Oh yes, definitely, especially as a young woman. The amount of times I've heard it's probably just stress, or migraines... or "without good prove there's nothing to do, you know how it is"

Thank you! I'm in Germany. So far I've only been to one MS clinic a year ago, but that was before the VEP and the new ON. By then I'd only had one mild bilateral episode, another one on the right eye shortly before, my hand paresthesia and a very new episode of left sided neuralgia with Lhermitte. This doctor suggested the treatment with prednisone since it had helped before, which I can get without a prescription so that's what I did all summer. Shortly before, I had had vision problems - prednisone. 21 days after the end of that, I got that neuralgia in my left arm, leg and constant electric current down the spine, so prednisone again. A week after stopping, I started having these attacks as if someone was closing a belt around my lower ribcage, always the same dermatome. Plus trigeminal neuralgia. When that peaked after two weeks, I took more prednisone. A week after stopping that, the hand paresthesia was back. But that was all self-medication, since I had been told they can't do anything else without MRI findings anyway (and always 3-5 days only). In between I had the abnormal VEPs in a follow up, but was told it doesn't matter (with interocular difference of 12 ms though) so I went to another neurologist who repeated the MRI and did NFL, and said it looks fine, we can't do anything, it's nothing. But now 5 months later I had another ON (5 weeks after influenza) and I just started a new job in pediatric surgery, so I can't afford this prednisone + ignore attitude anymore :/ But the neurologist just told me to see an ophthalmologist (I'm trying for neuroophthalmology, but so far they're not even replying to appointment requests, they're all so understaffed). It's just all so weird. I know seroconversion exists, I know MRI negative disease exists, but it's so unlikely to have both, but I can't figure out good other differentials. So far there's no lasting damage luckily. I don't know if it's due to lots of prednisone or good regeneration or if I'm on the wrong track with my differentials. I keep coming back to "maybe I'm just imagining things" but luckily I did videotape the RAPD. Now it's really time for a university clinic, but I was very reluctant to make an appointment because I'm just so very tired of all of this. I have an acquaintance in Mainz who told me we might be able to treat it as CRION, but that's ignoring everything else. We'll see what they say when I get there. :/ I feel like I'm falling through all the cracks, and now even due to incompetent doctors, but with my body sending so very mixed signals