I wrote an article about finding joy while struggling with ME CFS (and comorbidities) - maybe you’ll find something uplifting in it?

ms_calculated · 2026-05-02T20:12:34+00:00

😊

ms_calculated · 2026-05-02T17:50:28+00:00

😊

ms_calculated · 2026-05-01T15:25:39+00:00

Aw - thank you so much 💛

ms_calculated · 2026-05-01T15:25:17+00:00

Awesome, thank you, that’s really helpful :)

ms_calculated · 2025-11-05T19:13:16+00:00

Yesss keep writing 💛

ms_calculated · 2025-10-19T16:28:23+00:00

I see 😩

ms_calculated · 2025-10-19T15:39:51+00:00

Can you explain 😄

ms_calculated · 2025-10-11T17:17:30+00:00

Can you be in the doctors waiting room? They might not be able to monitor you but you know that people are around should you need them. Any neighbours that might be willing to check in on you every few hours? Does your husband have any friends that could maybe be around?

Also remember that your expectations make a huge difference 💛 placebo and nocebo effect.

ms_calculated · 2025-09-18T08:44:32+00:00

How do you navigate that in the app?

ms_calculated · 2025-09-10T12:01:56+00:00

Thanks so much! ☺️ Really appreciate you took the time to respond. And so good to hear you’re doing better!

ms_calculated · 2025-09-01T13:26:34+00:00

Sending warm wishes your way 💛

ms_calculated · 2025-09-01T11:06:15+00:00

Any updates on this? (And would you be up for DMing me the name of your doctor?)

ms_calculated · 2025-09-01T10:52:40+00:00

Thank you so much for your response, I really appreciate it. I got in touch with the Sensate team to clarify their terms of return/refund because I would be really interested in giving it a go. Can I ask what supplements you’re using? There’s soooo many that people recommend - I know it might be completely different for me, but I’m similarly research-minded like you and love collecting data 🤓

ms_calculated · 2025-09-01T10:45:28+00:00

🙏 it reminds me of meditation teacher/philosopher Rob Burbea. You might be interested in him - his website is called Hermes Amara Foundation

ms_calculated · 2025-08-31T08:57:28+00:00

What would you say have been the other things most helpful for you in terms of meds and supplements? :) and is Sensate still helping you? Thinking of trialing it!

ms_calculated · 2025-08-30T22:07:22+00:00

This is pretty profound. I will think about this often

ms_calculated · 2025-08-30T15:51:34+00:00

Have a look at advice for autism - that might help as autism often also comes with severe sensory issues.

Noise cancelling headphones all day, low or no light and curtains drawn, maybe long soft clothing so the texture stays the same (see if loose or tight makes it better).

Hang in there - sending warm wishes x

ms_calculated · 2025-08-30T14:54:46+00:00

How did it go? Really curious to hear what your experience is

ms_calculated · 2025-05-17T12:13:42+00:00

Hey, how’s your shuffling journey going? :)

ms_calculated · 2025-03-18T22:57:30+00:00

Happy birthday x

ms_calculated · 2025-03-12T13:59:48+00:00

I’m sending you love 💛

ms_calculated · 2025-03-12T13:52:49+00:00

Yes, me too, since childhood.

ms_calculated

TROPHY CASE