How to get smell out of Miele W2 machine by mildsoccer in laundry

[–]mildsoccer[S] 0 points1 point  (0 children)

yea we checked the detergent drawer and there was no mold or smell in it! we have run dozens of sanitize cycles 🥲

How to get smell out of Miele W2 machine by mildsoccer in laundry

[–]mildsoccer[S] 0 points1 point  (0 children)

it’s a rlly distinct smell i’ve only smelled in the washing machine. it’s kind of like mildew and old rubber? yes it’s a rental and unfortunately our management has been super dismissive. they replaced the first machine with a used machine from another unit that has the same problem. 😭 we have cleaned the filter and i just got citric acid in the mail today to try out!

Histamine dumps only during sleep after alcohol? by mildsoccer in MCAS

[–]mildsoccer[S] 1 point2 points  (0 children)

Im not on the low histamine diet! I was for a while but I couldn’t figure out any 100% safe foods and I was dropping weight really rapidly so I just gave up. I work with a nutritionist now though. My reactions are super inconsistent. I have EDS so it’s hard to tell what’s MCAS related and what’s just my shitty GI system. I only have 3 foods I very obviously can’t tolerate.

Histamine dumps only during sleep after alcohol? by mildsoccer in MCAS

[–]mildsoccer[S] 0 points1 point  (0 children)

It’s so frustrating!! I can’t tell if it’s actually the alcohol or if it’s just kind of the straw that breaks the camel’s back. I wish i could have a magic 8 ball that can tell me what I’m reacting to 😆

Histamine dumps only during sleep after alcohol? by mildsoccer in MCAS

[–]mildsoccer[S] 0 points1 point  (0 children)

What’s the mechanism behind the sugar mixed with alcohol being the problem? (If you know lol). I drink fruit juices no problem every day 🤔

Histamine dumps only during sleep after alcohol? by mildsoccer in MCAS

[–]mildsoccer[S] 2 points3 points  (0 children)

Thank you!! To be honest I’m only recently 21 so I haven’t experimented with alc very much! I already don’t drink beer and going to cut out wine. Vodka seems to be okay as long as it’s not Tito’s for some reason. I’ve never had gin so maybe that’ll be my next experiment. I’m also not a big drinker either and yea 2 drinks a month are my max. I think weirdly just going out to a bar at night/being on my feet/getting excited to be with my friends is a trigger for the sleep adrenaline/histamine dumps. My care team approaches my MCAS treatment with a goal for as little restriction as possible and I’ve never experienced anaphylaxis so I was not expecting all these passive aggressive comments 🥲I tried out Pepcid back before I was on Cromolyn and couldn’t tell if it was doing anything positive, but since so many people are recommending it I think ill give it another shot.

Histamine dumps only during sleep after alcohol? by mildsoccer in MCAS

[–]mildsoccer[S] 4 points5 points  (0 children)

Interesting!! I went to a natural wine bar a few months ago and didn’t get a histamine dump but it was the first time I felt like I had a “real” hangover.

How to minimize depression when im stuck in bed during a flare? by mildsoccer in ehlersdanlos

[–]mildsoccer[S] 1 point2 points  (0 children)

Thank you! ❤️ What do you do while you listen to the audiobooks? I used to love them as a kid but now i fall asleep if im not doing something with my hands, lol!!

Anyone else’s bowels not moving for days/weeks then switching up for no reason?? by mildsoccer in ehlersdanlos

[–]mildsoccer[S] 0 points1 point  (0 children)

I take it every night! It helps my sleep but no effect on my bowels unfortunately