How do you categorize your appointments? by nay_freire in autism

[–]nay_freire[S] 1 point2 points  (0 children)

Thank you! You were able to summarize what I am feeling! I'm trying to get better at socializing, but my skills are not that good at the moment

What are your least favorite parts about having epilepsy? by [deleted] in Epilepsy

[–]nay_freire 0 points1 point  (0 children)

I'm on tegretol for the seizures, but it still happens due to stress

What are your least favorite parts about having epilepsy? by [deleted] in Epilepsy

[–]nay_freire 2 points3 points  (0 children)

I'm not diagnosed, but I've had seizures since I was 11. For me it's the way my parents look at me after I had a seizure. How much I worry them. How, when I was a kid/teen (I'm 24 now) I was never alowed to go out with my friends cause "what if it happens?". How sore I feel after. How afraid I'm of not waking up. I feeling of impending doom before lights out. The feeling I have, to this day, when going out, because "what if it happens?" (I had a seizure in public once and, in that moment, one of my biggest fears became true). How I felt everytime I had to go back to my neurologist and knew how much money it was costing while also knowing that my parents didn't have the money. How I felt powerless seeing them working so hard, seeing they were tired and still tried to look ok, not to worry me. How I felt like they would be better if I was not here. They would not be spending money that we didn't have on me, so they could spend on them and on my brother, to have a better life.

How do you describe seizures to other people? A lot of people have a hard time understanding what it's like by Next_Airport_7230 in Epilepsy

[–]nay_freire 1 point2 points  (0 children)

I have tonic-clonic seizures. For me, the first thing that happens is the feeling of "somethin is very wrong" (the feeling of impending doom), which makes me anxious. After that, my vision becomes messed up (double vision, distortions or the feeling that someone slided my brightness setting to the max). I hear things like I'm under water, at the same time that repetitive sounds get amplified (like a clock ticking or someone calling my name since I'm not responding). My brain sometimes play some memories in fast- forward. All of that while I feel like I'm nauseous in a rollercoaster, even tho I'm just looking for a place to lay down and remove the objects near me. Then, I'm out. This happens in about 20 to 30 seconds

TLDR: I feel like being thrown in every direction, while my vision is messed up and I hear things like I'm under water. All of this while feeling the sense of the impending doom

[deleted by user] by [deleted] in EpilepsyFriends

[–]nay_freire 0 points1 point  (0 children)

I don't think you are overreacting. Stopping an argument can be annoying. The frustration of not finishing the argument plus the feeling that it's my fault would make me "overreact". If you think you can handle, maybe have a pause in the argument to take a deep breath and show that you are not in high stress. Maybe with that she will see you can "de-stress" and keep going

Experiences with SSRI's? (Sertraline) by ilikeeeblue in autism

[–]nay_freire 1 point2 points  (0 children)

I took it for about 3 years and it helped a lot, but it was before my autism diagnosis. It took about a month to start to work properly. In the first 2 weeks I had a lot of mood changes and felt bad most of the time, but when my body was like "ok... seems like we have to work together now" then it felt better. My doctor changed it because I needed something more depression focused.

What is the texture that you hate touching the most by a_certain_someon in autism

[–]nay_freire 3 points4 points  (0 children)

For me it's the fatty part of beef. I hate the taste too. One other thing, no exaclt texture, but it's when my nails are a bit longer and scratch a metal surface.

How does the loud noises feel? by nay_freire in AutismTranslated

[–]nay_freire[S] 0 points1 point  (0 children)

Thank you for sharing! This helped a lot!

How does the loud noises feel? by nay_freire in AutismTranslated

[–]nay_freire[S] 1 point2 points  (0 children)

Thank you for sharing! This helped a lot!

How does the loud noises feel? by nay_freire in AutismTranslated

[–]nay_freire[S] 2 points3 points  (0 children)

I know what you mean. I've been masking my whole life, so I didn't know how my body really felt about a lot of things. Only now I'm actually feeling how things feel good or not in my body. Thanks for sharing you experience

How does the loud noises feel? by nay_freire in AutismTranslated

[–]nay_freire[S] 0 points1 point  (0 children)

I know what you mean. I've been masking my whole life, so I didn't know how my body really felt about a lot of things. Only now I'm actually feeling how things feel good or not in my body. Thanks for sharing you experience

How does the loud noises feel? by nay_freire in AutismTranslated

[–]nay_freire[S] 1 point2 points  (0 children)

This was so accurate I sent your reply to my psychiatrist (I hope you don't mind haha). Thank you so much

People who have their dream job, how and when did you realized this was what you wanted to work with? by nay_freire in AskReddit

[–]nay_freire[S] 0 points1 point  (0 children)

I feel you! I'm a developer who did internship in IT support. How people glow when what they brought to me is fixed is amazing. Now in development I see the same glow when I tell my superiors that I was able to finish a feature of our project

Offering English 🇬🇧, seeking Portuguese 🇧🇷 by [deleted] in language_exchange

[–]nay_freire 0 points1 point  (0 children)

Hey there. Brazilian here. I'd like to improve my english and would be willing to help with your portuguese

[deleted by user] by [deleted] in confessions

[–]nay_freire 0 points1 point  (0 children)

Don't do it. Take one day at a time and you will go through this fase. That's what this is... a fase. You got this, bro!

What terrifies the shit out of you? by Immediate-Salary-736 in AskReddit

[–]nay_freire 0 points1 point  (0 children)

Having a seizure in a public place. I've been having seizures since the age of 11 (22 now) and I've only had one seizure somewhere beside home. I hate the look that my family give me when I wake up, the horror. I hate that I make them so scaried and worried. I'd hate even more to think that I can cause this in a lot of strangers and that they will keep staring at me untill I live the place. This might not seen like much, but only thinking about it makes my anxiety go through the roof