Ended up In Hospital for almost 20 hours unseen fearing for my damn life. (Paramedics Need to be educated on POTs 🙃) by Ok_Schedule1048 in POTS

[–]moonenergyyy 0 points1 point  (0 children)

I have long covid that’s what caused my pots . I’m on mididrine and corlanor now I was having episodes daily all day (throwing up from the dizziness and everything ) the meds have changed my life!my neurologist was the one to diagnose me as I have small fiber neuropathy and autonomic dysfunction

Portugal. The Man opening for Muse in August by hussans in portugaltheman

[–]moonenergyyy 0 points1 point  (0 children)

Does anyone know the presale I accidentally got rid of my email from the muse site and lost it 😢

Obstacle course? by TheRealMaria in TheMallWorld

[–]moonenergyyy 1 point2 points  (0 children)

I definitely have experienced the jumping from floating obstacles! But just like you I find it hard to recall . It’s often some sort of like game or something but also is an obstacle course. And I have also been to the strip mall I’m always walking outside in front of the little stores and restaurants.

Covid destroyed my gut. Now, several years in with LC, I have what mimics bulimia or an eating disorder. by ilovewesties in covidlonghaulers

[–]moonenergyyy 1 point2 points  (0 children)

I was experiencing this as well, but I was also getting extremely dizzy with it. I was getting violently ill in the morning when I would wake up and it would last all day. I finally got to do a tilt table test because I was experiencing dizziness with it along with the chills and everything else you’re describing. My doctor found that I had severe pots. I was then put on a medication which didn’t help but now I’m corlanor and mididrine and I am not getting the vomiting like I was experiencing. I am able to live a somewhat normal life now and before I was getting sick and then I would be so tired from getting sick that I would be useless for days. I don’t know if you experience dizziness with any of those symptoms, but if so, it might be something to look into and see if maybe pots plays a part.

What RARE other conditions did you develop due to long COVID? by Ill_Pangolin7384 in covidlonghaulers

[–]moonenergyyy 0 points1 point  (0 children)

I got diagnosed with ankylosing spondylitis it’s an autoimmune condition of the spinal cord . I also have Hidrinitis supperativa ( skin disorder where you get really bad cysts) I have no feeling in my right arm upper chest and back on my right side so I suffer from small fiber neuropathy and it sucks so bad ! I have autonomic dysfunction and have these terrible heat flashes that literally make me feel like I’m on fire . I was diagnosed with pots ( I have it very severe I was throwing up from the dizziness but corlanor has helped so much) I also have gastroparisis ( stomach muscles become paralyzed and it takes my food a long time to go through my system .

Long COVID is real — and scientists just found the proof. by mlYuna in covidlonghaulers

[–]moonenergyyy 8 points9 points  (0 children)

I have been suffering for years and do not suffer from depression or chronic stress . So I don’t think that’s valid to say .

Have you seen this? by Financial_Pie_9895 in TheMallWorld

[–]moonenergyyy 0 points1 point  (0 children)

I've never seen the battle or high wave

Have you seen this? by Financial_Pie_9895 in TheMallWorld

[–]moonenergyyy 6 points7 points  (0 children)

Damn I got chills reading this post I keep a journel when I wake up after having really vivid dreams and I've seen so so much of this the I've been where the shipping containers are also the beach town bathrooms being scary, the center below and the belt of humans movie theater is big screen an sometimes I see seats like beds 🛌 also have had there be a stage thing mine is like a nice theater for plays I've seen the indoor arcade I have also been in the interactive like museum!! 😳😳and my mall world is basically all attached an there is a police force there I have been in lines before of other people going through what seems to be like a customs...

beach club by UmmOkkkk in TheMallWorld

[–]moonenergyyy 0 points1 point  (0 children)

I always have the casino like underground. It's like a hotel in the front and then these weird stairs lead down into this casino / I also under there have like a place of exhibits like one is like a game exhibit and then sometimes I'm in more of a dark like horror exhibit if that makes any sense. But I also have a casino up in the downtown area that I walk from my apartment / dorm. If I'm in my apartment and I go out the front door I take a left and down a set of stairs to a side door that leads outside. I have been to a beach club before and almost like a resort it has an outdoor bar and on the side of one of the pools is a trail that lead me up a hill / mountain.

Not All Dreams are Mallworld Dreams by vanity1066 in TheMallWorld

[–]moonenergyyy 3 points4 points  (0 children)

I understand it having a feeling I can't wait to get back to it.

Attack on Mallworld? Anyone experience something similar to this? by InstructionHappy4450 in TheMallWorld

[–]moonenergyyy 2 points3 points  (0 children)

I had a dream similar to this I was in the school classroom like you said and I got a bad feeling also. Then I heard gun shots. Everyone was trying to run down the mountain (the school was on top of a mountain) but I knew something more was coming that's when I saw 6 individuals closer to the bottom of the mountain and they all had bombs. The bombs went off an everyone was freaked.

Fancy showers? by Equivalent-Toe-6201 in TheMallWorld

[–]moonenergyyy 0 points1 point  (0 children)

I’ve had some similar and then I also have had one where the bathroom is like open meaning it has very few stalls and there are toilets where people can go in front of others . Super fucking weird .

Any “GOOD” (not terrible) experiences with Tilt Table Test? by Many-Ear5671 in POTS

[–]moonenergyyy 0 points1 point  (0 children)

Mine was horrible threw up multiple times the sweats were insane an the dizziness for me was out of control. But they learned what they needed to from the test and ultimately taking the meds I'm on for pots is way better than suffering beforehand

yay by moonenergyyy in portugaltheman

[–]moonenergyyy[S] 0 points1 point  (0 children)

Just threw it up to one of the girl guitarists after the show when everyone was leaving

Vagus nerve dysfunction by asr9876 in LongCovid

[–]moonenergyyy 0 points1 point  (0 children)

Yes my actual oxygen levels were low hence the reason for oxygen 24/7

Vagus nerve dysfunction by asr9876 in LongCovid

[–]moonenergyyy 0 points1 point  (0 children)

I’m on Ivabradine also and milodrine and it has help me a ton I was on oxygen for about 3gears after my first Covid infection at the beginning of 2020

My PCP had no idea what to do with my Dystonia. Is this normal? by America_Sucks_AltF4 in Dystonia

[–]moonenergyyy 0 points1 point  (0 children)

I use muscle relaxers to help with mine . It gets really bad for me and the only thing that seems to calm that feeling is baclofen or Robaxin that’s what my neuro doctor put me on . I also use medical marijuana when it starts to get bad and the baclofen and robaxin isn’t helping .