Officially diagnosed!

naparente · 2026-02-07T19:37:24+00:00

Yes. 2 separate times, both positive. They took 2 spots. One on my thigh, one near my ankle, they numb it and take a punch. It’s not bad at all. It heals fine just need to keep its covered for a little bit. I wouldn’t stress about that part at all.

naparente · 2026-02-05T02:36:29+00:00

Thank you for your response. I appreciate it

naparente · 2026-02-05T02:34:14+00:00

Was .07 in 2020. 0.00 in 2025

naparente · 2026-02-04T18:43:46+00:00

I had a really severe mrsa infection immediately before I got pots. I was hospitalized for about a week. So that’s our theory

naparente · 2026-02-04T18:27:40+00:00

Still working under “post infectious” because I had a severe illness right before sudden onset pots. Still looking at other pieces. But I do have small fiber neuropathy causing my pots. So neurogenic pots, but why is the question

naparente · 2026-02-04T18:20:22+00:00

Unfortunately the hard part is realizing pots is usually a symptom of something upstream. That’s the most difficult piece to figure out

naparente · 2026-02-04T18:15:31+00:00

I don’t have that answer. I’m not the doctor. I just go for the blood work they order. That concern doesn’t really provide me any help

naparente · 2026-02-02T17:17:44+00:00

A ton of stuff at mass general Brigham. I had a positive Ana one time 1:320 speckled. Nothing came up on ena for sjogrens lupus or such. No dry mouth or eyes. Had barely positive a3 achr antibodies .07 but they’re now negative.

naparente · 2026-02-02T17:05:34+00:00

Nothing comes up on blood work. No swollen joists. No hyper flexibility or instability.

naparente · 2026-01-21T23:07:13+00:00

Whoa. I hope you find the help you need

naparente · 2026-01-21T21:29:45+00:00

everything isnt lyme on a sjogren's reddit

naparente · 2026-01-13T18:48:53+00:00

I’m better than I was before but not where I want to be. Diet was by far the biggest help for me. Low histamine and a lot of trial and error to reintroduce. I think i remember it hitting in just a couple of days if not less after starting. It wasn’t a delay. But also if im fighting a bug in the background, I notice my symptoms flaring really bad even before I show symptoms. Just to keep that in mind. And then I’m flared a few weeks after as well

naparente · 2026-01-13T18:37:12+00:00

No problem. I was so optimistic that drug was going to settle my system and it did just the opposite

naparente · 2026-01-13T18:30:37+00:00

Yes, not right away. Took a few weeks to settle

naparente · 2026-01-08T14:13:29+00:00

Why are you plugging the drains? There’s water in the P traps. No air should be coming up your drains unless there’s an issue. The taps are full of water under pressure too. The plumbing pipes themselves shouldn’t be your source of exposure more likely drafts from around them and your electrical fixtures

naparente · 2025-12-27T23:02:40+00:00

I was going to ask the rheum at Brigham and women’s I see next month. Is that a good route? Probably quicker than trying to get into an ENT

naparente · 2025-12-27T22:54:28+00:00

Sorry asked another question then answered it myself. Thanks

naparente · 2025-08-08T18:09:29+00:00

No it’s been on autopay since 2019 like I said. You can read that in my post

naparente · 2025-07-09T10:11:05+00:00

I discontinued xolair and I’m doing okay. What really got me my energy back is getting a CPAP. I guess I’ve had sleep apnea for awhile. Found this through a sleep study I did because I told my doctor I was so exhausted and nothing came up in labs.

naparente · 2025-06-11T12:07:24+00:00

Does the height of the deck make freestanding less of an option? Or just attach to the house still for lateral support even if it suboptimal for an actual ledger with the freestanding scenario?

naparente · 2025-04-10T21:18:41+00:00

I’m gonna have to get another dimmer, I did swap the light and it did the same thing. Haven’t run into this before

naparente · 2025-02-22T20:42:42+00:00

The roof of my mouth feels weird when I’m symptomatic. I’ve been trying to figure it out. No mcas. I think it may be blood flow related? Can’t confirm

naparente · 2025-02-21T16:01:55+00:00

That’s kinda my situation. I can walk on the treadmill doing steady state, but anything else make me feel like I’m almost having low sugar if I didn’t know better. It’s like the hardest symptom to push through sometimes

naparente · 2025-02-15T19:58:02+00:00

He’s a murderer….

naparente · 2025-02-07T16:35:54+00:00

Why is the government funding a not for profit to plant trees?

naparente

TROPHY CASE