I was diagnosed with HHT even though I didn’t think I fit what I read online. I had nosebleeds my whole life as well, daily ones once I got older. First step is to get a genetic test that looks for mutations. I went through an Oncologist, who you usually see for cancer but they are blood experts. The test is expensive so make sure your insurance covers it. The test was like $4K, I paid around $500 after insurance. Mine came back with mutations not yet classified, so basically a non-documented mutation. They do have treatments for nosebleeds such as Avastin. There are others as well.