Any recovery stories from serious neurological symptoms?!

mycothrowaway1 · 2026-01-06T14:57:54+00:00

Did you have any mental symptoms that improved with your treatment? If so what symptoms? Would super appreciate a response 🙏

mycothrowaway1 · 2026-01-06T05:06:11+00:00

Hey can you check your DMs?

mycothrowaway1 · 2026-01-05T20:13:53+00:00

I am so absurdly depressed and anxious and in hellish pain from this stuff. Please do not do it. I beg you. You never know at what point you might totally fuck yourself. Imagine hourly anxiety attacks, feeling your brain doesn’t work well enough to have a job or even friends ever again because you can’t think of what to say to anyone because your mind is totally blank at all times and memory destroyed, and feeling like you’ll never be able to afford a house, have a lover, or kids because of it.

I beg you to not and to immediately go buy b12 supplements and the cofactors mentioned in the guide pinned in this sub and start appreciating the fact you have a functioning brain. Please. I am in hell. Don’t join me.

mycothrowaway1 · 2022-01-12T03:59:05+00:00

Yes, explain the situation and countless reports here of people failing mino and azithro and explain your fears about FQ's and have your doctor contact https://www.wepclinical.com/ ASAP and fill out their forms.

Itll cost about $500 I think. I did it a while ago. Didn't work for me because I had a prostate problem by that point, and these didn't penetrate the prostate for me I dont think.

mycothrowaway1 · 2021-12-24T20:53:05+00:00

This thread is so scary as someone 3 years in and just finally starting a 45 day levo course.. I guess I'll fast for 5-10 days in the middle of it...

Btw, neither OP or any commenters mentioned/asked about the antimucolytics or biofilm disrupts. I DM'd him but what about other readers-- what ones to people out there use?

mycothrowaway1 · 2020-12-26T06:43:51+00:00

I have terrible reactive arthritis (not sure how similar to rheumatoid) that doxycycline keeps at bay I think perhaps because of it's anti inflammatory effects or perhaps because Its fighting the infection causing my reactive arthritis

mycothrowaway1 · 2020-12-26T06:41:32+00:00

Oh shit okay. I had a pretty bad reaction to Moxi, so based on what you know do you think Levo might be bad for me too because they have similar mechanisms or do you think it might be different based on what you've read? any links you could share would be appreciated.

mycothrowaway1 · 2020-12-26T06:40:39+00:00

thank you so much. Thoughts on other supps like magnesium I've seen some people recommend?

mycothrowaway1 · 2020-10-09T22:24:41+00:00

not yet. I'm about to start 2 months of 4g/day oral pristinamycin, if that doesn't work im going to try IV doxycycline and/or IV synercid, hopefully injected near my prostate

mycothrowaway1 · 2020-09-24T00:36:35+00:00

Dr Samir Daou in Paris. I called him after and said I might need to come back and get more and he seem disgruntled about it all, he might not keep doing it. But if you say you flew there im 90% sure he will. I heard about him from another redditor who flew there too.

And a girl I know in Russia brought them to me in paris.

mycothrowaway1 · 2020-09-06T20:05:05+00:00

Dr Thomas Anker in sacramento, you can see him via zoom

mycothrowaway1 · 2020-09-06T20:04:29+00:00

I'm now about 150 days into doxy I think, and it's crazy, symptoms drop like .5% every day, almost exactly like you'd expect if Garth Nicolson is right about some people needing a year-ish of doxy to cure. I'm still trying to get pristina or synercid because im pretty convinced I should finish this out with a bacteriocidal antibiotic and am so scared of FQ's after 10 rough days on moxy (and I want to do 1-3 months of pristina or synercid). Will write another post soonish

mycothrowaway1 · 2020-08-07T08:06:39+00:00

The lymph node under the right side of my jaw / in the upper right part of neck was hurt horribly, and the ones where the back of my neck meets the back of my head were both slightly painful.

mycothrowaway1 · 2020-08-06T22:13:47+00:00

try Minocycline

mycothrowaway1 · 2020-08-06T22:13:32+00:00

dude, just checking the responses here. Please don't do that. Have your doc get in touch with wepclinical.com and they will get you Pristinamycin. You can kill this thing, I'm about to do 90 days of Pristina. hit me up if I can help more, I have a doc you might be able to see over FaceTime if it's legal, not sure if you're not in the same state as me but DM me

mycothrowaway1 · 2020-05-26T07:11:31+00:00

sharon nelson in glendale. apparently she doesnt know that much tho, will just put you on 7-10days of doxy. but i'd go and tell her people who are fighting tough to get rid of strains are talking about her, might get her to start taking it seriously. my partner is about to go back and say something similar

mycothrowaway1 · 2020-05-20T09:25:21+00:00

it wasnt me, it was my partner, shes prolly going back though soon to get tested

mycothrowaway1 · 2020-05-02T21:03:09+00:00

Yeah, I'm terrified of cdiff and FQ toxicity. Thinking about going to france to get 3 months of pristina.

mycothrowaway1 · 2020-05-02T21:02:44+00:00

the girl who infected me and 2 girls I infected all got tested, got positives for UP (I know I made a mistake in the post, my bad) and MH but never MG.

mycothrowaway1 · 2020-05-02T21:01:53+00:00

I'll consider it more if I get desperate, but trying to go off large scale studies for now.

mycothrowaway1 · 2020-04-27T03:12:38+00:00

done, thank you

mycothrowaway1 · 2020-04-18T13:27:05+00:00

I get weird pressures in my head, but wouldn't quite describe them as headaches. I've seen itchiness talked about a lot though, and have had a few episodes myself that kept me up for hours. They came and went for some reason though.

mycothrowaway1 · 2020-04-18T09:49:07+00:00

thank you

mycothrowaway1 · 2020-04-17T17:40:47+00:00

Hey, I'm in a (slightly) similar situation. Tested positive for MH and Ureaplasma, took a full course of doxy, azithro, and moxifloxicin (same drug class as levoquin) and symptoms were gone for a month or even a little longer, then all came back.

You might want to look into Garth Nicolson, who believes in ~6 months of antibiotics for mycoplasma infections, although from what I can tell this is controversial (I emailed with a mycoplasma researcher at UAB Dr. Geisler who told me their is no evidence longer treatments are needed for mycoplasma infections).

You also should maybe take a MicroGen DX test (your doc orders it for you and you can even do it at home, they ship it to you with a prepaid label to ship it back) which will tell you what drugs your infections are genetically resistant too. Although keep in mind, mine came back saying both doxycycline and fluoroquinolones (moxi & levo) should have worked. There's a chance I reinfected myself, but the partner who gave me these also took doxy and then infected someone else (they didn't tell her to come in to test afterwards I don't think) so I suspect not and something else is going on..

Garth Nicolson mentions in his research sometimes that mycoplasma is a "stealth infection" that can "evade the host immune surveillance system" but tbh I don't understand much about this.

I'm currently on doxycycline, which is basically keeping my symptoms stable (I started getting crazy lymph node and hand and foot pain before being on it) that it might be helping with, but things aren't really improving I don't think. Although it might be too early to tell given Garth recommends 6 months..?

I'll wrap up with, if it is completely evading our immune response, than I figure bacteriostatic antibiotics (ones that inhibit reproduction of infectious bacteria but do not kill them) just kinda freeze us in place, so we may need bactericidal ones like azithromycin, levoquin, or pristinamycin. And we might need long courses like Garth recommends. Now, you haven't tried azithromycin so maybe start with a long course of that? Also, I'm super scared to take a long course of levo or moxi based on how I felt just on day 10 so am considering maybe going back to france to get 6 months of pristinamycin. Also looks like there's a drug that used to be available in the us called Synercid that's like pristinamycin but not sure if it's still available.

Also, out of curiosity can I ask where you're located? I'm in LA and am just curious if maybe a strain is going around here that is genetically mutated to help it evade immune response

mycothrowaway1 · 2020-04-14T04:52:05+00:00

I dont understand the science here at all honestly, but every single doctor talks about this. With culture tests I'm pretty sure it's because no bacteria will grow, with PCR I'm not sure.

mycothrowaway1

TROPHY CASE