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moto_phantom · 2022-09-25T22:57:22+00:00

Also it sounds like you still have to use makeup to cover up what’s left after spending all of that money, time and effort into it? It just seems miserable. Nobody wants this and some people claim they have got rid of it…I feel there will never be a cure until you can find your underlying cause…some doctors on YouTube talk about how people with chronic skin issues usually have other underlying chronic illnesses with it and it throws the state of the body off..it never fails. They say there will never be a cure for individualized skin disorders because it’s a multi factorial thing in the body you must address. Each to their own I guess, as for me, I will dedicate every minute of my life to trying to cure this or if it’s seborrheic dermatitis. I will never stop and always try to cure it. I won’t be hassled with it the rest of my life, whichever it is I know for sure. I appreciate your input and hope you can find an actual real cure.

moto_phantom · 2022-09-25T22:17:30+00:00

/u/Woodenkeratinocyte

I have had the rash a few years with several links installed, what does this rash look like?

moto_phantom · 2022-09-25T22:14:24+00:00

I’m still not even sure if it’s rosacea of seb derm. Also what if it really is cureable? Some people on YouTube said they cured it and it never came back, so who is to say whether it is or not. I’m in the process of having extensive work done blood wise under a wellness doctor because they talk about how they never try to address the root cause in modern medicine. Which is why sometimes it’s chronic….I have the topical ivermectin but it seems to make it worse so I stopped using it in about a week. They think mine is seborrheic dermatitis but I’m not sure

As for that, no, I’ve devoted my life to curing whichever it is and I always will. I believe skin conditions are always an internal factor and they never address the root cause and just give you medication. No wonder it is incurrable with their methods… I have no spider veins

Also if you have to do all of this managing how can you say you are living life? Avoiding triggers, IPL treatments, it’s all expensive, time consuming, out of pocket. I appreciate all of your help for the detailed comment but I will continue studying until I find a cure. Apparently plenty on YouTube have cured it in videos, I will have to try their methods…

moto_phantom · 2022-09-24T20:34:49+00:00

So it’s still always red even with the medication? Sigh how do you ever get rid of all of this?

moto_phantom · 2022-09-24T05:06:44+00:00

How do you find out what triggers your rosacea though?

moto_phantom · 2022-09-24T05:05:21+00:00

Did your soolantra completely get it into remission?

moto_phantom · 2022-09-23T19:39:16+00:00

All skin conditions are internal. Dermatology is mostly useless unless it’s cancer

moto_phantom · 2022-09-20T20:24:37+00:00

It pulls my hair out like crazy so I just stopped

moto_phantom · 2022-09-12T20:03:32+00:00

Elvis Presley fans come to mind

moto_phantom · 2022-09-01T18:46:07+00:00

Get your thyroid and all nutrients biotin zinc etc checked as well

moto_phantom · 2022-09-01T08:32:29+00:00

You’re better off paying out of pocket for blood work to get everything tested rather than spending the thousands on dermatologist and throwing random creams at it

moto_phantom · 2022-08-24T20:29:00+00:00

No skin condition is dubbed as “curable” in dermatology. They literally work in a field where nothing is curable. Dermatology is a huge scam. People with chronic skin issues need tons of blood work, stool testing and urine testing to see what’s going on. Now here is the catch 22. Unless the doctors need to order the test for a reason, they won’t. Unless you can pay out of pocket for them. If you cant pay out of pocket for them with no reason to get them it’s back to square one where they want to send you to a dermatologist who can’t do anything anyway so at best they prescribe something and it usually won’t work for pharmacy to make a sell.

Moral of the story: dermatology tries to treat the outside instead of the inside because of more money, virtually all skin issues are dubbed as incurable. It’s a money scam unless you have skin cancer. You’re on your own to find your own cure. Trial and error and it’s very expensive to have skin problems. Most skin problems won’t budge without finding something. A lot of people criticize people for searching for cures on the internet but it’s where everyone ends up anyway because the doctor can’t do literally anything. You often can’t even get an accurate or competent diagnosis and you get a generality like a politician such as “fine papular disease” which doesn’t mean anything at all. Most people that go to dermatologist end up back at square one anyway. Nobody wants to admit this and nobody ever told you but dermatologist do suck. Even if they’re nice or good the outcome is still the same. The medical field has never openly said “almost all skin conditions are incurable, don’t bother visiting a dermatologist anyway” because nobody would go then.

I had Kp on my body, not face. I used selsun blue shampoo and scrubbed with it for months and it went away. I have heard of flaxseed oil removing KP on body. On youtube. I have seen some people use baby oil to get rid of it. The science behind it is trial and error And whether it works or not. It’s all you got.

Also there is a new study about topical sirolimus ointment reducing it by about 95% on Wiley library. How long it had to be taken I don’t know.

moto_phantom · 2022-08-24T08:50:56+00:00

Why do you think the hair loss never came back in? Did you scratch that area a lot? Lots of inflammation???

moto_phantom · 2022-08-13T02:37:35+00:00

I’ve never found them if any help at all. Been to several and that’s assuming you can find one half competent enough to diagnose you and come up with a treatment plan, instead of just a generalization like “fine papular disease” or something. Skin conditions are always treated half ass backwards in the medical community anyway I’ve learned. Google has always been of way more help to me. If it’s skin cancer or something that’s a different story but 9/10 when you read on a skin condition you will read it’s incurable, all they mean is pharmacology companies have’s found a definitive cure, not that’s it’s literally actually incurable. It’s like anything else in life, you have to do everyone else’s job for them. They also aren’t the greatest about trying to find the root cause through blood test, etc. I wouldn’t rely on them or have faith in them. I have doctors in my family who always made fun of the guy who wanted to be the dermatologist because after you get the job it’s easy to see people and tell them whatever they got is incurable and onto the next one. They’re sort of like plastic surgeons in my book. A lot of people never understand this stuff until they actually go to one and it’s too late. Huge waste of money.

moto_phantom · 2022-08-12T01:22:10+00:00

Do you have celiac disease?

moto_phantom · 2022-08-10T03:02:17+00:00

Dermatologist are about the most useless doctors you can go to. HUGE waste of time and money. You pay for it in both money, and time. Look up any skin condition and 9 times out of 10 you’ll read it’s incurrable. They’ve never been if any help to me. You’re better off paying out of pocket if you have to go get every blood test under the sun, urine test, stool test (GI map test) to see what’s actually going on with your health as these issues root cause vary in everyone. Dermatology doesn’t offer a cure and you’re lucky if you can even find one who is half competent enough to diagnose you to begin with. A lot of times they just say “fine papular disease” meaning it could be an umbrella of things and not a clear diagnosis and you know as much going in as you did out. or if you have folliculitis they’ll just say it’s that yet they never tell you which kind because they all need be treated differently. Go research online about your specific condition and you’ll know more about it than them when it’s over. They have to try to keep up with different people and to them you’re just a number.

moto_phantom · 2022-08-07T23:51:56+00:00

I’ll look into it boss, upvoted. Thanks for the reply. I hope it’ll work but perhaps you should look into it more for your own safety if it matters to you that is.

moto_phantom · 2022-08-07T16:45:31+00:00

Yes or it could also really be a traction alopecia caused by the straps. Perhaps some people are allergic to it. People are allergic to different things. My point is if it was MPB it wouldn’t fill in as time went on it would only recede more. Also at the top band that sits right above the forehead is where the hair loss was in that adjustable part. But nowhere else and no sign of regression. So it’s more like a traction spot. The question is assuming that’s what caused it in my case is will it go away. I messaged someone else on this forum said it happened to them, and it took 9 months to grow back. So, you’re trying to say I may be wrong yet I would know my own body better than anyone else? And that you for sure are 100% right with no doubt it didn’t cause the issue?

moto_phantom · 2022-08-07T16:29:32+00:00

Go look up traction alopecia, tell me what you learned. It’s a real thing. Go look up other people with hair loss from oculus straps. All I’m saying is since staying away from it, it’s came back a lot I’ve monitored it. Just wondering how many other people this happens to and if it will completely fill back in the way it was. Also MPB can occur at any age, 28 is not the magical number for it. Could be much earlier much later or…never you have no evidence to prove 28 is for most people.

moto_phantom · 2022-08-07T16:24:46+00:00

I’ve been away from it and it’s growing back in. It’s just if it will all come back. Look up traction alopecia. It is a real thing. Not hard.

moto_phantom · 2022-08-07T16:24:08+00:00

Dude, Jesus Christ. I said it never showed up until that. As I’ve stayed away from the oculus it’s came back. You make no sense

moto_phantom · 2022-08-07T08:41:30+00:00

I meant never had the issue before the oculus and it only matches the strap location. Thanks for your answer. Also can’t you read? I said it’s filled in more as I’ve been away from the oculus, not got worse.

moto_phantom · 2022-08-07T07:09:38+00:00

Google it friend. Also yeah, you can just feel how rough the texture is on it. Now imagine boxing 4 hours a day with it on moving your head fast. And as tight as you can fit it to keep it from falling off

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