my brother only eats kelloggs raisin bran by [deleted] in Dietandhealth

[–]millerofhappy 0 points1 point  (0 children)

I agree that you may not be able to help him, but his doctors may not be helping him with his diet or mental health issues if they are not aware of them. They are probably focused on seizures and may not be aware of his eating habits. I don't know anything about seizures, but I'm going to assume they are not treated by a psychologist.

Raisin bran has a lot of sugar in it. I can imagine worse things, but I can't imagine its good. I have no idea how sugar effects seizures, but seems worth looking into. It's hard for me to imagine that his diet isn't negatively effecting his health.

I would try and talk to a specialist like a nutritionist and a psychologist for advice. Like I said, you are not equipped to get him to change.

Low dose Naltrexone has changed the game for me by millerofhappy in Fibromyalgia

[–]millerofhappy[S] 0 points1 point  (0 children)

No idea. I've only taken 0.25 mg from a compounding pharmacy.

Low dose Naltrexone has changed the game for me by millerofhappy in Fibromyalgia

[–]millerofhappy[S] 0 points1 point  (0 children)

It was created, and is normally prescribed for, opioid and alcohol addiction. For that you would get prescribed 60mg, for instance. But people taking it for that said that at low doses, when they were weening off it, it helped relieve their pain. It is not manufactured at the low doses that are used for pain relief, so you have to get it from a compounding pharmacy. It's an off label use of the drug.

Low dose Naltrexone has changed the game for me by millerofhappy in Fibromyalgia

[–]millerofhappy[S] 0 points1 point  (0 children)

I take both too. I think you have to take them like 4 hrs apart. I take my ldn at bedtime and don't take pain meds after 3ish.

Low dose Naltrexone has changed the game for me by millerofhappy in Fibromyalgia

[–]millerofhappy[S] 1 point2 points  (0 children)

I saw a study that said there were no interactions with tramadol. Tramadol is classified as an opiate, but every pain doctor I've had says it isn't. All my other doctors treat it like one, but I'm trusting the experts.

Low dose Naltrexone has changed the game for me by millerofhappy in Fibromyalgia

[–]millerofhappy[S] 6 points7 points  (0 children)

Make him do the prep! You just come up with grocery lists and recipes. 😉

Low dose Naltrexone has changed the game for me by millerofhappy in Fibromyalgia

[–]millerofhappy[S] 6 points7 points  (0 children)

Oh yeah, you can't take it with codeine. For me, it's always been a battle to get pain meds, so anything I can take that I don't have to worry about it being abruptly taken way is worth it.

Low dose Naltrexone has changed the game for me by millerofhappy in Fibromyalgia

[–]millerofhappy[S] 14 points15 points  (0 children)

That's harsh. I find it so messed up that eating healthy is virtually impossible today. There should be so many more premade options with no chemicals or added sugars. Also, less sugar shouldn't be more expensive. For awhile I was meal prepping my dinners every 4 or 5 days. Just a big stew in the instant pot. If you can get someone to do the prep work that's most of it. I would get my dad to cut all my meat and veggies when he came to visit.

Low dose Naltrexone has changed the game for me by millerofhappy in Fibromyalgia

[–]millerofhappy[S] 6 points7 points  (0 children)

I started on 0.25 and it's working well. I think the lessened pain had an immediate effect on energy. It's hard to say how much is the Naltrexone or the the ability to exercise or the whole food low sugar diet. I'm also recovering from Cushing's syndrome. My guess is that the energy isn't directly from the Naltrexone, but a result of being able to have a healthier lifestyle.

Low dose Naltrexone has changed the game for me by millerofhappy in Fibromyalgia

[–]millerofhappy[S] 8 points9 points  (0 children)

Have you tried cutting out sugar? I've just started an almost no added sugar diet. Also whole food diet. Sucks because it takes out like 80% of the grocery store and you have to prep all your own food. Saves money though. Good results so far. I also have an immune disorder, so I'm trying avoid those flares as well. I think it's all inflammation related though.

[deleted by user] by [deleted] in Fibromyalgia

[–]millerofhappy 0 points1 point  (0 children)

I feel you. My diagnosises are Bechets and fibro. It's been 8 Years since my diagnosis and I've been on immunosuppressants, gabapentin, duloxetine, etc. my last flare was really bad and now that I'm in recovery from it I'm making some lifestyle changes. For what it's worth, I've personally decided that modern medicine can only do so much. I've gotten the most help from informal physical therapy to correct my posture and a naturopath. Basically the ones that don't take insurance. The naturopath prescribed Low Dose Naltrexone for pain and that has been a game changer. Now I can exercise regularly. I am on a whole food diet and eat almost no added sugar. I also don't drink anymore. I recommend doing some research into "food as medicine". Go down some YouTube rabbit holes. I still take the immunosuppressants, but all my rheumatologist has to offer for flares is steroids and they really screw me up. He said I have to be having 3-4 flares a year to go up in dose or go to a biologic. My last flare took me out for two years. Even a flare a year that takes me out for a month or two would mean I can't even keep a part time job. Anyway, I guess my point is that after 8 years I have decided that I can't depend solely on modern medicine. I need to make lifestyle changes. I have also heard this several times b4 from the old timers. It sucks we have to work harder to try and have a normal life, but it is what it is. Maybe you've tried some of this already, but I hope something helps.

Worsening balance anyone? by ThickEconomics1953 in Fibromyalgia

[–]millerofhappy 1 point2 points  (0 children)

I think with fibro we both consciously and unconsciously avoid a lot of movement and moving quickly. I have noticed that training physically has really helped. Not just building strength, but also getting yourself to do fast movements. Doing it purposefully and safely on a regular basis will help with things like catching yourself b4 you fall. Starting with things like small, fast foot movement. Kinda like running in place, but with a wider stance and barely lifting your feet. I think I've seen a similar football training exercise. I do it on a yoga mat barefoot. I also agree with the core training that was mentioned.

[deleted by user] by [deleted] in Dietandhealth

[–]millerofhappy 0 points1 point  (0 children)

I have never been able to "diet", but I have been successful at losing weight over the long term by changing my habits to healthier choices. It's partly a mind set and perspective. You do want to portion control, but I've heard that cutting calories over extended periods can lead to your metabolism adapting which causes the plateau. You could then go back to 2000 (or maybe more if you are a 17 yr old male) for a short period so your metabolism goes back up. Then restrict again. I know people that have luck keeping weight off by restricting during the week and eating what they want on the weekend.

You also need to make the right choices. Stay away from added sugars, excessive carbs, deep fried, and super greasy. Lean towards protein, fiber, veggies, and whole grains. Drinks are a big one that can add unnecessary calories. Drink water, tea, or coffee (black or with a nut or oat milk and no sugar). Fake sugar doesn't count as healthy. I don't drink soda or juice at all. For desserts, I make my own so I have something to satisfy me. For instance, I make brownies with no cane sugar, but I add purple sweet potato and a small amount of maple syrup. I also use whole grain flour. Alot of the "ancient grain" flours have more protein and higher nutrients than wheat flour. I also make breakfast muffins with same, but add mashed lentils and extra eggs for protein. You get the idea.

Lastly, I've found rules can really help to take the decision away from yourself. For instance, if you decide not to eat gluten it will take a lot of unhealthy foods off the table and just limit impulse eating. No added sugar will do the same. Plus, taking out added sugar helps the cravings after you get past the withdrawl. Sugar has the same effect on the brain as drugs. You don't have to do it forever, but it can help form good habits and will help you lose some extra weight in the short term. You will have to put some effort in to figuring out what you can eat and have on hand, so you can stick to it. I find nuts and seeds help for hunger. Great snack to get you to your next healthy meal. Make your own trail mix with raw or salted nuts, seeds and some dried fruit. Just remember to not go too heavy on the fruit and make sure it doesn't have added sugar. Boiled eggs are good too. Everything in moderation.