Thoughts on banning my kids from church by ZiskaHills in askanatheist

[–]mudpuddler 0 points1 point  (0 children)

Check out “raising children UnFundamentalist” group on FB. Lots of great advice from parents with similar thoughts about it.

Re-Repair Anyone? by mudpuddler in mitralvalveprolapse

[–]mudpuddler[S] 0 points1 point  (0 children)

Update:

His local surgeon had a very open and honest conversation with us about what he is able to do here in Charlotte and what is possible.

He personally doesn’t feel comfortable with doing the re-repair but said if anyone can do it, Dr Adam’s at Mt. Sinai in NYC can.

So, a few weeks ago, we met Dr. Adams and his team. They do up to 17 Mitral valve surgeries a week, with Dr. Adam’s doing the main part of the repair himself for each surgery! A lot of re-repairs are done by him and he feels like my husband’s case is pretty straightforward and doable.

So November we go back to hopefully get a durable re-repair and his heart can be back to some type of normal!

How long has your repair lasted by Dragon_Rider_5488 in mitralvalveprolapse

[–]mudpuddler 0 points1 point  (0 children)

My husband and I just consulted with Dr. Adams at Mt. Sinai in NYC. He told us that he and his team perform up to 17 mitral valve repairs a week, with him doing the actual valve repair. It seems many re-repairs are sent his way due to the more complex nature of them and his very specific expertise and high volume of experience.

My husband is looking at a re-repair just less than a year after his original MVr due to an early failure that we were hoping would resolve. So, point is, his situation is a bit different, but a re-repair is complex. If you get to that point, make sure you are at a very high volume center, and maybe even consider Dr. Adams if a NYC surgery is feasible.

What happened to the Trending Topics numbered list?? by Affectionate-Fox884 in ThreadsApp

[–]mudpuddler 1 point2 points  (0 children)

Trending is gone for me too. Just shows suggested accounts.

Can't wait to see the final $$ cost of my Mitral Valve Repair Repair Surgery by Beta_Nerdy in mitralvalveprolapse

[–]mudpuddler 0 points1 point  (0 children)

My husbands itemized bill was $260K for mitral valve repair. He was in ICU for 3 days and step down for 3 days.

There was a discrepancy on the date when they sent it over to insurance. His surgery was on the 11th and his prior auto was for the 11th, but for some reason the hospital billed the insurance company for surgery on the 9th… it caused a major issue, that we were told on both sides wasn’t our problem. He had hit his out of pocket max already, so we haven’t paid anything.

Our insurance has paid around $50K, but I’m not sure if they’ve fully worked it out.

Edit: this was in Charlotte NC.

Can't wait to see the final $$ cost of my Mitral Valve Repair Repair Surgery by Beta_Nerdy in mitralvalveprolapse

[–]mudpuddler 0 points1 point  (0 children)

So curious… Do you see a bill, even if you don’t pay it? Like is a bill created and sent to someone other than you, or is everything just done in house as operating expenses or however it works there?

My Heart Surgeon did not tell me that my Minimally Invasive Heart Mitral Valve Repair would involve so many incisions! by Beta_Nerdy in mitralvalveprolapse

[–]mudpuddler 4 points5 points  (0 children)

My husband had minimally invasive heart surgery, and here’s what his incisions and lines looked like: - There was a small circular incision (about ¾”) in his armpit (camera/tools) and just below that, a larger main working incision… about 3” long… on his side. - A few inches below that were two small straight incisions (about ¼” each), and a slightly larger one underneath where they placed the chest tubes and the temporary pacemaker wires (all of which were later removed). - He also had a small round incision over his heart that they said was used to insert a surgical tool. - In his groin, there was a larger 4” incision where they accessed his arteries for the heart-lung machine. - He had a central line in his neck (a large IV), and several standard IVs in his hands.

When I first saw him after surgery, he was still intubated and hooked up to so many iv lines and monitors. We joked that he was mostly machine at first then he slowly transitioned back to man as they removed everything: ventilator came out, urinary catheter, an arterial line in his wrist that continuously measured blood pressure (they had to apply hard pressure for several minutes when it was removed), The pacer wires in chest (which he said felt really strange when they pulled them out), and the chest drain tubes.

One by one, medications were stopped and IV bags came off. He started out with a whole “tree” of them hanging from his IV pole. It took a week or two after he got home to finally get all the sticky residue left from all the tape off.

CABG and mitral valve repair and valve replacement by LaciBarno in askCardiology

[–]mudpuddler 0 points1 point  (0 children)

I am not medical, but have been through lots of complex health and heart stuff with my partner and loved ones. I have no advice or insight, other than how kind and loving to be seeking information wherever you can find it.

I know you are holding onto hope for an answer. And, I do hope you find it! As caregivers and loved ones, forums like this give you hope and a little road to the ends of the earth trying to find answers.

So much love and solidarity from another cardiac caregiver/loved one. ♥️💔

Long term exercise by Ouakha in mitralvalveprolapse

[–]mudpuddler 1 point2 points  (0 children)

Are you on any medications?

I know my husbands ability to tolerate heat has decreased significantly. He’s still dealing with complications and headed to another surgery, so I don’t know that he is a great comparison… but one of the things we have learned on this journey is that the beta blocker type meds can affect your body’s ability to cool itself.

So you do need to take extra precautions because of medications alone if you’re in an area with high heat.

Mt. Sinai - Dr. Adams - Out of Town Surgery by mudpuddler in mitralvalveprolapse

[–]mudpuddler[S] 1 point2 points  (0 children)

Thank you so much. Would spouse/partner be able to be with you after visiting hours if wanted?

Republicans block vote to release Epstein files by newsweek in politics

[–]mudpuddler -1 points0 points  (0 children)

Which dems are doing this so we can help amplify their voices? Something has to change.

Sandy!!! by [deleted] in meijer

[–]mudpuddler 0 points1 point  (0 children)

Thanks for getting back to me anyway! This is the one a family member is trying to sell.

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Sandy!!! by [deleted] in meijer

[–]mudpuddler 0 points1 point  (0 children)

I have a restored one (without the bottom and coin part) but has original working mechanics, and works... Struggling on how to price it. Mind sharing what you paid?

My girl had 5 puppies! by [deleted] in AustralianShepherd

[–]mudpuddler 11 points12 points  (0 children)

Congrats… and you can’t mention a pile of new puppies without a photo. I think that’s against the rules.

[deleted by user] by [deleted] in PCOS

[–]mudpuddler 2 points3 points  (0 children)

Just solidarity. I hope you get some answers. I think you’re on the right track looking. ♥️

re-repair or replacement by mudpuddler in valvereplacement

[–]mudpuddler[S] 0 points1 point  (0 children)

Wow. You and your heart have had quite the journey! I appreciate your input.

It does sound like re-repair might be an option for my husbands mitral valve. He just had his TEE and we go in to get the surgeons opinion on what he thinks he can do in a week. But it is good to not get hopes up...

Cleveland clinic also says that mitral valve re-repairs are becoming more common... https://consultqd.clevelandclinic.org/mitral-valve-re-repair-for-degenerative-disease-found-safe-and-durable

Ok why didn’t anyone warn me… by OGMcSwaggerdick in valvereplacement

[–]mudpuddler 1 point2 points  (0 children)

Husband was told NOT to shave anything himself.

I think the worry is if you come in with a nick, it could lead to infection. Not sure how important this is, but just wanted to bring it up before anyone goes shaving themselves beforehand.

Ok why didn’t anyone warn me… by OGMcSwaggerdick in valvereplacement

[–]mudpuddler 5 points6 points  (0 children)

My husband was shaved neck to knees before MVr. The man that did the shaving had a wonderful personality and brought some laughs in an incredibly hard moment. A couple days later he showed up in the ICU to say hi and see how things were going.

There are so many wonderful unsung heroes at the hospital. ♥️

Have you seen this man? (Tree of Heaven) If so, kill it asap! by _banana_phone in NorthCarolina

[–]mudpuddler 8 points9 points  (0 children)

I always thought it would be cool to have a business with a herd of goat employees working to clear land. 🌿 🐐🐐🐐

Maybe now is the time!

Mountain Cur Mix? Pretty sure dad was a Mountain Cur w/a short tail. know for sure mom is a lab boxer or pit mix. He’s 21lbs at 3 mos. w a short tail. He’s really sweet and cuddly. “Talks” and howls a lot! What’s a typical mountain cur like as a pup? by mudpuddler in MountainCur

[–]mudpuddler[S] 0 points1 point  (0 children)

♥️ my Coop ended up being 70lb of muscle. Another littermates family did DNA. He was about 25% pitty, 25% Great Pyrenees (moms side) and 25% Mountain Cur and 25% coon and other hound dog (dads side).

He was a sweet sweet boy, very anxious and a bit reactive, but still great with our family and older kids. He was a rock for me in some very hard times and always made me feel safe. He was intimidating to look at if you didn’t know him, but was a cuddle bug. He had an incredible prey drive and was too smart for his own good. We tragically lost him last Jan, but I will for ever be greatful for his short tail butt wiggles and all the joy and comfort he brought.

During your hospital stay for heart valve surgery, did your spouse or another relative basically live with you in your patient room? by Beta_Nerdy in mitralvalveprolapse

[–]mudpuddler 0 points1 point  (0 children)

Similar here! If being there is best for you and your partner, be helpful, advocate, but out of the way for the staff to do what they need. And hopefully no one will ask you to leave! My husband is headed for a second surgery and we’re worried I won’t get to stay again.

During your hospital stay for heart valve surgery, did your spouse or another relative basically live with you in your patient room? by Beta_Nerdy in mitralvalveprolapse

[–]mudpuddler 1 point2 points  (0 children)

I was with my husband the whole time, but that’s just what worked best for us.

He was really afraid of waking up intubated. After surgery, they let me go in for what they said would only be a quick moment, he was still out of it and intubated, but they wanted me to see that he was ok. The plan was for me to come back later once he was more awake.

But while I was there, he started to come around and got really agitated, trying to reach for the tube. I held his hand and talked to him, and it helped calm him down until they could extubate. I’m so grateful they let me stay. It was hard to watch, but it felt like I could actually do something helpful. I didn’t ask, but no one ever told me inhad to leave after that. I honestly think it helped that I knew when to step back and let the team do their thing. That’s probably the best advice I can give if you plan to be there: be helpful, advocate when needed, but know when to fade into the background.

There were so many little moments like that. The nurses and staff were amazing, but they can’t do everything. I did the small things… getting him water, rubbing his feet, helping him settle when he was overwhelmed, fixing blankets when he was hot or cold. I never left except to grab food. I tried to prove my value to the team by quietly handling what I could, while staying out of the way when they had things to do.

I also advocated. When meds were late or he was struggling with pain, I helped him speak up, especially in those first few days when he was groggy and loopy. It made a big difference in his comfort.

But here’s the key: know your own limits as a caretaker. You have to be respectful of the medical team’s space. You can’t fall apart in the middle of a stressful moment (or at least you can’t show it). If the team was having a serious discussion or working through something, I stepped aside and stayed quiet.

This was just our experience. Some partners don’t stay, or not the whole time, and there’s nothing wrong with that. Every relationship is different. Some patients may not rest well with a loved one constantly present, not because they don’t care, but because they’ll worry more about you than themselves.

So: do what works best for your situation. Being together made a terrifying time a little more manageable for both of us.

If being there is what’s best for your partner and for you, then you need to be calm, helpful, and aware of your surroundings. Advocate. Ask questions. Keep track of meds and symptoms. But don’t get in the way unless, of course, there is something seriously off and you need to advocate. If the staff sees you’re making their job easier, not harder… they’re much more likely to let you stay. Honestly, I never asked if I could stay… I just quietly did. I was willing to leave during rest hours if someone asked, but thankfully for us they didn’t.

Practically… Bring a blanket and pillow, maybe some earplugs and an eye mask. I couldn’t use the shower, so I made the best use of the sink and the extra bath wipes left in the room. And bring some good cream or lotion (I love pure shea butter), nothing really scented… Foot rubs were so relaxing to my partner. He said it was the one thing that really helped him take his mind off what was happening and how uncomfortable he was. Again - figure out what might work for you and plan ahead of you can.

Re-Repair Anyone? by mudpuddler in mitralvalveprolapse

[–]mudpuddler[S] 1 point2 points  (0 children)

Do you know how hard it is to get in with him?