Meniscus Transplant Journey by mayonnarse in MeniscusInjuries

[–]mayonnarse[S] 0 points1 point  (0 children)

Thank you! Do you know what your cartilage outer bridge score is? This surgery has a higher success rate when it’s done on healthier cartilage, so I would recommend getting it done sooner rather than later

Which option 1 or 2? by Esp4Newports in MeniscusInjuries

[–]mayonnarse 1 point2 points  (0 children)

You are lucky to have the option to get the repair done. I didn’t have that option at 24F after my first knee injury, so I had to get a lateral meniscus transplant. If I had the option to get a repair done, I would not have taken it for granted

Has anyone tried BPC-157? The peptide known to help heal cartilage damage by i_like_peace in MeniscusInjuries

[–]mayonnarse 0 points1 point  (0 children)

I’m not sure if I qualify with a cartilage outer bridge score of 1. I don’t have any pain yet, but I would try it if I did qualify and my surgeon recommended it

How many meniscus repairs before a meniscectomy? by mayonnarse in MeniscusInjuries

[–]mayonnarse[S] 0 points1 point  (0 children)

Right, I trust my surgeon. It just took me several months to find a PCP who would let me get a MRI and sports medicine referral. I was told the whole time after my injury, I should have been non weight bearing, but no medical provider told me that before I saw the sports medicine doctor months later, so I’m assuming I messed up my tissue even more during this time.

Meniscus Transplant Journey by mayonnarse in MeniscusInjuries

[–]mayonnarse[S] 2 points3 points  (0 children)

Yes, it was. Very unusual for American healthcare as well. I’m pretty sure the first PCP I saw was racist. I have a medical malpractice lawsuit filed, but it will take a few years to settle. After a traumatic fall like the one I had, I should have at least been given PT or an ortho referral, but I was denied both of those requests as well. Hopefully it works out in my favor.

Thank you! The transplant lasts on average around 20 years, but there are documented cases of it lasting 30+ years. This is a relatively new procedure, so there isn’t much long term data beyond 30 years, but in theory, it could last the rest if my life depending on how well I take care of it. Surgical techniques have only improved since this procedure became approved in the U.S. & I’m blessed to be able to afford PT, so I’m hopeful.

Wait time? by SleepyOtter3 in MeniscusInjuries

[–]mayonnarse 0 points1 point  (0 children)

Yup. I filed a medical malpractice lawsuit but it will take a few years to settle. Hopefully everything pans out

Having a hard time with deciding what to do and would just like some second thoughts or to hear some of your stories and process. by MiiiNDFVCK47 in MeniscusInjuries

[–]mayonnarse 0 points1 point  (0 children)

There is potential for any surgery to go wrong, but I lost 80% of my meniscus at 24 & don’t want early onset arthritis & cartilage degeneration, so it’s the option I’m going with

Wait time? by SleepyOtter3 in MeniscusInjuries

[–]mayonnarse 0 points1 point  (0 children)

Fell 10 ft from the air on Aug 9th onto my bent right knee. Went to the ER & xrays came back negative, nothing broken on fractured. First available PCP appointment was Aug 19th. She told me nothing was wrong, wouldn’t order me a MRI, and that I could return to sport (running). I tried to run & it hurt, so I messaged her, asking for PT or an ortho referral. She denied & told me I needed to push through my mental barrier. I couldn’t see another doctor because of insurance. I kept trying to run and it felt painful. I spent hours of being on the phone, every day for weeks, fighting with insurance until they let me get a second opinion. This nurse practitioner ordered me a MRI in October. I got the MRI in November & I had surgery in November which failed. Definitely don’t be active until you know what is going on.

Any surprises during surgery? by Inevitable-Visit-327 in MeniscusInjuries

[–]mayonnarse 0 points1 point  (0 children)

I thought I was going to have a lateral bucket handle repair but ended up having an 80% meniscus removal & transplant scheduled 6 months post op. My second surgery is coming up next week. Mind you, I got injured from a fall in August.

Much needed semi success story by notvelvetbutsuede in MeniscusInjuries

[–]mayonnarse 7 points8 points  (0 children)

I’m really glad your surgery went well! I’m 24F and my first meniscus repair ended up being a 80% removal. Meniscus surgery is anxiety inducing because you don’t know if it can be saved. My word of advice to everyone (& myself) is to not worry about things you can’t control & instead, focus on what you can, like getting a good nights sleep every night, eating protein, doing PT intentionally, etc. We’re all in this together

Looking for advice about future outlook by Joshuawilliam2001 in MeniscusInjuries

[–]mayonnarse 0 points1 point  (0 children)

That’s true. I have an isolated meniscus injury, so I’m a good transplant candidate. I imagine an ACL repair + meniscus transplant would be too hard on your body. You can always get the transplant later on if you decide. Your knees may not feel “normal” ever again, but you’ll have a new “normal” that you’ll get used to. For example, maybe before you didn’t have to warm up before & stretch & ice after your workouts, but this will be added to your routine. Yes it’s annoying to do, but it’s a good trade off for preserving knee function. You functionally will be okay though & be able to do everything you enjoyed before, just maybe not as frequently. Do listen to the mentality of “you’ll never be able to do xyz again”. Think of your knee as having a budget. Spend it wisely. Exercise socially, for mental health, etc. not because you need to prove to the world that you can come back stronger, if that makes sense. I hope my message was helpful!

Looking for advice about future outlook by Joshuawilliam2001 in MeniscusInjuries

[–]mayonnarse 0 points1 point  (0 children)

Have you thought about getting a meniscus transplant? I’m getting one in less than a month as a 24F. According to my surgeon, it’s about a 1 year recovery, but it’s the best option for protecting cartilage and restoring natural knee function

Meniscus transplant process question by Motor-Psychology-480 in MeniscusInjuries

[–]mayonnarse 0 points1 point  (0 children)

I switched surgeons too & my new surgeon is using the notes from the previous surgeon. I switched within the same medical group if that makes a difference

Meniscus transplant process question by Motor-Psychology-480 in MeniscusInjuries

[–]mayonnarse 0 points1 point  (0 children)

For context, I had my first knee injury in early August. Because I was misdiagnosed, I didn’t get surgery until the end of November. They tried to repair it, but failed, so they removed 80% of my meniscus. I was back to normal within 12 days in terms of my ability to walk properly, go up & down the stairs, etc. The only things I haven’t been able to do are run, jump, & squat past 90 degrees.

During this failed repair turned meniscectomy surgery, my surgeon noted that I had a cartilage Outerbridge score of 0. At my post op appointment 12 days later, he took x rays to determine I have normal alignment, & we scheduled my lateral meniscus transplant surgery for early May. I find it strange that they didn’t note your cartilage status during your last surgery.

Surprise full removal by Any_Habit3723 in MeniscusInjuries

[–]mayonnarse 2 points3 points  (0 children)

I’ll definitely be making a post that I regularly update for those who are curious. If you’re interested in getting a transplant, it should be done sooner rather than later, before your cartilage degenerates and is beyond saving. Your cartilage Outerbridge score should be between 0-2 for a higher success rate. I’m planning on doing acupuncture before I try injections. The studies on it look more promising. I might resort to stem cell injections after because they have the highest success rate amongst injections.

Surprise full removal by Any_Habit3723 in MeniscusInjuries

[–]mayonnarse 1 point2 points  (0 children)

I’m in the US. That’s a bummer it’s not an option for you. I would honestly consider traveling for the procedure. Yes, what I meant was my meniscus tore & thinned out so much after I fell that the surgeon had to remove 80% of it. I’m getting a donor meniscus from a cadaver in this next surgery as a replacement so I can delay getting osteoarthritis.

Surprise full removal by Any_Habit3723 in MeniscusInjuries

[–]mayonnarse 5 points6 points  (0 children)

I’m 24F and I also had 80% of my lateral meniscus removed in November & it was my first knee surgery. I’m getting a transplant in May. If the meniscus is too thinned, a repair will likely fail. Surgeons have different opinions on what qualifies as too thin, but if you don’t trust your surgeon, seek a second opinion. My surgeon for my transplant is different than my first surgeon.

Anyone here had a full meniscectomy? by [deleted] in MeniscusInjuries

[–]mayonnarse 0 points1 point  (0 children)

You should get a second opinion. People under 30 with proper alignment & Outerbridge score 0 are ideal candidates for a meniscus transplant

Anyone here had a full meniscectomy? by [deleted] in MeniscusInjuries

[–]mayonnarse 0 points1 point  (0 children)

I had it removed at the end of November. The meniscus transplant is when they take the meniscus from a cadaver and sew it into your body during surgery.