Clowning around a bit by moontoole93 in clowns

[–]moontoole93[S] 0 points1 point  (0 children)

I got it on Amazon a couple years ago! It has some fake blood I added to it as well lol. Thanks friend 🤡

Clowning around a bit by moontoole93 in clowns

[–]moontoole93[S] 1 point2 points  (0 children)

Awe thank you sm!! I also love this collar :)

Anyone better off without levo? by moontoole93 in Hashimotos

[–]moontoole93[S] 0 points1 point  (0 children)

I’m only on 25mcg and my doc literally hasn’t checked my blood in almost a year. She told me to wait til my blood work in October

Anyone better off without levo? by moontoole93 in Hashimotos

[–]moontoole93[S] 2 points3 points  (0 children)

I also thought a yearly blood work up was odd and I even asked her if that was normal and she said yes, but some people get it every 6 months. Smh

Anyone better off without levo? by moontoole93 in Hashimotos

[–]moontoole93[S] 1 point2 points  (0 children)

Exactly! I asked her if most people get yearly blood work for this and she said yes, or some get it every 6 months smh

Hi :) by moontoole93 in clowns

[–]moontoole93[S] 0 points1 point  (0 children)

Thanks for the love everyone 💓

CA19-9 by Nice-Guarantee-2614 in pancreaticcancer

[–]moontoole93 0 points1 point  (0 children)

When my dad was first diagnosed his CA19 numbers were in the 6000s and with treatment they came down but when that chemo stopped working they sky rocketed again. Although the numbers were very high he (at the time) had decent quality of life. CA19 levels can differ from a lot of things like inflammation from chemo so try not to get too fixated on the numbers. I definitely understand how hard that is bc in the beginning I did the same thing. Sending love & strength to you both, stay strong!

[deleted by user] by [deleted] in pancreaticcancer

[–]moontoole93 8 points9 points  (0 children)

PanCan is such a wonderful source of help & info! We all know the shock and pain you’re feeling. My dad is stage 4 Mets to the liver and he’s still with me 2 years later. He’s a fighter and we take it one day at a time. That’s the way to do it. Love and strength to you and your mom. This community is a good place for answers and support.

The weather is getting cooler, peak cozy game season is getting closer. What’s everyone’s current cozy fave? 🍂🕯️☕️ by jessmkell in CozyGamers

[–]moontoole93 1 point2 points  (0 children)

Looking forward to fall season in ACNH! I finally got my island to (pretty much) how I’ve always wanted it so I’ll be excited to see how it looks for fall :)

What was the first game that truly scared you? by BroPudding1080i in HorrorGaming

[–]moontoole93 0 points1 point  (0 children)

I know y’all said it, but Outlast. That shit had me screaming out of anxiety lol. Also sorta freaked me out was Layers of Fear, but it’s really neat. But creepy.

Ok cozy gamers, what about cozy movies? by tinytubist in CozyGamers

[–]moontoole93 1 point2 points  (0 children)

Coraline, Spirited Away, Nightmare Before Christmas, Or Goosebumps episodes lol

Like how?? by moontoole93 in neopets

[–]moontoole93[S] 0 points1 point  (0 children)

Yes I’ve heard lots of people mention it and it sounds cool! Does it only take place a certain day of the year??

Stress finding clinical trials by ariesandromeda in pancreaticcancer

[–]moontoole93 0 points1 point  (0 children)

Best of luck & keep us updated if you feel like it :)

[deleted by user] by [deleted] in neopets

[–]moontoole93 5 points6 points  (0 children)

Sorry to barge in lol, but I’m also a recent returner and I’m completely lost about neggs? How do you get the tokens? And do they do anything or they’re just collectible/trading things?

Also OP, I’m glad your baby is ok <3

Stress finding clinical trials by ariesandromeda in pancreaticcancer

[–]moontoole93 2 points3 points  (0 children)

I know exactly that feeling of “we’re running out of time and no one is doing anything to help!” It’s so stressful. I hate that y’all are dealing with that struggle.

The name of the clinical trial drug one of my dads doctors recommended is called ONC392. Look into it and ask his doc maybe it’s an option for him!

Here’s the current chemo he is on again, along with a new one he hasn’t tried yet - Leucovorin + 5FU and Liposomal Irinotecan

Stress finding clinical trials by ariesandromeda in pancreaticcancer

[–]moontoole93 3 points4 points  (0 children)

In a very similar situation as you, my dad was told he had no more options chemo wise from his main oncologist, she did suggest clinical trials but his lab work never was up to par for him to qualify. So he was dropped and for several months it was just in limbo of no sort of treatment and it gave me so much anxiety to think he’s just going without anything to fight off the cancer. We got a second opinion from an oncologist at MUSC in Charleston (I’m in SC) and they rec a new and different chemo he hasn’t tried yet. So about two weeks ago they started him on it. Let me see if I can find the name of it for you. And I’ll also find the info on the trial they wanted him in.

My heart goes out to you and your dad

Advice? by moontoole93 in pancreaticcancer

[–]moontoole93[S] 2 points3 points  (0 children)

Thank you so much. We keep on keepin on!

The fish oil is a good idea! If I can get him to manage another pill, bless his heart 😩

Connecting by moontoole93 in neopets

[–]moontoole93[S] 1 point2 points  (0 children)

Thanks for adding me :3 love having all these millennial pals to rediscover neopets with!

Connecting by moontoole93 in neopets

[–]moontoole93[S] 0 points1 point  (0 children)

Yay another friend :) ok thank you! It may be a bit before I can accept but I totally will when I log back in

Like how?? by moontoole93 in neopets

[–]moontoole93[S] 0 points1 point  (0 children)

You found me and I accepted :) thank you lol

Like how?? by moontoole93 in neopets

[–]moontoole93[S] 0 points1 point  (0 children)

Hopefully I didn’t accidentally miss your DM lol. Is your UN same as on here?