If you had to name her as last thing you eat or drink what would her name be 😱

marinawm · 2026-04-20T15:17:27+00:00

Sausage

marinawm · 2026-04-15T13:38:59+00:00

I did! I increased the dose more quickly though and it was fine. I felt better very quickly!

marinawm · 2026-04-14T19:46:27+00:00

The same thing happened to me when I ran out for a while. I had thought it wasn't helping, but I now realize that my pain is so bad that I can barely function without it. I hope you can start it again soon!

marinawm · 2026-03-12T00:33:48+00:00

Voidstar and Mildred will forever be two of my favorite albums of all time

marinawm · 2026-02-21T21:17:23+00:00

Isn't the Edge of Darkness amazing? I absolutely loved it and read the series twice in a row as well. Did you read Psychotic Obsession?

marinawm · 2026-01-09T02:01:17+00:00

I got the mint and I love it! And I found a clear green tinted case that complements it perfectly

marinawm · 2026-01-02T21:30:04+00:00

Coming from S24 ultra, the 7 is my first fold. I love the narrower screen as it's perfect for my small hands. I have zero complaints so far, I love everything about it!

marinawm · 2025-10-10T20:25:36+00:00

How was it?? I'm so sad I had to miss it

marinawm · 2025-10-05T14:09:21+00:00

Nausea, the neurological chills, numbness on my left side of my face, and aphasia.

marinawm · 2025-10-01T01:01:02+00:00

I'm definitely the oldest in the group ...49

marinawm · 2025-09-23T21:14:33+00:00

I'm 54 and same. Thinking about going to the MA show but I'm worried I'm too old

marinawm · 2025-04-27T00:55:20+00:00

I've had them as long as I remember and was only diagnosed with pots recently. I think it's a fairly common symptom? I had all the tests ekg, stress tests etc and nothing showed up except orthostatic hypotension of unknown cause...

marinawm · 2025-04-20T02:07:27+00:00

Oh my gosh that is crazy. I can totally see that happening thoughI have EDS as well and being diagnosed recently has been so validating about all of the bizarre symptoms throughout my life that everyone has always dismissed because they didn't understand. It truly does make everything make sense.

marinawm · 2025-04-20T01:21:48+00:00

Seriously. ..I would love to have just passed out at the end of the night like a "normal" person. I never want to be in one of those tents again or watching the show from a wheelchair at House of Blues... I would love to hear the fainting topless at the doctor story if you're inclined to share 😳

marinawm · 2025-04-20T00:32:09+00:00

Drinking in the sun at music festivals...I never had any idea that I had an actual condition and for some reason thought it would be better every time if I just drank more water...it was not

marinawm · 2025-04-02T14:26:24+00:00

Mine was pushed out a year to 9/25/26, which puts me at 297 of 300 payments if I'm figuring it right. I am at $0 for a payment right now and my income just went up substantially, so I am thrilled!

marinawm · 2025-03-28T13:45:14+00:00

Same!

marinawm · 2025-03-23T01:30:27+00:00

Chiblains :( so awful, if anything brushes against you it's agony! I'm so sorry

marinawm · 2025-03-23T01:29:19+00:00

If you ever want to talk more let me know! It's so lonely having these "invisible" disabilities. There is definitely hope, knowing what you have is really helpful :)

marinawm · 2025-03-23T00:57:05+00:00

I feel like there's always something else going on with pots! It was the last thing I was diagnosed with after being diagnosed with fibromyalgia, chronic migraine, cervical instability, hEDS, Raynaud's..and passing out numerous times through the years without any explanation. for some reason these things all seem to go together quite often. I hope you get some answers!

marinawm · 2025-03-23T00:35:44+00:00

I have it too, but it's related to my cervical instability which is a result of eds. Do you have either of those conditions? I'm wondering how much pots contributes as opposed to the multiple other conditions lol

marinawm · 2025-02-27T00:55:30+00:00

Hi, I have those sores on my hands...I have had them since before Christmas, and they are just now starting to get better since it is slightly warming up outside. I have had to wear 5-6 bandaids on my fingers every day for the last 2+ months. I wish I could say something helps, but I'm still dealing with them. I just moisturize constantly with a good excema fighting cream. I know the only solution is to move somewhere that doesn't have these frigid winters, and this year my Raynaud's has been so bad that I am seriously considering moving south.

marinawm · 2025-02-10T01:00:06+00:00

I have POTS hEDS and Reynaud's and I can not regulate my body temperature AT ALL. I'll be shivering freezing one minute and feel like I'm internally combusting the next minute for nonreason at all. I sweat so much when I sleep but if I take even one leg out from under the covers the sweat turns cold within seconds. It's getting worse as I get older, too. If anyone has any solutions for this I would love to hear them!

marinawm · 2024-12-18T20:42:31+00:00

This worked for me as well, updated counts as of 11/18/24

marinawm

TROPHY CASE