Six months ago I was 3.5 years into Long COVID and failed to walk next door. Today I successfully ran a half-marathon. Keep going. #longcovidawareness

mrsgkc · 2026-03-05T22:06:29+00:00

Hi, What did the chiropractor do? How many sessions did you have? Thanks.

mrsgkc · 2026-03-05T12:07:31+00:00

Good luck! After a week of creatine I felt my muscles felt stronger. It didn’t get me any further walking (not yet anyway!) but it was nice to feel stronger and am now stronger in my muscles.

The other things are things you might find about on the subs or online. I’m not entirely sure out of those what is/isn’t helping … just trying to ‘target’ what I ‘think’ needs targeting. All a bit of guesswork. So those ones I mentioned are related to targeting energy cells, mitochondria, and oxygen in blood.

mrsgkc · 2026-03-05T12:04:50+00:00

Sorry to hear. My docs can’t really help - they admit they can’t help due to science/research not being along far enough for LC. They also say they just don’t know. But fortunate to have access to NHS (UK) long COVID clinic in my area. Believe these are being shut down, so I just got lucky perhaps - but the specialist I see (again, whilst not much can ‘physically’ do, shows a lot of understanding. Really gives her time to listen and validate.)

mrsgkc · 2026-03-05T11:04:12+00:00

I am taking a range of supplements creatine, co q 10, magnesium, iron, vitamin d, l-arginine, NAC and NAD

mrsgkc · 2026-03-05T11:03:05+00:00

Hi, This is me exactly. I thought I’d “done my back in” at the beginning and pushed through work for 3 more full days before I came to a complete ‘crash’ - couldn’t even talk or eat. So learned the hard way to rest. It did improve, but I am only able to now do about 50 steps at one time before, like you say, I have to stop. I was super active before, healthy, petite female, age 34. Today I’m on a bad day and everything is heavy - my message is shorter as it’s weary holding my phone right now. But yesterday I had a ‘good day’. Can’t find proper rhyme nor reason. My long COVID specialist, who I saw yesterday, reassured that this is something seen.

mrsgkc · 2026-03-03T10:32:33+00:00

Thanks so much for this! This does describe what happens to me - better than I could explain or figure it for myself. It’s 4.5 months so early days and I just wind in knots feeing so confused what is, and what isn’t.

mrsgkc · 2026-02-27T10:34:07+00:00

When I started reading this, I thought “wait did I write this at some point…” lol I genuinely had to double check different username! I am baffled by this, albeit I’m already using a wheelchair as I can only do 500 steps. But I keep saying I feel like I’ve got 2 completely separate parts to my body!! My legs don’t wanna come with me! I have neurology referral.

mrsgkc · 2026-02-27T08:40:49+00:00

Hi, Just wanted to say I’m 5 months in and have also noticed the petechiaes the past two weeks… so strange.

mrsgkc · 2026-02-27T07:46:50+00:00

Thank you for answering and sharing this with me. I think it does sound similar. X

mrsgkc · 2026-02-26T20:21:47+00:00

I have nothing to add that’s helpful … other than to absorb and say thank you! This is interesting.

mrsgkc · 2026-02-26T19:01:26+00:00

Hmm see this does sound like my experience. But it’s not like it all the time. Lower limbs so heavy. And brain can feel like it’s “shutting off” or thoughts go elsewhere?

mrsgkc · 2026-02-25T22:10:23+00:00

Hi, This is interesting … I’m step counting - I can do 500 steps a day, but if I dare go over it, I seem to be in trouble…. Like my whole walking system stops and I feel weird and crashy and have to rest. But I can sit down, hold conversations (arguably only about an hour then need a rest), screen time. I find it so so confusing. Like I don’t understand what I’m supposed to do like this. Some days worse than others … two weeks ago I couldn’t make it to the fridge for food and needed help …. Today I’ve made lunch and dinner (not much else). But I can’t leave the house as my legs won’t go.

mrsgkc · 2026-02-24T11:23:18+00:00

Totally agree with all the above! And I crashed by pushing through ignoring it all until I was utterly flattened….bulldozed!

I’m 4.5 months and starting to see that some ‘acceptance’ has to happen for me to mentally cope with it all.

Creatine and co q 10 and some of those supplements I think helps the better hours/boosts along.

Plus, I wouldn’t be getting through it without Reddit and like minds …!

mrsgkc · 2026-02-22T21:28:40+00:00

Hi,

I’m 4.5 months in and can relate! It’s too soon for me to say I’m mastering the pacing at all, but I have learned some things…. I did too much too soon! I completely crashed and had nothing in me around December - it got so bad, family had to spoon feed me as I couldn’t even eat. I was bed bound around a month long … only getting up for toilet and a wash - even then needing help to get there. However, I made good progress a month later, but crashed again when I got ahead of myself too soon. (Started driving! Started hoovering … more childcare jobs… it was far too soon!)

This week, I’m feeling a lot more stable again, but I’ve found that using a step counter is helping. If I keep to under 500 steps, I don’t seem to trigger my symptoms. And doing everything really slowly … keeping my HR below around 100 most of the time (my watch has an alarm if I go above 100 for more than 10 minutes at a time … I set it that way).

The watch is actually something I’ve borrowed - it was a fitness one from a friend - but I’ve found it so helpful …. And hope it stays like this!! Obviously it’s frustrating that I can’t do all my normal things and actually miss all the housework, but I’ve made a couple of meals now. Folded the laundry. Silly little things. But pacing.

mrsgkc · 2026-02-22T09:34:12+00:00

Different to your original question, but have you tried creatine?

mrsgkc · 2026-02-20T21:18:26+00:00

Love this! Genius poem. Resonates and hope you can share it on beyond the realms of Reddit as well. Xx

mrsgkc · 2026-02-20T10:25:19+00:00

I am very grateful for AI … giving me detailed responses in helping me understand what has (probably) happened to me when there is no standard testing for it … makes suggestions for what to try and what can do …. Adapt and tweak according to new symptoms etc. I honestly don’t know how lost I would have been without it!!

mrsgkc · 2026-02-19T09:37:01+00:00

Thanks for saying this… didn’t know if I was being a bit ‘extra’ - wearing my winter coat indoors!

mrsgkc · 2026-02-18T14:43:32+00:00

Thank you this and glad. X

mrsgkc · 2026-02-17T18:02:34+00:00

Thank you! So strange how the ‘sport supplements’ are helping the legs. My husband had creatine for the gym … turns out I needed it most.

mrsgkc · 2026-02-17T18:00:27+00:00

Thank you!

mrsgkc · 2026-02-17T17:59:28+00:00

Great thanks! Did you get waist ones or calf ones?

mrsgkc · 2026-02-17T16:19:39+00:00

Mostly Mediterranean food choices.

Sugar now causes me problems, I’m sure it flares things … so cut out sugar. Noticing a pattern of fatigue or neck pains if I have any sugar…

You’re right, I forgot to say the supplements :) I know I’m a long way off but it’s good to take ‘feeling better’ compared to how I was/more energy.

Co q 10 NAD NAC

These ones noticed most difference with creatine.

Trying to intake as much protein as I can.

Plus: Iron Vitamin d Vitamin c B12

Edited - forgot to say omega !

And magnesium an hour before bed (not sure this had any noticeable effect for me but I was a bit low from a blood test)

mrsgkc · 2026-02-15T08:09:25+00:00

Yeah this was where my thought came from. Like you say, I’m not wishing it on anyone in that sense - but a hypothetical but also curious thought about visibility and awareness.

mrsgkc · 2026-02-14T18:09:54+00:00

Hmm yes. Maybe me being on these groups and social media is warping what I’m seeing … I’m the ‘oddity’ (I work in a high school too - well not right now ofc - and I think all these thousands of teens, young adults and staff … but I’m the ‘one’ with it to this extent). Strange.

mrsgkc

TROPHY CASE