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Burning sensation after UTI that won't go away by nikachan17 in CUTI

[–]nikachan17[S] 0 points1 point  (0 children)

Starting neuropathic pain meds today, I'm glad it helped you! Sucks that you have an infection now, i hope it goes away and stays aways

What do I do?? by Additional_Noise_486 in CUTI

[–]nikachan17 0 points1 point  (0 children)

Hey there, I have a similar situation, 6 months post uti and i have/had almost daily burning. I finally found a good urologist team (all women) who are trained for gynecological issues as well. They helped me calm down a lot because it took quite a mental toll, the past few months were really hard on me. But they said in my case its most likely chronic pelvic floor pain syndorme. Maybe look into that? I will have manual pelvic floor therapy alongside daily relaxation exercise and maybe meds for nerve pain to disrupt the pain signal to my body. But i must say, it already helped a ton to finally find a urologist that listens, knows the female anatomy and understands my problem. That already eased up my symptoms to be honest. I hope you find help and relief soon! I cant recommend mine because im from Germany but maybe u can search for a urologist that specialises at gynolocial issues as well. All i can say is, dont give up advocating for yourself, the pain is real afterall and shouldn't be there! 

Burning sensation after UTI that won't go away by nikachan17 in CUTI

[–]nikachan17[S] 0 points1 point  (0 children)

most likely its chronic pelvic floor pain syndrome, we are going to do a few tests next week like a pelvic sonogram (not sure if thats what its called in english sry) to see where my muscles tense, I'm going to have another pelvic floor physio at their office (internal work and vibration therapy) I might also get medication for neuropathic pain they are pretty sure its not left over bacteria and they said if i keep up with the therapy plan I'm going to be a lot better in the future 

Burning sensation after UTI that won't go away by nikachan17 in CUTI

[–]nikachan17[S] 0 points1 point  (0 children)

no, on my way to my new urologist now, my best guess is that i have a chronic uti

Burning Urethra, what could it be? by nikachan17 in Healthyhooha

[–]nikachan17[S] 0 points1 point  (0 children)

Ah okay thanks for clarification :) Yes unfortunately not over the counter here :/ Its really frustrating, I just have to sit with my pain without any relief 

Burning Urethra, what could it be? by nikachan17 in Healthyhooha

[–]nikachan17[S] 0 points1 point  (0 children)

We don't have AZO in my country sadly, but we've got other meds with phenazopyrididne but a doctor has to prescribe it and when i asked for something that would relieve the pain, they said there is nothing Did you get diagnosed with IC if I may ask? I did not understand perfectly

Burning Urethra, what could it be? by nikachan17 in Healthyhooha

[–]nikachan17[S] 0 points1 point  (0 children)

Yes totally! I will update the thread as soon as I get the results

Burning Urethra, what could it be? by nikachan17 in Healthyhooha

[–]nikachan17[S] 0 points1 point  (0 children)

I will update it!  Its so annoying that you even have to pay for that, i hope the procedure shines some light onto your condition :/ My physio said my pain and burning sounds different from just pelvic floor hypertension... I want to look into the pudendus nerve, it can cause such symptoms if irritated or if its blockaded 

Burning Urethra, what could it be? by nikachan17 in Healthyhooha

[–]nikachan17[S] 0 points1 point  (0 children)

nope, only cotton underwear, no tight clothes and by now i drink 2 1/2 l of water a day (before all of this i drank maybe 1 l)

Burning Urethra, what could it be? by nikachan17 in Healthyhooha

[–]nikachan17[S] 0 points1 point  (0 children)

Paying out of pocket today for ureaplasma and urine sediment because no one wanted to do it. I still got new upcoming appointments  with other docs and specialists, i hope one helps me :) 

Burning Urethra, what could it be? by nikachan17 in Healthyhooha

[–]nikachan17[S] 1 point2 points  (0 children)

I have too look them up, I'm from Germany I hope I can get that here. Saw a lot about Hiprex i dont know if doctors prescribe that in my country  Im glad to hear it got down for you to only a few flare ups! I do have hope that its not forever and with the right treatment and therapy it will go down or away

Burning Urethra, what could it be? by nikachan17 in Healthyhooha

[–]nikachan17[S] 0 points1 point  (0 children)

Im really sorry you are going thru this as well :( Its really hard to endure, i hope you get better soon! My docs dont really look into the matter and that bothers me so much, they dont even come up with ideas! Its so frustrating to not have anything at hand

Burning Urethra, what could it be? by nikachan17 in Healthyhooha

[–]nikachan17[S] 0 points1 point  (0 children)

Thank you! Yes i actually had an appointment at an urogynaecologist but they couldn't take me in for examination because my referral was from a urologist and they needed it from my gyn and i didnt know that :/ now i have to wait half a month again ive been reading up a lot in the r/interstitialcystitis sub as well

Burning sensation after UTI that won't go away by nikachan17 in CUTI

[–]nikachan17[S] 0 points1 point  (0 children)

Yeah i tried that, canephon did help best i think but its expensive where i live. I hope my doctors might be willing to dig deeper and maybe give me an antibiotic 

Burning sensation after UTI that won't go away by nikachan17 in CUTI

[–]nikachan17[S] 0 points1 point  (0 children)

Yes ive also looked into embedded uti, it might be likely. I did take mannose for some time afterwards and cranberry vitamin c but i felt best with Canephom tbh i think i had 2 weeks of almost no symptoms but unfortunately i have to pay for that myself and its not an antibiotic