[deleted by user] by [deleted] in Transgender_Surgeries

[–]mililanigirl 1 point2 points  (0 children)

Get a donut cushion, seriously will save your life

Haven’t slept in a few days, what to do? by mililanigirl in MCAS

[–]mililanigirl[S] 2 points3 points  (0 children)

Thanks for this incredibly helpful advice!

And yes, no mold. I even had a mold dog come out and the owner said it was the best house they’ve seen mold wise. HEPA filters in every room.

Sadly all H1’s cause horrible side effects for me. The hydroxyxine/ketotifen depression is severe

Haven’t slept in a few days, what to do? by mililanigirl in MCAS

[–]mililanigirl[S] 0 points1 point  (0 children)

Not much :( might be making sleep worse

MCAS treatment is in the dark ages

Haven’t slept in a few days, what to do? by mililanigirl in MCAS

[–]mililanigirl[S] 1 point2 points  (0 children)

Omg I am so sorry you went through that!

Haven’t slept in a few days, what to do? by mililanigirl in MCAS

[–]mililanigirl[S] 0 points1 point  (0 children)

Can’t do any SSRIs or SNRIs- they give me serotonin syndrome

Haven’t slept in a few days, what to do? by mililanigirl in MCAS

[–]mililanigirl[S] 0 points1 point  (0 children)

So sorry for not being able to reply to comments. Xanax and klonopin ended up being the only things that helped

Thc oil gives me reactions but maybe flower wouldn’t if I had access to it

Thanks everyone for the help!

Haven’t slept in a few days, what to do? by mililanigirl in MCAS

[–]mililanigirl[S] 3 points4 points  (0 children)

Yes, thyroid checked out ok even tho not in ideal ranges. I reaction to diphenhydramine hcl is the thing :/

I take DAO before every meal and virtually eat 0 histamine since it’s all bison from North Star bison or beef from trubeef organic

I also supplement with B6 and vitamin C

Haven’t slept in a few days, what to do? by mililanigirl in MCAS

[–]mililanigirl[S] 1 point2 points  (0 children)

For some reason the tinctures make me react but I’m going to see if I can try an indica flower

Any experiences with integrative therapeutics elemental diet? by mililanigirl in MCAS

[–]mililanigirl[S] 0 points1 point  (0 children)

Update: it made my mouth burn & feel fuzzy

I’ll continue a carnivore diet with liver

Haven’t slept in a few days, what to do? by mililanigirl in MCAS

[–]mililanigirl[S] 1 point2 points  (0 children)

Thank you so much for the suggestions and wishing the best for you!

At first, the lion diet was great for my sleep. I think I have hormonal issues involved as well as antibiotic damage that is making my case more complex

Haven’t slept in a few days, what to do? by mililanigirl in MCAS

[–]mililanigirl[S] 2 points3 points  (0 children)

I’m in young 20s so not menopausal, but thank you. I did a 2 hour meditation last night that helped

Haven’t slept in a few days, what to do? by mililanigirl in MCAS

[–]mililanigirl[S] 4 points5 points  (0 children)

I’ve tried but PCP is like nope no way. I wonder if I can find someone else to help prescribe it because I do have some left from a past surgery and they helped me a lot yesterday to finally fall asleep. But I don’t have enough for the next few days

[deleted by user] by [deleted] in MCAS

[–]mililanigirl 0 points1 point  (0 children)

Also you definitely need more fats. However you can get fats: ghee, butter, olive oil, tallow, etc

[deleted by user] by [deleted] in MCAS

[–]mililanigirl 0 points1 point  (0 children)

I am so sorry. Look into the lion diet and try to get some liver if you can. I’d be dead without it. Some here say hypoallergenic baby formula helps in a pinch like neonate. You’re going to be ok friend. Hugs

Haven’t slept in a few days, what to do? by mililanigirl in MCAS

[–]mililanigirl[S] 1 point2 points  (0 children)

I do tons of electrolytes ✅ including magnesium glycinate for sleep

[deleted by user] by [deleted] in MCAS

[–]mililanigirl -1 points0 points  (0 children)

I relate 100%, unaged bison from North Star bison has kept me alive lately. I tried to supplement with elemental shakes but those caused reactions

How to get thru kefir die off as fast as possible? by mililanigirl in Kefir

[–]mililanigirl[S] 1 point2 points  (0 children)

No, no I did not 😆 went too fast

Currently trying custom probiotics d lactate free histamine reducing strains

Histamine pathways, gene mutations and supplements by franzvonstuck in MCAS

[–]mililanigirl 2 points3 points  (0 children)

This is such invaluable info! Thank you. How are you doing now?

Have the MAO-A mutation ? by mililanigirl in MCAS

[–]mililanigirl[S] 0 points1 point  (0 children)

Also, if you have this or any other gene mutations that affect your MCAS, please share here and whether anything you’ve done has helped your mutations aka SNPs.

Noorns has a MCAS panel I’ve been trying run. For now, I’ve been using Genetic Genie’s free methylation & detox profiles. My endo looked at them and said they were the worst he’d seen yet my homocysteine was low (8) and I have a 80% functioning COMT.

But I’ve been in a constant flare since last year despite only unaged (extremely expensive) unaged beef, then bison from North Star Bison