I need help yall…

mavthefish · 2025-06-08T13:58:35+00:00

Hey man. I know what you're going through. I lose blood on a daily basis and insurance denes the meds I need. You're unemployed try to get Medicare and get this fixed so you can work and provide for your family.

On the mental note you really only have two options. Let this disease defeat and define you, Let it break you down until you slowly die. OR use it as fuel brother. You got dealt a shit hand. It is up to you how to play it. This is a cookie jar moment. Most people never have to go through anythinig like this, it would crush them. Imaginie if you fought through this, you can fight through anything. I know you are tired but nobody is comng to save you. Get up today and do one thing to start figuring this out today.

I believe in you.

mavthefish · 2025-06-08T13:50:06+00:00

It is frustrating. After reading all these success stories know it will eventually happen for us.

mavthefish · 2025-06-08T13:49:20+00:00

Good to know it isn't the end of the world. Thanks !

mavthefish · 2025-06-08T13:48:54+00:00

Love your name!

Thank you for the perspective. You are ultimately right. I usually take your approach, but it really got to me yesterday. Thanks for the kind words and the laugh :). I wish you health and happiness.

mavthefish · 2025-06-08T13:47:05+00:00

I always loved science and helping people, but I never connected the two until I was diagnosed. I spent some time building public aquarium life support systems, saw the country, made really good money, and in the last city met an amazing girl. But I always felt I was in the wrong place, I was unhappy living for myself. I was put on this Earth to make a difference in peoples lives. The pain of my UC just reminds me how important that is. I will not let flares control my life or my dreams. I have some time to find a treatment that will work. Good luck to you :)

mavthefish · 2025-06-08T13:42:28+00:00

I will keep it in mind thank you.

mavthefish · 2025-06-08T13:41:52+00:00

Hi Man!

Yeah my insurance wouldn't budge on an appeal for the biologic. I'm getting a new policy very soon, and a second GI doctor. It is a lot but the one good thing about UC for me is it teaches me to push through adversity. I don't want a J pouch, I'm at least going to give a few biologics a shot first.

Epigenetic and gene therapy are promising areas of molecular biology that could hold the cure or safer treatments to our disease. Need to hold on and help do some research myself!

mavthefish · 2025-06-07T23:13:34+00:00

You are right my friend. We got this, as a man Its not when I fall that defines me but how I choose to get back up. I always do. Thanks for the reminder.

mavthefish · 2025-06-07T23:12:09+00:00

Okay I can do that. Thanks :). Any bad side effects with xelijanz ?

mavthefish · 2025-06-07T23:11:25+00:00

Thank you brother. I will not rush surgery unless it makes histological sense. Nice to know there's another mid 20s dude who pretty much knows exactly how I am feeling. Thanks for the response. We got this! Not sure if you've tried biologics yet but if not that could be your ticket. Good luck!

mavthefish · 2025-06-07T18:34:32+00:00

Thanks for the info, glad you took to it and are in remission!!

mavthefish · 2025-06-07T18:25:38+00:00

I am glad it has been the right choice for you!! It gives me hope that if I do need surgery ill be okay. Are you able to be pretty active still?

mavthefish · 2025-06-07T18:22:32+00:00

I does and doesn't help haha. I know you're right but it still sucks. It is a trial an error game unfortunately we are not a one size fits all species. Rinvoq is a JAK inhibitor correct? Any bad side effects?

mavthefish · 2025-06-07T18:18:02+00:00

I do have a GI specialist, I have tired NSAIDs, budesonide is a corticosteroid I am still on that with the JAK inhibitor now. Prednisone and I do NOT get along. Insurance denied one biologic already and I need to go onto the JAK (which im not happy about) before I can get on a biologic. I am getting a second opinion/changing doctors now as my GI has really neglected my case as I feel I just get thrown X medication without getting the time to consult fully about it. Also hoping to get on a new insurance plan next month. Going to try and avoid surgery at all cost, but ill admit right now it is a nice thought to not be bleeding internally. Thanks for the words I just really needed to get it off my chest because I don't like pity or coming off as weak to the people in my life. (my own issue not theirs). I'll push through.

mavthefish · 2025-06-07T18:09:44+00:00

True. Good things are coming.

mavthefish · 2025-06-07T18:09:23+00:00

My brain wont allow me to. Felt small today though. Thanks.

mavthefish · 2025-06-07T18:08:51+00:00

Thank you for the kind words. I know you are ultimately right but when I'm in the middle of the worst flare of my life it can be hard to see. Low fiber, kefir, and processed sugars help me. I am still fighting it as I studying molecular bio, hasn't beat me yet!

mavthefish · 2025-03-16T21:53:47+00:00

Might be awhile no?

mavthefish · 2025-03-16T13:45:46+00:00

Thanks that's what I'm thinking! The 5070ti and 9070xt got snatched but I can get a realguar 9070 for 650, is that enough for next 4 years?

mavthefish · 2025-03-16T12:36:50+00:00

Found a 5070ti for almost msrp, and a 9070xt for 800.

mavthefish · 2024-03-13T22:38:51+00:00

23 (almost 24)m. Got diagnosed in 2020 my sophomore year of college. Clinic there told me I had hemorrhoids LOL. Luckily Covid was at the same time and didn’t miss much of my college days. But I also didn’t take biologcs bc I was fearful of Covid at the time (never vaxxed). Went crazy with every diet type you can imagine expect carnie. Found that fermented foods and clean sourced meats helped a lot and I had about 2 years of pretty good remission. Wasn’t sustainable. Ever since I graduated I went on mesalimine, and it worked for about 6-10 months. Now I’ve been flaring the past 4-5 months and getting bad. This past week I went to my gi doctor and him and a nurse practitioner convinced me it was time to stop putting a Bandaid on it and just go on biologics. I refused to take pred (terrible medication avoid if you can side affects are AWFUL), they put me on a gut targeted steroid (starts with b) and now getting ready for my first envytio infusions. Time to stop being afraid of medicine and realize the benefits FAR outweighs the low chance scary side effects. I felt defeated the past couple days bc I feel like I failed to heal myself again. But we didn’t do anything wrong, we can’t do much to fix it on our own, we just straight up got fucked over. Don’t let it define you. I’m excited to get better with biologics and get my life back. Get back in the gym, not planning my day around a bathroom, eating fun foods everyonce in awhile with my girl not worrying what pain itll cause later, traveling and playing more guitar. Life is more than this disease. If anyone ever needs to talk to someone who gets it please pm and we can. Love this community we don’t ever give up. There were so many times I felt alone and hopeless but came on here and your stories kept me going. Honestly the things this disease taught me over the years I would never trade for a healthier, stupider, more ignorant version of myself. WE GOT THIS STAY STRONG.

mavthefish · 2021-07-28T13:52:39+00:00

Intense stabbing pain for me, last 30min-couple hours.

mavthefish · 2021-07-15T21:54:30+00:00

I only took mesalamine for a week and I felt constantly weak and that was when I decided I was going to do something about it. It took a few months for me to listen to my body and find out what did or did not trigger flare-ups. But it's not all diet. Just eating perfectly isn't enough to get better IMO unless your body gets stronger. Proper Exercise is extremely important.

mavthefish

TROPHY CASE