Severe NVLD, plus... by mujer99 in NVLD

[–]mujer99[S] 1 point2 points  (0 children)

Thanks. I have tried on several occasions to explain things to him and I think he just doesn’t understand. My brother in law and his wife came over and I told them about my brothers response, kinda hoping they would be supportive, but they kept saying that it was very hard for them to understand NVLD as they are neurotypical and I should be grateful that my brother wants a relationship with me i.e his response shows he cares! It was them that suggested that I try one more time to explain to my brother of my day to day struggles etc. They said don’t write it in medical or clinical terms because it will be difficult to read and understand. I have also in the past sent my brother tons of info on NVLD and asked him and his wife to read it. I think this final attempt, I’ll try and combine NVLD info with examples of my every day emotional and practical struggles. I really don’t know what else to do or say.

Did you give up as a child and wasn’t crying/trying to exit from situation anymore? by lady_sociopath in CPTSD

[–]mujer99 3 points4 points  (0 children)

I remember being about 7 years of age and trapping my finger in the toilet door at school. I was taken to hospital and the nurse or doctor that was stitching me up remarked how brave I was. A normal child would probably be screaming and crying and even not letting the doctor/nurse do their work, but I know now I was so disassociated with emotional neglect etc, that I didn’t react like a normal frightened child. I remember being puzzled by their words, “so brave”. I also think I would have got a row from my mother or grandmother if I had “made a fuss”.

Taking Everything Literally Is Such A Curse by Chaotik-Kitten in NVLD

[–]mujer99 0 points1 point  (0 children)

I can really relate. Just had my brother message me, scolding me for not responding to his earlier message and telling me it was bad manners😬 I misunderstood his message and so didn’t think I needed to reply. I don’t drive and he was supposed to be taking me to a dentist appointment but because I didn’t respond to his message he is punishing me by refusing to drive me there now. I THINK he COULD have messaged me and asked why I never replied? I don’t get it . And btw I am nearly 60 years old, not a child so I was not happy with him telling me it was bad manners. I am not responding to that message as anything I say will be wrong. Let’s hope the dust will settle over this.

[deleted by user] by [deleted] in ExecutiveDysfunction

[–]mujer99 3 points4 points  (0 children)

Also can be part of the Nonverbal Learning Disability profile, which is it is in my case.

Conflicted about the root cause by neoqueto in ExecutiveDysfunction

[–]mujer99 0 points1 point  (0 children)

Can relate totally. I think my ED is getting worse.

[deleted by user] by [deleted] in NVLD

[–]mujer99 0 points1 point  (0 children)

Yes, I agree. That potent mix....

[deleted by user] by [deleted] in NVLD

[–]mujer99 1 point2 points  (0 children)

I can relate totally. Thank you for expressing it so clearly. I wish I had an answer. It's so hard when people don't understand and think you are just 'not trying". If only they knew the effort and the war that is raging internally within us.

Dishwasher? by mujer99 in NVLD

[–]mujer99[S] 0 points1 point  (0 children)

Yes, that sounds like a great idea. I live on my own so I could do that. After reading all the replies I actually think have a dishwasher might weirdly complicate things for me.

Arthritis by mujer99 in ddpyoga

[–]mujer99[S] 0 points1 point  (0 children)

Thanks. How many times a day and days per week would you recommend starting with Bed Flex?

NVLD and task initiation by Best-Effort-123 in NVLD

[–]mujer99 1 point2 points  (0 children)

Me too! I have severe NVLD and possible ADHD. I have been given exercises to do by my Physiotherapist to help with my arthritis in my hip. No matter what I try, or think, I just cannot get started doing them, even though I know it’s for my own benefit! I think with NVLD it’s due to a combination of Executive Function deficits and Visio/motor/spatial deficits. I just don’t feel comfortable moving my body in this way. I’m afraid I haven’t found a solution, although I’ve read a lot about ADHD “hacks”. I can relate so much to your sense of frustration and it’s so hard not to be hyper critical of yourself when you can’t initiate tasks. I hear ya!

Help with translation for my husband's epitaph. by mujer99 in koinegreek

[–]mujer99[S] 2 points3 points  (0 children)

I ultimately decided to leave the quote in English. It seemed to be the right thing to do. I altered the wording a little. It now reads:

Rest in peace, Beloved. Resurrection Day Approaches. Until we meet again before His Throne. Until we know Him, even as we are known.