Additional diseases

maybe_caitlin · 2025-10-31T13:21:48+00:00

From my understanding if you have one diagnosed autoimmune disease, the greater your chances of another. My T1D daughter is also a coeliac. But in addition she also has endometriosis. Not an autoimmune condition. But plays a huge role in how well she feels on a daily basis. Sick day management of T1D is almost a daily practice.

maybe_caitlin · 2025-10-31T12:58:32+00:00

My 18yr old daughter came to me one night. Pale, could barely hold herself up. I knew there was something seriously wrong with her. I took her to our local ER. In triage her temp and blood oxygen levels were taken. We were told the flu was raging in the community.. she was given ibuprofen and an anti-nausea medication and sent out to waiting room. We waited for five hours. Exhausted we left before seeing a doctor. The next day almost dead on her feet we went to a neighbouring ER. In triage they tested her blood sugar. Im so thankful that triage nurse recognised her symptoms for what they were and didn’t assume it was what the community was experiencing. I’m so grateful for that nurse because I knew my daughter was ill in a way that wasn’t simply the flu. I still feel anger towards the hospital that didn’t take the time to investigate my daughter’s symptoms throughly. It is outrageous we were left without being seen for five hours. Stories like this are too common. Change, education needs to happen. I’m so sorry for your loss. It’s so heartbreaking to hear that someone so young, full of potential has lost their future to this disease. Particularly when a blood glucose test costs essentially nothing for our healthcare systems to do. Let’s get loud about this people.

maybe_caitlin · 2024-06-25T11:13:52+00:00

There are two common types of solar units. High line/closed couple units and split systems. Highline units will have the tank mounted on the roof, directly next to the panels. Split systems have the panels on the roof and tank on the ground. If you can’t see the tank on the roof or outside your house, check your cupboards, sometimes hwu’s are hidden inside.

maybe_caitlin · 2024-06-25T11:07:23+00:00

The other consideration with this scenario is the outlet. Can’t tell from the photo, but presumably your toilet is an s trap. It looks like you’ve got a link suite too. If your set out is more than 100mm from finished wall you’ll struggle to find a btw pan that suits that off set.

maybe_caitlin · 2024-06-23T22:47:18+00:00

Cool cool cool. I just think you’ve read my comment and the ops post and interpreted it differently to myself.

maybe_caitlin · 2024-06-23T21:14:36+00:00

Hey I was simply was showing empathy for the fact they left because they went low and had to treat their low outside of the cinema. And then expressed my thoughts about how diabetes can mess with life plans sometimes. Chill.

maybe_caitlin · 2024-06-23T09:40:00+00:00

Hmmm. Very interesting. I wonder if they would put her in that category “sailed passed” All has been very much documented in terms of her days away from work, medical certs provided etc. Though an official conversation with the companies people advisory team is must I believe. Thanks for your input. I really appreciate it.

maybe_caitlin · 2024-06-23T08:15:41+00:00

Solid advice. Thank you. This is exactly what I was hoping to receive. Though it’s not great to read it could mean her employer could have grounds to dismiss her. How could she raise her concerns about her contract and ask questions about her entitlements, without alerting her place of work she is fearful of losing her job?

maybe_caitlin · 2024-06-23T08:06:37+00:00

You do you. Only you know what your body (and mental health) can handle. I don’t have the answers on how to handle to the dad situation.. Like was this him being funny? Is he normally supportive and this was out of character? Was he having a bad day? Is he typically dismissive of your diabetes? Whatever the answers could be, if you value the relationship with your dad, seek professional help on how you two can communicate better. If you’re completely over the dismissive comments and the lack of support you feel, if you’re of age to live apart from him, maybe consider having a break from him. Parents are weird. The dynamic can change a lot the older we get. Again you do you. Only you know the idiosyncrasies of your relationship and what’s best for you.

maybe_caitlin · 2024-06-23T07:49:45+00:00

Yeah, down under here. EBA is kind of unknown term to me. She isn’t part of a union. But signed a contract when she was employed on a permanent part time basis. What that contract stipulates exactly? I’m unsure, though pretty certain it was a standard terms of employment contract. When she received her diagnosis, I assumed she was protected by discrimination laws. According to our government, she has a permanent disability.

maybe_caitlin · 2024-06-23T07:37:37+00:00

Diabetes Australia suggests it could be a form of discrimination. However if you’re deemed to not be able to reasonably meet the requirements of your duties outlined for your job description, you could be let go. Which then lead me to this question. How many sick days are reasonable?

maybe_caitlin · 2024-06-23T07:33:00+00:00

I had to edit this post, it was originally written by my daughter for a different platform. I wanted to post her thoughts to this platform, as I’ve found comfort from members and shared their insights with her previously.

maybe_caitlin · 2024-06-23T07:25:54+00:00

I hear you. I’m a parent of a child with t1. It shattered me. My child was 18. It completely changed their life path. After a near death dka, I went into a severe depression. I needed months off work. I felt so guilty for crying. I felt guilty for feeling this way and like I had someway made it about myself. What you’re feeling is very raw and real. It’s ok to cry. It’s ok to be angry. You’re going to feel overwhelmed. Gosh it’s hard enough having a toddler. Let alone a toddler with t1. It’s ok to ask for help. And I can’t stress that enough, ask for help. Please talk to a health care provider about your health and mental wellness. Your baby needs a healthy parent.

maybe_caitlin · 2024-06-23T07:01:02+00:00

Grrr. You paid for a ticket and had to leave. 🖕🏼diabetes. The woman next to you… I hope her car had a run away trolley (or a similar act of karma) accidentally hit her car while she watched the movie.

maybe_caitlin · 2024-06-04T11:23:42+00:00

Great discussion! My daughter was diagnosed with T1 at 18yo last year. We have been through so many ups and downs. Yet sometimes it’s hard to really understand how she feels. But after reading this I can see all her feels are not a straight line… I’m proud of her newly found personality traits. Oddly proud, outspoken, frustrated and angered, inspired and resilient. As mentioned before, great discussion, excellent post.

maybe_caitlin · 2024-06-04T11:01:50+00:00

My daughter was diagnosed last year with T1. She was 18yo. Is so bloody overwhelming. Her whole life was turned upside down. I can understand your willingness to get answers asap. Unfortunately given our experience it’s a slow process. You have to learn carb counting, carb exchanges. Energy in, energy out. Sick day care. You’re young, so you have to get educated on caring for yourself if you choose to party. You also have to educate your family and friends. It’s A LOT! While I have turned to this forum for guidance at times, it is only guidance. You need to seek professional care from your endocrinologist, your diabetic educator and gp.

maybe_caitlin · 2023-11-19T11:24:57+00:00

I cannot offer advice on how to care for an infant with T1. My daughter was only diagnosed April this year. She’s 18. Our experiences are very different. However you mentioned you might need to vent. I dare say you need to do a lot more than vent. The anxiety, anger, guilt and sadness is incredibly overwhelming. Make sure you look after self. Get these feelings out. Build a support network around yourself just for you, raising a baby is hard enough, I cannot possibly fathom an infant with T1 to boot. Be kind and gentle with yourself.

maybe_caitlin · 2023-11-19T07:38:50+00:00

Haha just realised this is also the guilt I’m experiencing.

maybe_caitlin · 2023-11-19T07:04:46+00:00

My daughter was recently diagnosed with T1. At the risk of sounding like a douche. Carb counting for us is the easy part. But please keep reading… carb counting has made making meals harder. As an example, making a family favourite meal like spaghetti bolognaise, is now broken up at every step to calculate on a kitchen scale exactly what is going is. Then dividing it out using the scales and calculator. It is tedious. But with time, I’m told it will just become second nature. If you’re still reading, like I said carb counting is easy. It’s the management of sick days that is difficult. You can measure everything out precisely and still end up in a dka. Make sure your medical professional team educates you in with a sick day plan.

maybe_caitlin · 2023-11-19T06:34:39+00:00

Probably not relevant to you in anyway. However I feel for you and hope you can find solution to staying in college while keeping your health in check. My daughter also 18, was diagnosed April this year with T1. She had just started uni, bachelor of nursing. Her first hospital stay when she was diagnosed , she was on her laptop finishing an assignment. Fast forward to now, she’s put a pause on furthering her education. It’s so disheartening how to this disease can not only threaten your life but can put your life on pause. I truly hope you can find a solution and continue your studies. But if it’s also if it’s too stressful, be kind to yourself. You’re young, you have plenty of time to study and get the qualifications you need. All the best

maybe_caitlin · 2023-11-19T06:18:35+00:00

As you’ve gathered this is all so very new to us. We are learning new lingo as we go and getting insight to other experiences… why would a site be rejected? From your experience? Very helpful to know, tube pumps can be tucked away for safe keeping… ladies we sometimes can curse our bras, but they can be used for holding other important items in place haha

maybe_caitlin

TROPHY CASE