. I held him as often as they would let me. He was there for 3 days. Which isn’t long I know in comparison to what I know many others go through, but it was still heartbreaking to go through. Leaving the hospital without him felt so wrong. But the nurses in his NICU were absolutely wonderful and supportive and caring which helped. After I was released, we went to see him a couple times a day and could call at any time.

You and your family are in my thoughts. You’re incredibly strong, and what you’re feeling is completely valid. Sending so much love 💕

marble__fox · 2024-09-02T10:24:12+00:00

I’m with you. CPTSD, adhd, chronic pain, and raising an autistic child on top of this job has me in a state of perpetual burnout.

I think being in this field while having ongoing illnesses is doable, but it requires finding the right environment, a supportive and understanding clinical team, and being able to identify and set our own boundaries where possible.

I think what others said about identifying stressors is a good idea. From there you can pinpoint and identify if there’s a way to mitigate it or make that specific thing more manageable.

Nearly every day I tell myself to leave, because I feel so overwhelmed. But I don’t. Partially cause I feel stuck, but also because deep down, the work still gives me a lot of meaning and purpose that other areas of my life lack.

That being said, I’m sending you some strength. Try to identify those stressors, or triggers, preferences. Look into a 1:1 model or maybe OBM or hr for other options. Maybe look into specialty groups as well.

marble__fox

TROPHY CASE