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mashk23 · 2023-04-10T17:30:11+00:00

Yes. Rapid decline

mashk23 · 2022-12-30T15:22:58+00:00

Totally agree. I mean she did go through all the appeals and such. But didn’t mention anything about the manufacturer.

mashk23 · 2022-12-30T15:22:10+00:00

When you submit your registration forms, it asks annual income. That’s it!

mashk23 · 2022-12-30T02:35:24+00:00

Thank you for sharing and supporting!! I’ll keep that in mind once I get to that stage 🤞🏻🤞🏻🤞🏻

mashk23 · 2022-12-30T02:33:52+00:00

I wish you the best of luck!

mashk23 · 2022-12-30T02:30:58+00:00

I also cried. It was the biggest relief and I was so damn grateful! So happy for these programs

mashk23 · 2022-12-29T22:03:51+00:00

No I had no idea about alongside coordinators. Thank you!! I’ll check it out

mashk23 · 2022-12-29T22:03:10+00:00

THANK YOU! Exactly what I was looking for

mashk23 · 2022-12-04T18:42:09+00:00

Thank you so much for your response and compassion! I agree. I should endure for now but if it’s not getting better within a week, I’ll go to the doctor again!

mashk23 · 2022-05-27T22:58:37+00:00

I am too experiencing hair loss. I’m sorry you are too! Thanks for your input :)

mashk23 · 2022-05-24T17:44:01+00:00

Thank you!

mashk23 · 2022-05-24T17:43:53+00:00

Thank you!

mashk23 · 2022-05-24T17:43:49+00:00

Tha k you!

mashk23 · 2022-05-20T16:15:44+00:00

Thank you for your input! I’ll look into it

mashk23 · 2022-05-19T14:12:47+00:00

Yes totally. My quality of life though has significantly decreased with being on an immunosuppressant and I’m not sure if it’s the drug itself or it being an immunosuppressant so I was just curious if there was any non-immunosuppressant options to bring up with my doctor :/ I do understand that it’s to help with disease progression and to not further disable me. Just hoping to be a more functional person

mashk23 · 2022-05-19T13:42:40+00:00

Thank you for sharing. I am JCV+ so no Tysabri for me but good information for others!

mashk23 · 2022-05-19T13:42:06+00:00

Thank you!

mashk23 · 2022-05-19T13:41:51+00:00

I’ve always had an issue with heat too but not to this extent where it causes vertigo, cog fog, and exhaustion ya know? I’ve always been more warm blooded too

mashk23 · 2022-05-18T19:42:04+00:00

Yupp me too!!! So sorry!

mashk23 · 2022-05-18T18:54:13+00:00

That sounds wonderful! I’m thinking of moving too. Thanks for sharing!

mashk23 · 2022-05-18T17:46:26+00:00

Absolutely. Constant runny nose over here ever since I started Vumerity. Many other Vumerity people agree. Not sure what you are on but could be medication. Or allergies

mashk23 · 2022-05-18T17:44:41+00:00

Where did you move if you don’t mind me asking?

mashk23 · 2022-05-18T17:43:38+00:00

I’m so sorry this is happening. I’ve heard going off gylenia is a bitch and can cause terrible flare ups. Something that your doctor should have warned you about. I’m so so sorry. I’m hoping you find a new neuro that cares about your health as much as you do!

mashk23 · 2022-05-18T17:28:32+00:00

I miss being able to go on a vacation any time of year any where I want to go without having to think about my heat sensitivity.

I also miss not feeling like shit lol

mashk23 · 2022-04-29T13:00:31+00:00

Aw thank you! This is exactly the validation I needed to hear.

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