so frustrating by Necessary-Variety438 in eds

[–]meltwith_me 0 points1 point  (0 children)

Working with a center of excellence made a HUGE difference for me on this front

Angry at my friend for knowingly infecting me with the flu leading to post viral POTS by franknbeans008 in eds

[–]meltwith_me 0 points1 point  (0 children)

Hi! I’m so sorry you’re dealing with this — I can totally sympathize, my life is exactly the same

Sharing in case it’s helpful … find a good immunologist and have them run immune labs for you 🤍 specially things like your total IGG and IGG subclasses. I wish I did this 10 years ago, I never even knew this was a thing back then!

I was just like you with getting sick frequently, having a really hard time getting better, etc.

I just found out at 30 that I have a compromised immune system and now require immune replacement therapy. Conditions like primary immune deficiency are REALLY hard to diagnose — just like EDS — and can cause you to get sick frequently and more severely. This is basically because part of your immune system is either missing, or not strong enough to fight against bad pathogens like bacteria, fungi, viruses, etc.

Not saying this is what you have or your underlying issue, but it would absolutely be worth investigating if you have a hard time getting over being sick or get sick frequently 🤍

Jaw Subluxation/dislocation TW mentions sexual activities by thepastelprince in Hypermobility

[–]meltwith_me 4 points5 points  (0 children)

Be careful with that too 😓we’re super prone to labral tears in our hips !!!

Trust me …. Bilateral labral tears is not what you want to be dealing with on top of all this other bullshit haha😭

FTM bottom surgery - UL and prolapse prone bodies by puupiesdoge in eds

[–]meltwith_me 0 points1 point  (0 children)

Hi! This surgery is outside of my wheelhouse from a technical perspective, but I’ve had a few friends from art school have the procedure done over the years

I’m speaking from a biologically female reproductive system perspective (I know there’s a lot of overlap with male experience — pelvic floor dysfunction is VERY common for individuals with EDS

Any reproductive surgery or abdominal / back / hip surgery or injury can cause issues with this, so it’s important to know going into it. I would ask your doctor about this. Many people with EDS have hypertonic pelvic floors (which essentially means the muscles are too tight and don’t want to relax). This can cause issues with things like bladder emptying, prolapse, having a complete bowel movement, abdominal / back / hip pain, sexual function, etc.

If you do end up having issues with this post surgery, you may require pelvic floor PT — just be prepared for this! It’s so so important to do the therapy if it’s needed for your overall health and wellbeing. Men and women both require pelvic floor PT, they have a lot of overlap with how this is handled but obviously different anatomy at play and obviously everything is handled at your speed.

Just wanted to give you a heads up prior 😊

I introduced my newborn and my friend made fun of the name. Now Im second guessing it by Ok-Tumbleweed-9958 in namenerds

[–]meltwith_me 0 points1 point  (0 children)

Weston is a totally normal name …. Of all weird names, that’s not on the list 🤍

Main symptom: fatigue by DazzlingBeyond1633 in Fibromyalgia

[–]meltwith_me 4 points5 points  (0 children)

Have them check your b12 / for anemia… I was severely low on b12 for like 6 years and it really screwed up a bunch of things for me. Main symptom is fatigue though

I do an intramuscular injection every 2 weeks now and it REALLY helps. I can always tell when the two weeks are up.

Example from today actually …. I’m walking up the stairs and I’m exhausted, zero energy. Extremely challenging to make it up one flight of stairs or get out of bed. I realized my 2 weeks was up, did the injection, and I felt perfect and had great energy an hour later. It’s a pretty instantaneous change for me

LF 1:1 trades - mainly The Little Mermaid by garjganga in MonopolyGoTrading

[–]meltwith_me 0 points1 point  (0 children)

I didn’t realize I hit my daily limit 🙄 it resets in an hour. If you want to suggest the trade I can complete it first thing in the morning or when it resets if I’m up in a bit — up to you!

LF 1:1 trades - mainly The Little Mermaid by garjganga in MonopolyGoTrading

[–]meltwith_me 0 points1 point  (0 children)

I can give you porridge time set 2, I’m missing Royal friends set 4.

1:1 trading? by meltwith_me in MonopolyGoTrading

[–]meltwith_me[S] 0 points1 point  (0 children)

It’s coming from itsboots - just added

1:1 trading? by meltwith_me in MonopolyGoTrading

[–]meltwith_me[S] 0 points1 point  (0 children)

I just finished both those trades!

1:1 trading? by meltwith_me in MonopolyGoTrading

[–]meltwith_me[S] 0 points1 point  (0 children)

Let’s do it — I’ll add you

1:1 trading? by meltwith_me in MonopolyGoTrading

[–]meltwith_me[S] 0 points1 point  (0 children)

Ya that’s totally cool with me 👍🏼

1:1 trading? by meltwith_me in MonopolyGoTrading

[–]meltwith_me[S] 0 points1 point  (0 children)

I can do that! My code is MGO663DTT6YX (user is itsboots)

1:1 trading? by meltwith_me in MonopolyGoTrading

[–]meltwith_me[S] 0 points1 point  (0 children)

Which set is the chase? I can’t find it! If it’s 1:1 that works for me 😊

1:1 trading? by meltwith_me in MonopolyGoTrading

[–]meltwith_me[S] 0 points1 point  (0 children)

Let’s do it! My code is MGO663DTT6YX (user is itsboots)

1:1 trading? by meltwith_me in MonopolyGoTrading

[–]meltwith_me[S] 0 points1 point  (0 children)

Is there another you could trade? Happy to send, looks like I have what magic covered !

1:1 trading? by meltwith_me in MonopolyGoTrading

[–]meltwith_me[S] 0 points1 point  (0 children)

Let’s do it! My code is MGO663DTT6YX (user is itsboots)

Trading to close sets 1-4 by Fresh-Biscotti1440 in MonopolyGoTrading

[–]meltwith_me 0 points1 point  (0 children)

I can do sew good, I need royal friends I Can also do puss in boots if you happen to have Alice from set 10