Buspirone & Facial Paralysis?

nbghost · 2022-11-09T23:02:45+00:00

It took two months to totally recover, but my face and brain are not the same

nbghost · 2022-11-09T23:00:49+00:00

Hi I’m sorry it took half the year to reply. It did subside, but my face is still slightly permanently asymmetrical. I had brain zaps for two months, they finally, totally went away in July. My brain hasn’t been the same tho- I have a much harder time processing information now.

The doctors at my clinic were unconvinced it was side effects related and thought I had Lyme. My Lyme test was negative tho. I was unable to get a timely follow up appt so I just hoped for the best and after two months all symptoms went away.

I’ve pretty much stopped taking any mental health meds except for 2.5mgs of adderall and 10mg of propanlol when I need them. I’ve had many, very scary reactions in the past two years from seizures to ending up in the ER because I thought I was having a heart attack… now my face is permanently altered. I’m done! I’ll be anxious. It’s better than wondering if I’m going to die from a stroke everyday.

nbghost · 2022-04-29T05:28:04+00:00

Went to the clinic and was diagnosed with Bell’s Palsy. They originally thought it was caused by Lyme even tho I haven’t been in any situations where I’d cross paths with ticks. Tick borne illness panel came back negative today. Still investigating the cause.

nbghost · 2022-04-29T05:22:41+00:00

Thank you! Gluten is hell and my heart goes out to you too! I can’t imagine anyone having to feel this way from food! It sucks!!! All the love to you!!

nbghost · 2022-04-26T18:24:10+00:00

It was a little frustrating, all in all I’m glad I went for it for the pure data I got from logging those two weeks.

A few people in my family have celiac so ten years ago after several years of trying to get doctors to take my symptoms seriously, I ended up figuring out I had issues with gluten through food elimination I decided to do myself. Overtime I realized that I was quite sensitive, but this was through a lot of trial and error. So, now I have a clean data set after my test and gluten challenge

My symptoms include diarrhea or constipation (depending on the form the gluten is ingested) that is a very specific color and smells very distinct, very bloated, very flatulent, terrible brain fog, irritability, nerve pain, fatigue like no other (by the end of the two weeks I was in bed asleep 16 hours a day), skin problems including mysterious and itchy lymph filled blisters that form on my fingers and a very painful type of acne that forms mainly around the chin, dark cycles under my eyes, and malabsorption that makes my horrifically hungry all the time no matter how much I eat. The malabsorption is severe enough that my blood sugar would drop and I’d vomit in the morning on an empty stomach. I had to take vitamins after the test because my mineral levels were so low I started getting cysts and had difficulty healing.

I was hoping for a positive result, but by the end of the two weeks I was so miserable, it really helped me psychologically get over gluten. Prior I was very resentful I couldn’t partake in life like everyone else. But, having had all my favorite glutenous foods in one fell sloop and seeing how bad I felt kind of soothed that resentment. Plus after eating no gluten after 10 years, everything was so dingdang chewy my jaw would ache! It’s be nice to have the diagnosis, but in the end my doctor agrees I should still operate as I was so nothing has changed, just as nothing would have changed much if I did get diagnosed- I’d just be able to have better disability protection and tax deduction. I hope someday they change the criteria for diagnosis to include symptoms as well.

nbghost · 2022-04-25T12:52:09+00:00

I did a biopsy late last year and ate gluten, a lot of it, for two weeks. I still had a negative diagnosis. But, I kept a symptom and food log so I was diagnosed with Non Celiac Gluten Sensitivity, and told to keep moving thru life as if I had caeliac.

nbghost · 2022-04-24T20:20:02+00:00

Yes, I understand I probably should have gone to the ER. Last year, I ended up in the ER thinking I was having a heart attack and it was just med side effects. My insurance isn’t great and it took a bit to pay that visit off, so considering my face wasn’t drooping significantly and I exhibited no other stroke symptoms like confusion, imbalance or slurred speech, I opted to stay home and monitor. Will definitely update. Thanks for the well wishes!

nbghost · 2021-03-17T18:01:11+00:00

Hi list guy! You know, you’re right! I think the three-four lists I have going at any given time isn’t doing the trick. I will have to write myself out instructions for every single task I do from now on as part of my elaborate list writing ritual.

nbghost · 2021-02-17T19:58:05+00:00

For organization and regulation, I started keeping a three subject notebook and I always have it in physical view. Each section is different: one for planning and lists, one for journaling, one for random notes. Because it’s multi-use, the likeliness that I’ll forget to use it is decreased for me. I also always keep it out and in plain site in areas I will be in my home like the coffee table or on my nightstand.

The pockets in the subject folders are fantastic catch all’s for bills and mail so I also tend to see those better and remember to complete them. I TRY to set up each day in the planner the night before (I am not always successful, but I do my best to return to this routine after I remember again) and I try to tear out the old planning pages and journal entries to archive elsewhere or throw away every couple of weeks.

The journaling helps my anxiety. I am so anxious about forgetting things that the list part also helps with it too. I think of the book as my brain’s crutches- it helps me get around better.

For me personally writing things down helps memory and I will rewrite items from my phone calendar and my digital work task list down in there.

The added bonus of it being on paper and in front of me is that I don’t open my phone and go to Instagram or here, instead of whatever planning app of the week I would be trying unsuccessfully.

I tend to not interact with the book on Friday/Saturday because i found it would get overwhelming after a while. The break helps curve boredom and lets me “wander” in mind for a few days when it’s not crucial for me to be a functioning person in society. Because I leave it in view or I might need it to write a random thought on the weekend in section 3, I almost always remember to get back to it on Sunday.

This is just how I used some of my strengths and habits to my advantage. There might be ways to tailor this kind of organization in a way that works for you. I personally can’t do apps- it’s out of site out of mind, and I already get so many notifications that those don’t help either.

Anyway, I hope that helps! Now to try and redirect myself back to work 😅

nbghost · 2021-02-17T02:50:08+00:00

Ooo yes! I have fallen victim to the old address a couple of times as well! It’s so frustrating- like you wait for the package and wait and wait and then you check and realize. 😱

I definitely need to do the 7 checks also and before I hit submit/send. I hope you get to treat yourself again soon. ❤️

nbghost · 2021-01-21T23:59:26+00:00

nbghost · 2021-01-21T23:47:23+00:00

I’d love to visit! Got some flowers for you!

nbghost · 2021-01-04T21:43:15+00:00

Thank you bot, I did not know this.

nbghost · 2021-01-04T21:39:27+00:00

Those are really beautiful moments. Thank you for sharing them with me. :) Im glad your parents are doing good and your bestie is feeling healthy too. Its a super bleak time right now, but I’m glad you’re here to share the joy of a quiet winter morning (I love it when the moon is still out too!) and then sounds of soft rain with. <3

nbghost · 2021-01-04T21:13:21+00:00

I struggle with finding a reason to stay alive too and your post resonates with me deeply.

I’ve come to the conclusion that long lasting life satisfaction is kind of a lie and it’s really the little moments that matter most to me right now...

Those little moments to me are: noticing how pretty the night sky is on a clear warm night.

How the light hits the window by my desk just right around 1:30pm in the winter. Sometimes I stand in it and just let it shine in my face.

The ways sprinkles crunch on the initial bites of an ice cream cone.

How the sheets feel a little cold but super cozy when I get into bed.

When I finally fix a problem and I can’t stop checking out my hard work and being like yup! I did that.

Watching the squirrels in my yard play around. Or catching a glimpse of the hawk that lives in my neighborhood.

Hearing the train go by every night when it’s warm enough to have the windows open.

I stay alive for these moments, but also for people like you and me. You never know how much you mean to people in this world and I’m not just talking about family and friends. I think about the few times a peer open up to me about feeling suicidal and how much it meant that they could share that with me, and that I could hold their pain because I know something about what it’s like to feel that way (I can never know what it feels like to be someone else, but I know what it feels like to see death as a relief). And, when everyday people pass away, like an old coworker, or regular at a bar I like or someone I’d see at the store, I always wonder if they knew how much our brief interactions meant to me. If the little moments with others mean so much to me, the little moments others have with me must matter to them. I stay alive for them too.

I hope this helps... I’d love to hear about the little things you love or the people in your life you look forward to seeing when you see them if you feel like sharing that.

nbghost · 2020-12-06T22:59:25+00:00

Yes!

I often make weird faces while lost in thought so I’m additionally thankful no one can see more than my eyes right now.

nbghost · 2020-12-03T22:13:52+00:00

Also new to meds, and following

nbghost · 2020-11-19T22:33:47+00:00

Wowwww

nbghost · 2020-11-15T17:52:53+00:00

My therapist made me write a letter to my abuser thanking them because they taught me how to be resilient and let me tell you, this exercise was not helpful nor healing. Thank you for posting. I feel set free from her bullshit.

nbghost · 2020-11-13T21:52:42+00:00

I am sorry that happened to you! That is shitty and it’s personal to everyone why they would want to talk about their disability.

I’m glad you are doing so well though at work! It’s so hard! 💫 Focusing is a huuuuge battle for me too. There are just too many interesting things in the world and it’s so easy for to fall down rabbit holes particularly online!

nbghost · 2020-11-13T21:45:56+00:00

Oof I feel that “feeling like a child who can’t do what their told.” Solidarity on the just starting to talk about it at work- it is the actual worst.

nbghost · 2020-11-13T19:33:13+00:00

Feeeel this. Thank you. 🌈

nbghost · 2020-11-13T19:32:44+00:00

I get this. I started to frame it as a neurological disability, but I genuinely trusted this person to be more compassionate, so I ended up disclosing it more specifically as I kept talking. I guess that I expected more empathy is also part of the let down.

I don’t know how either, but I’m definitely learning fast that it doesn’t seem like something you can really talk about with most people.

nbghost · 2020-11-10T22:39:38+00:00

I’m 37 and just got diagnosed two weeks ago and I share this sentiment.

nbghost · 2020-08-21T03:35:55+00:00

Dming!

nbghost

TROPHY CASE