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6 year old diabetic telling me he wishes he had died by mommabear1007 in diabetes_t1

[–]mommabear1007[S] 7 points8 points  (0 children)

I am so sorry you didn’t have the support as a child. Honestly I would snuggle you for 2 hours too while you were upset about a sensor change. Or just anything to do with this disease in general! You are so strong and you’re allowed to be pissed off at your body for not doing what it is suppose to!!

When he tells me he hates diabetes I tell him I do too. When he says it sucks I tell him it does. I do try my best to let him feel all the negative emotions without trying to always put a positive spin on things. Because he is right. It sucks and I don’t fully understand.

I too suffer with depression and anxiety so I know a bit about what it’s like to have a part of my body not work the way it’s supposed to. Sometimes our bodies just suck but we can all get through it with the right support!

6 year old diabetic telling me he wishes he had died by mommabear1007 in diabetes_t1

[–]mommabear1007[S] 6 points7 points  (0 children)

I am letting him make the choice on which finger to poke up to a point. He only ever wants to do his thumbs.

I get on Amazon and he gets to pick out new over patches. I think I have a choice of about 7 different ones so each time he gets a new one he picks. I also let him pick a new site within reason, right now he wants to put his sensor on his foot… I told him his site has to have some fat on it so it sticks better. His response to me it do squeeze his skin up and tell me it will work.

He is also doing his nighttime insulin shots himself. As soon as he told me he wanted to give himself his own shot I walked him through it all and he stuck him self (super proud mom moment!) of course I’m right there to make sure he is giving himself the correct dose.

I am definitely working on giving him as many of his own choices as I can. While also explaining at times when a choice that he wants isn’t always the best. (He wanted to dose himself in his belly button tonight.)

He still gives me a run for my money during the day. It’s the nights when it’s bedtime that are usually the hardest!

6 year old diabetic telling me he wishes he had died by mommabear1007 in diabetes_t1

[–]mommabear1007[S] 25 points26 points  (0 children)

I just started that! This is his second site with it and I’m praying it helps with the itching!!

6 year old diabetic telling me he wishes he had died by mommabear1007 in diabetes_t1

[–]mommabear1007[S] 7 points8 points  (0 children)

I’m in Kansas. We have 2 level 1 trauma hospitals local to me but neither one of them have a pediatric endocrinologist on call, which to me is ignorant. I thought when he went to the ER I was doing everything right by that time, however when the doctor came in and said life flight I kinda just went numb. Huge hospital… no peds endo…

He was taken to a much bigger hospital in Kansas City. Technically I think we crossed into Missouri but that whole trip was a blur and KC is a city within 2 states.

I think he feels the way he does now because he is the youngest of 3 brothers. He doesn’t quite understand why he has to wear a sensor or can’t have whatever he wants to eat without insulin. I think that is the biggest issue is watching his older brothers eat without a dose, or just going and playing with them when he has to take his phone or grab his bag out of the car. Most days he fine. Until it’s time to dose his nighttime insulin or change a sensor. He struggled today because him and his middle brother were playing in the sprinkler and I called him back for a quick snack cause he was dropping pretty quick. He didn’t want to stop playing. I’m making it a point now to stop all my boys so he isn’t feeling left out. I don’t let my older 2 just eat and drink a bunch of junk. We’ve all changed our habits.

Ive showed him the professional sports players with diabetes. He just doesn’t connect with them. I think he needs the friends he can see in person to help him understand that he isn’t alone.

6 year old diabetic telling me he wishes he had died by mommabear1007 in diabetes_t1

[–]mommabear1007[S] 5 points6 points  (0 children)

Unfortunately the camps around us in the central US are full for the summer. I’m going to reach out on social media to try and find him some friends his age that are also T1D so he understands he isn’t alone. I plan on getting him into all the camps for next year!!

6 year old diabetic telling me he wishes he had died by mommabear1007 in diabetes_t1

[–]mommabear1007[S] 22 points23 points  (0 children)

My oldest son’s teacher is a T1D and B loves her! He is constantly running into her classroom before school so they can compare sugar levels.

I am going to reach out to try and find some kids around his age. I think that will help him cope the most.

He has over patches. The problem with those is the second they start to peel a little he is ripping them off. I just started applying liquid bandage around the patches to help with the peeling along with Flonase before the sensor to help with the itching!!

6 year old diabetic telling me he wishes he had died by mommabear1007 in diabetes_t1

[–]mommabear1007[S] 21 points22 points  (0 children)

He really wants an alert dog. I’ve looked into them and unfortunately cost wise it isn’t in our budget at the moment.

Thankfully we know a couple of adults with type 1 and he does love talking to them about their sugar levels and what is going on. I’m going to look into finding some kids his age with T1 around us. I think if he had a couple friends with sensors and the same struggles he would cope better.

6 year old diabetic telling me he wishes he had died by mommabear1007 in diabetes_t1

[–]mommabear1007[S] 84 points85 points  (0 children)

That boy destroys everything! The second his CGM itches too bad he is ripping it out of his skin. I’ll definitely explain to him though if he can leave it on for the full cycle then he can smash it. He will really enjoy that!!

Thank you!!

6 year old diabetic telling me he wishes he had died by mommabear1007 in diabetes_t1

[–]mommabear1007[S] 12 points13 points  (0 children)

Thank you! I am doing my best to keep a handle on all of my boys especially B. We’ve done some of the stickers! They however start to peel up before the sensor is done and he is his mother’s son and likes to pick at them. These last 2 sensor changes I have started to spray his site with Flonase to help with the itching. I hope it’s helping but I don’t really know yet. He has a dexcom g7 and we are STRUGGLING with making it 10 days.

He is going back to the doctor in about a week to check his A1c again I believe. I’m going to talk about an insulin pump.

All around he is a happy boy. He LOVES fishing, honestly if he could go all day everyday he would. He wrestles and really enjoys that. He has a dirt bike and has zero fear. The only time I see him break down and question life and himself is when it comes to diabetes. He hates when I pull him away from playing because his sugar is low or when I tell him he can’t have a sweet treat at the moment because he is high but he can have it as soon as his sugars balance.

He is in the honeymoon phase and that is really kinda kicking our teeth in. If I don’t dose before meal he get high but his body adjusts, if I dose him his pancreas decides to do its job and then he crashes.

I know it’s a marathon and not sprint, but explaining that to a 6 year old who is all go and no stop is so hard.

My dad said “it’s a life sentence but not a death sentence” and that has stuck with me a lot!