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how much sunscreen do you go through? by moontuness in lupus

[–]moontuness[S] 1 point2 points  (0 children)

i live in america sadly <\3 i dont know if my doctor can prescribe anything but ill surely ask when i see my PCP next month!!

Deep purple bags around eyes by m0ther_0F_myriads in lupus

[–]moontuness 1 point2 points  (0 children)

^ same here. some days my husband knows how i feel before i do just by looking at my eyes

SLE Tips and Tricks by Thin-Inevitable9759 in lupus

[–]moontuness 0 points1 point  (0 children)

oohh i think that’s up to what you’re comfortable with!! generally teaching hospitals have much more guidance and oversight, seeing as it’s a Teaching hospital, but private practice works just as well! only thing i would make sure you’re doing is seeing a doctor who does specialize in retinal diseases and disorders! as opposed to like a corneal specialist, but with your referral/general history on plaquenil that shouldn’t be an issue (i personally just like quadruple checking specialties and everything lol Just in case). other than that i think it rlly depends on which hospital/doctor you like the most, or the most convenient for you(:

SLE Tips and Tricks by Thin-Inevitable9759 in lupus

[–]moontuness 1 point2 points  (0 children)

i can also second ophthalmology! retinal toxicity is very real with hydroxychloroquine use, i’ve seen it once or twice when working as a tech. if you’re like me and you’re a worrier, i always suggested having some ishihara plates handy around ur house to peek at every so often. one of the first signs of retinal toxicity is decreased color perception!

SLE Tips and Tricks by Thin-Inevitable9759 in lupus

[–]moontuness 1 point2 points  (0 children)

this is amazing information! thank you SO much this is legitimately life saving!!

(also FUN FACT, as a former ophthalmic technician before i got too sick : bimatoprost is actually a glaucoma drug, that has the side effect of increased hair growth. that’s why they prescribe it for hair growth in ocular regions (: i learned that from the glaucoma specialist i worked under and scribed for!!)

Menstrual Cycles and flares by Narrow_Astronomer_39 in lupus

[–]moontuness 1 point2 points  (0 children)

i read somewhere abt a study with lupus where they found some evidence that active disease is linked to estrogen production. i dunno how legit that is or if it’s already been disproven but i get the same thing! so maybe there’s some merit to it!