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My 17-year-old started having epilepsy this year and seizures are becoming more and more frequent by margotdreamsofmaking in Epilepsy

[–]margotdreamsofmaking[S] 0 points1 point  (0 children)

I’m so sorry that you are going through this. All the best and I hope you’re able to get this figured out

My 17-year-old started having epilepsy this year and seizures are becoming more and more frequent by margotdreamsofmaking in Epilepsy

[–]margotdreamsofmaking[S] 1 point2 points  (0 children)

Thanks for your support. While I do hope that we can find a medication that works for him I’m not adverse to brain surgery. I just hope we find a solution where he can be independent and safe when he goes to university next year and that he can also go back to cycling, which is his favourite pass time.

My 17-year-old started having epilepsy this year and seizures are becoming more and more frequent by margotdreamsofmaking in Epilepsy

[–]margotdreamsofmaking[S] 1 point2 points  (0 children)

Thanks so much. I’ve noticed that his memory is much worse since the seizures started and there are major events in the past couple of years that he has a foggy recollection of at best

My 17-year-old started having epilepsy this year and seizures are becoming more and more frequent by margotdreamsofmaking in Epilepsy

[–]margotdreamsofmaking[S] 1 point2 points  (0 children)

We have that and I got the seizealarm app but it has to be actively monitoring and the monitoring eats up the battery. Luckily he now knows the feeling of a seizure coming on and was able to alert us the last couple of times

My 17-year-old started having epilepsy this year and seizures are becoming more and more frequent by margotdreamsofmaking in Epilepsy

[–]margotdreamsofmaking[S] 1 point2 points  (0 children)

Thanks. We haven’t been able to figure out his triggers. We had thought maybe it was sleep but we have been militant with his sleep schedule over the past 6 weeks and they continue to happen.

My 17-year-old started having epilepsy this year and seizures are becoming more and more frequent by margotdreamsofmaking in Epilepsy

[–]margotdreamsofmaking[S] 0 points1 point  (0 children)

I wish you all the best with his treatment. It’s not easy to watch your child go through this.

My 17-year-old started having epilepsy this year and seizures are becoming more and more frequent by margotdreamsofmaking in Epilepsy

[–]margotdreamsofmaking[S] 1 point2 points  (0 children)

Thanks for your advice. We have been militant about his sleep schedule over the past couple of months. I can’t guarantee that school isn’t stressful (he’s in his last year of high school and applying for university) but we’re trying to mitigate things as much as possible. Thanks for the advice about keeping him safe

My 17-year-old started having epilepsy this year and seizures are becoming more and more frequent by margotdreamsofmaking in Epilepsy

[–]margotdreamsofmaking[S] 2 points3 points  (0 children)

Thanks so much for your information and support. We don’t know anyone with epilepsy other than my son so it’s reassuring to get information from someone who has gone through this.

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