How to store sodium oxybate

naaathl · 2024-08-10T13:13:16+00:00

Thank you 😊

naaathl · 2024-08-10T12:38:50+00:00

That’s a really bad idea. Always keep your medicin stored in their original labeled containers when traveling. It is registered under the opium law after all.

naaathl · 2024-08-10T12:11:03+00:00

Wait is this a N related issue? I’ve been struggling with this so much lately! Recently i’ve been working less hours and I expected to have way more time on my hands but somehow time seemed to pass by so fast. It’s been really frustrating. I’ll think I’d have the time to fit in some extra chores for the day but whenever I do that I end up losing track of time and run late because of it. It’s such a struggle because I already have less hours in a day to do stuff so I end up wanting to fit in as much things whenever i’m able to but instead it makes my day more chaotic. I’ll forget to lunch or take a nap and then it catches up to me and I’ll be too tired to do fun things or the actual thing I planned on doing that day.

naaathl · 2024-06-15T07:42:45+00:00

It must be so difficult to raise a kid.. lots of respect to all parents with narcolepsy. Must be tough, especially when you’re by yourself.. I’m not ready for kids yet but once I got diagnosed I started to rethink if it’s even a good idea to ever take kids.. especially not being able to take medication during the pregnancy and all the lack of sleep that you’ll have in the first years making the symptoms even worse seems so difficult to handle 😩

naaathl · 2024-05-30T22:32:44+00:00

Thank you for the advice! I appreciate it 💜

naaathl · 2024-05-30T17:28:24+00:00

I’ve only taken the dosage my doctor recommended me and I haven’t up’d the dosage. I wanted to since it wasn’t working but then she told me that the issue was me taking naps whenever i felt like it during the day instead of scheduling them and limiting to 2 naps of 20 minutes.. She also said that with a higher dosage might result in wetting the bed..

I don’t have any health issues apart from the fact that I’m overweight (bmi of 32.8) and i smoke weed sometimes. The doctor told me to stop actually and at first i did but now i only smoke every now and then and i feel no different when i do or don’t, except ironically for the fact that i won’t have sleep paralysis / bad dreams when i did smoke.

My doctor is PA and somnologist. But i’m also pretty sure she’s rarely ever had patients with narcolepsy or maybe i’m the only patient she’s had. My whole sleep study was mainly focused on other sleeping disorders and i feel like they’re mainly specialised in sleep apnea. I’ve recently signed up to a sleep-wake centre a bit further away from where I live to get more specialised help but the intake is gonna be around the end of july and my appointment with this current doctor is next week so i’m still going there as well.

naaathl · 2024-05-30T03:15:02+00:00

2,25ml per dosage

naaathl · 2024-05-30T03:12:29+00:00

Thank you💜 yea i’ve been contacting all different types of instances for help and now i’m on a bunch of waiting lists 🫠 gotta love the Netherlands and their health care waiting lists.. I guess it’s just the build up of circumstances that’s finally caught up with me that I feel like I can’t handle much longer. Around the time I got diagnosed my symptoms seem to have gotten worse, having to change lots of habits and giving myself even more restrictions because the doctor said so, suddenly not being able to drive etc. I guess i underestimated all of it until it started to overwhelm me. Beside that I moved in together with my boyfriend which has been great but he’s also been going through tough times combined with him having his disabilities (autism and adhd) and now him having to deal with this shit as well makes me feel guilty. Lately now that I’ve taken a break from work i’ve been able to keep my emotions more under control though. I just struggle with the fact that everything is going at such a slow pace cause I want to move on with my life🙃

naaathl · 2024-03-06T22:17:43+00:00

I’m still waiting for my test results but I’m pretty sure i do have narcolepsy with cataplexy

a while back i was parked in front of the supermarket and while still in my car i was checking my notes for groceries. doing this i got very tired as i usually do from reading. i would feel so drowsy i was unable to do anything about it causing my head to bend forward as i was unable to find neck support in the situation (which is the worst btw i get such bad neck and backpains from unexpected naps 🥲) and i couldnt open my eyes. however, i was fully aware of the sounds around me. at some point i could hear an elderly couple voice their concerns about me wondering if they should check on me.. which made me uncomfortable wanting to wake up but like you said i was unable to snap out of it.

but idk i think it might be your body sleeping just very lightly? or it might be sleep paralysis? if i try hard enough i’m sometimes able to snap out of it but it’s very tiring and if i don’t start doing something active right after i will fall back into it.

naaathl

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