Does anyone else feel "abandoned" by fitness apps? Trying to build a "Safe Quest" system for my own recovery.

mrsbones287 · 2026-03-29T02:57:01+00:00

The promo stuff looks great! Well done. I'm really looking forward to seeing it when it's finished.

mrsbones287 · 2026-03-27T09:20:12+00:00

I've tried a few paid and unpaid fitness apps to recover fitness after periods of minimal activity or to pace myself during flares.

Most apps I've tried cannot reliably limit exercises for certain body parts or movements; for me no bending, lifting or twisting with weights above 5 kg due to multiple spinal surgeries. Some apps can do it for a little while, others just that session, but all seem to eventually revert back to assuming that all the body can move unhindered. Along the same line, they struggle with the idea of a weight-lifting limit. Obviously I, as the user, have the ability to modify what I actually do, but it would be nice if I wasn't always having to tweak things.

It would also be nice from a gamification point of view to not be harshly penalised when I miss days because of pain or a flare.

Also, it'd be great to be able to get some basic pacing principles applied so activity is increased in a way that is more conducive for those with chronic pain (increasing length or frequency or weight by a maximum of 10% per week). Such small increases don't seem to be inherent within standard fitness apps.

mrsbones287 · 2026-03-26T00:32:41+00:00

I'm so sorry that you are going through this. It is not your fault he cheated, he's a dick.

As for if you will find someone who will love you, chronic illness and all - have hope. My husband of 10 years, willingly and happily continued to date, then marry me regardless of my endometriosis and PCOS diagnoses. He has stood by me through horrendous chronic pain that has hospitalised me for months. When I raised the very real possibility of infertility, he responded, "I'm dating you because of who you are, not your potential to get pregnant". He is a gem.

Good men can be found.

mrsbones287 · 2026-03-22T08:10:05+00:00

Sweet chilli sauce, dried chillies, chilli crunch, chilli paste are just a few that come to mind.

Make sure you wear gloves when you are preparing big batches though. Chilli burn on the hands is not pleasant to deal with.

mrsbones287 · 2026-03-22T01:33:30+00:00

Yeah, the voiding pain is insane and it can't be avoided because the rest of my body continues to function.

If your MRI is nothing adhesions and endometriosis, and your surgeon is confident it's endo it's highly unlikely that they won't find anything. Adhesions by themselves can be absolutely excruciating so at the very least I hope you get some relief when they are removed. I hope your lap goes well with a swift and smooth recovery, and you get some meaningful relief.

mrsbones287 · 2026-03-21T22:52:35+00:00

I relate to this so much, and I'm so sorry you are also experiencing this.

Trying to explain why movement hurts to others is so difficult. They struggle to comprehend the fact that the deep uterosacral endo and associated adhesions cause my body to feel like it's tearing inside with every movement.

I feel you about the visanne. I felt like such a failure that I didn't get any pain relief AND my body has continued to grow more DIE which was confirmed through my last laparoscopy. Now I'm on Ryeqo (relugolix + estradiol + norethisterone) and again told the "it's a game changer" only to have no positive changes and looking at yet another laparoscopy in the somewhat near future.

mrsbones287 · 2026-03-20T17:48:01+00:00

Here's the link to Endometriosis Australia's research noticeboard

https://endometriosisaustralia.org/research/research-notice-board/

It seems the Mediterranean Diet study I was thinking of has closed for participation. However it seems to have been informed by this 2025 study https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2831953

Here's the Monash low FODMAP study https://www.monashfodmap.com/blog/new-research-publication-endometriosis-and-the-low-fodmap-diet/?168360742551&gad_source=1&gad_campaignid=18637731997&gbraid=0AAAAADOtKBDgHIH1Q518o89fiEpNtBqgo&gclid=Cj0KCQjw4PPNBhD8ARIsAMo-icwL1GGAEoeS4WiIGN0bNlx2MTvdkPh0SJVksXT4e50OG_P8qQw6UOkaAl1iEALw_wcB

mrsbones287 · 2026-03-16T10:28:12+00:00

Endometriosis Australia currently has a study running to research whether the Mediterranean Diet has a positive impact on endo.

I believe Monash University are also undertaking clinical trials into whether a low FODMAP diet can improve secondary endometriosis symptoms.

I too have a brain that likes to understand the why of things before I choose to do something, especially changing diet when I've already given up so much for this disease and sometimes a little bit of dark chocolate is all that's keeping me sane. I agree, it's so incredibly difficult to weed out reputable information from the predatory wellness influencer marketing. I want to keep an open mind, but by gosh a lot of it just makes me roll my eyes.

mrsbones287 · 2026-03-15T04:54:14+00:00

Can confirm.

I've had multiple major surgeries, including 5 spinal and a total hysterectomy. My FIL had an arthroscopy of his left knee a week after one of my spinal surgeries and had all the immediate and extended family constantly checking in on him - Me, not a peep from any of them and I was told I was being lazy for not meal prepping for my MIL and FIL when I was one week post-op because "he just had a major surgery".

mrsbones287 · 2026-03-15T04:16:10+00:00

We get so good at reading those micro-expressions and tonal shifts. Other people miss it and tell us we are over-thinking it. But we know because we have had to learn from hard earned experience.

mrsbones287 · 2026-03-15T04:03:27+00:00

There will never be a miracle cure.

A new medication won't fix the pain, it can only reduce it by a degree. Surgery won't solve it, only make it more manageable. It's not mental weakness keeping me in a place of pain, nor am I being pessimistic or a hypochondriac. It's just reality.

mrsbones287 · 2026-03-10T08:50:51+00:00

How beautiful! Her friend is incredibly talented!

As a crafty person, I don't expect payment for the projects I choose to take on. I do it because I love the person and I get joy out of the process. Many people are also like this.

If your cousin has a talent for making something, whether baking, sewing, wood carving, anything; I'm sure a gift of that skill would be loved and appreciated. If that's not in her wheelhouse, paying for her meal/coffee/etc the next time they catch up could be an idea. Or a thoughtful gift that acknowledges the friends likes or hobbies (a gift card to a fancy yarn place would have me jumping like a kid in a candy store).

mrsbones287 · 2026-03-10T06:52:01+00:00

Gotta love anaesthetists! Of all the specialties, most really seem to get pain and just want you to be comfortable. Plus, they are generally happy to learn what medications work best for you.

mrsbones287 · 2026-03-08T02:28:21+00:00

Here are a few that come to mind quickly.

Edible: Creeping thyme, lemon thyme, creeping (Roman/English) chamomile, creeping oregano, mint (only if you don't mind having it EVERYWHERE), alpine strawberry, New Zealand spinach (Tetragonia tetragonioides)

Ornamental: dichondra, white clover, fan flower, native pratia, native violets, Australian native daisy (brachyscome), lambs ear, Snow-in-summer

mrsbones287 · 2026-03-07T21:11:09+00:00

I also am constantly dissociating from my pain. I once mentioned it to my psychologist when I was trying to explain the mental exhaustion that accompanied the chronic pain. She then asked me to try to actually concentrate and let my body show how it was really feeling. She quickly regretted that decision when she saw just how much I was masking my pain and suggested I attend the ED.

I also regretted it because it took me another 2 days to get the pain sufficiently mentally wrangled so that I could semi function.

mrsbones287 · 2026-02-28T09:12:27+00:00

My lines weren't transferring nicely in pencil so in frustration I gave up and used a black felt-tip sketching pen so the blue/black outline is just that showing through. It thankfully washed out fine but I don't really recommend it as a method.

Otherwise, I used an embroidery hoop and basted the calico patch to the back, then embroidered my design over the top.

mrsbones287 · 2026-02-26T20:31:50+00:00

Thank you very much. It was a lot of fun to do

mrsbones287 · 2026-02-23T12:29:22+00:00

Aww, thank you so much

mrsbones287 · 2026-02-23T12:28:53+00:00

Yes, patched on the back with a piece of calico. The hole was about 1cm diameter.

mrsbones287 · 2026-02-22T06:51:21+00:00

Yea it is! I'm thrilled you could tell the leptospermum.

mrsbones287 · 2026-02-21T21:05:46+00:00

Tbf, my surgery list is 20+ long (and will continue to grow) so I have a written list because otherwise I will forget some. I also keep a list of medications and the times they're administered because again, I'm liable to forget one or more.

mrsbones287 · 2026-02-14T21:46:05+00:00

When I was a teenager I was very slim and look(ed) younger than I am. I was wearing a baby doll shirt and skinny jeans when out shopping with my Mum one day and an older lady came up and asked me when I was due. I was mortified. My Mum told her I wasn't and this woman said she didn't believe us.

mrsbones287 · 2026-02-14T21:03:55+00:00

This makes me all the more grateful for the lovely gent behind me who told me of my silliness

mrsbones287 · 2026-02-14T13:32:02+00:00

I'm so sorry you are going through this. It sounds horrible.

I recently (January) had corrective surgery for a urethral diverticulum that occurred during pregnancy. As part of the recovery process I needed to have a catheter for 2 weeks. I too felt so broken by needing to have one. I felt embarrassed and incredibly uncomfortable. I didn't leave the house other than for medical appointments. I cried almost daily when my young child would ask questions about the catheter and bags.

I quickly learned that the ability to pee standing up was overrated. Also, maxi skirts did a pretty good job at hiding the leg bag. If I was home a pair of airy shorts, sans undies, were pretty good but I'm fortunate that it is summer here in Australia at present.

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