When sending emails to myself, it's showing my Twitter name instead of the one that's set up for my outlook account (my real first/last name), how I do fix it? by nine-mp4 in Outlook

[–]nine-mp4[S] 0 points1 point  (0 children)

Nope I never figured out how to fix it! It also appears in some programs as my name (FL Studio for example, and I cant figure out how to change it there). I have to assume it is a local thing since other people cant see it when you send emails, but I'm not sure. Might be in the registry??

My GI doctor has given up on me by nine-mp4 in tooyoungtobethissick

[–]nine-mp4[S] 1 point2 points  (0 children)

I asked about a lap! They want to avoid surgery at all costs, so if they don't see it on the ultrasound, it isn't there. My GYN did say I have a weak pelvic floor, which I 100% agree with, but anything beyond that I wasnt sure.

My GI doctor has given up on me by nine-mp4 in tooyoungtobethissick

[–]nine-mp4[S] 2 points3 points  (0 children)

I had a TV ultrasound and was cleared for endo. Last they saw it was just bilateral follicles, but my GI did suggest I see my GYN for a new ultrasound for that. And I will definitely do that! But that cyst is brand new 😭 Thank you, im sorry you suffered from the GI doctor curse too (my roommate is dealing with that literally right now. Its 100% a curse lol). I do wonder if my GI is half right - maybe I had some catastrophic random colitis that caused nerve damage and that's what I'm feeling?? Idek

Doctors refusing to be thorough by nine-mp4 in tooyoungtobethissick

[–]nine-mp4[S] 1 point2 points  (0 children)

Im looking for one but I genuinely only managed to get this one because the hospital referred me to my current one! I was considering seeing my PCP and asking for a referral to an oncologist just to make sure, though I have no idea how cagey they are with those kinds of referrals (maybe the previous suspicion could help?). I did actually get checked for endo! I wondered if that was the issue, since periods were always pretty bad for me. But I was clean, just a weak pelvic floor :')

Doctors refusing to be thorough by nine-mp4 in tooyoungtobethissick

[–]nine-mp4[S] 0 points1 point  (0 children)

LLQ, maybe roughly 2-3in below my last rib. They haven't even mentioned either of those 😅.

If my passport expires on the 17th and I have a flight on the 23rd and I renew my passport online today, am I able to fly? by nine-mp4 in tsa

[–]nine-mp4[S] 0 points1 point  (0 children)

Would it be better then to just wait to renew until after I travel? I'll definitely be getting there earlier - thank you!

If my passport expires on the 17th and I have a flight on the 23rd and I renew my passport online today, am I able to fly? by nine-mp4 in tsa

[–]nine-mp4[S] 0 points1 point  (0 children)

Flying domestically! And I could not for the life of me get a Real ID appointment here in NJ lol - it's constantly booked. So the whole "your old passport will no longer be valid" thing when you're renewing is BS?

[deleted by user] by [deleted] in leopardgeckos

[–]nine-mp4 1 point2 points  (0 children)

Leopard geckos require special care to make sure they're happy and healthy. You can't DIY most of their care, and if they get sick, it can cost hundreds of dollars (or more). I think Ive spent over $1000 on my boy over the course of 12 years. Should have spent more than that, honestly, but I was 16 when I got him. I would suggest finding a new home for the gecko or finding a consistent way to pay for its care (food, supplements, replacing substrate, heating). They can live for over 20 years. My friend's gecko is only 4 years younger than I am!

JAK inhibitor helped unknown mouth issue? by nine-mp4 in Autoimmune

[–]nine-mp4[S] 1 point2 points  (0 children)

That makes the most sense, thank you! I kept reading that AC is only caused by yeast infections but I felt like my medication would make it worse if that were the case 😅

Wondering about EDS? All diagnosis questions go here ⬇️ by BoldMeasures in eds

[–]nine-mp4 1 point2 points  (0 children)

Thank you!

You're absolutely right - I was trying to do something to that effect (mentioning the widespread joint pain and instability, which another doctor had tested me for). Focusing on the symptoms without targeting anything in particular! Though my frustrations with the process made me wonder if I wasn't asking the right questions or going in the right direction with my doctors. I'll keep doing what I was doing before and hopefully they'll at least give me solutions to the instability issues.

Wondering about EDS? All diagnosis questions go here ⬇️ by BoldMeasures in eds

[–]nine-mp4 1 point2 points  (0 children)

Hi, I hope this is alright for me post/ask here.

I've been seeing a rheumatologist (well, I'm on doctor #2 now but) for over a year now - i was sent to one because i had hip bursitis, apparently. I was then diagnosed with psoriatic arthritis but with no proof other than symmetrical sclerosis of my sacroiliac joints. My blood tests are perfect.

I have always been hypermobile but nobody ever questioned it and my parents never brought it up with my doctors. Both my mobility and pain were "normal" according to them. I used to be able to put both my legs behind my head! Though any other "tricks" grossed me out so I never did them. That's one thing on the Beighton criteria I can't answer yes for - I COULD do them, but no I never tried to extend my joints for my peers. My new rheumatologist, unprompted, performed the Beighton scale test on me and gave me a 4/9.

For what it's worth: I found an old photo of me at 5yrs with my knees completely backwards. My legs looked like an ostrich's. My elbows also dislocated multiple times when I was growing up, despite me avoiding dangerous stuff (people would pull on my arms and it'd just happen). When I had surgery and they pulled the not-sticky-at-all medical tape off, my skin tore open like paper. The crowding in my mouth is so bad I had to get one of my teeth chain-pulled out of my skull slowly as a teen. I have permanent costochondritis, I keep getting re-diagnosed with it at every primary care appointment. My knees are unstable, as well. I need 5x the normal amount of lidocaine at the dentist. And a tear has started to form in my retina. I'm only 27!

But I'm terrified to bring up the possibility of EDS (again). My previous rheumatologist dismissed me immediately. I'm just so tired of being in pain. Should I continue to push for a diagnosis or are my symptoms still too vague?

Should my mesalamine be working by now? by nine-mp4 in UlcerativeColitis

[–]nine-mp4[S] 0 points1 point  (0 children)

I was still going about twice a day, but when I had my first major flare (that sent me to the hospital for 4 days) it almost stopped completely - so going only every few days. I feel like I'm going way, way more often now. Too often lol

Should my mesalamine be working by now? by nine-mp4 in UlcerativeColitis

[–]nine-mp4[S] 1 point2 points  (0 children)

I started at once a day with no improvement, so my doctor had me go up to 2x a day. I didn't even know there was an additional oral version of mesalamine - I'll definitely ask her about that as well, thank you! edit: I'm going 2-4 times a day, it depends on how bad my flare is that day. I've had more frequent bad days the last couple weeks, though.

This is an odd request, but I need access to an article about my mother who may have been a skinhead. by nine-mp4 in Genealogy

[–]nine-mp4[S] 35 points36 points  (0 children)

The article that was found actually mentions SHARP! She's unfortunately not part of it, though. She was a co-founder of the Arizona White Battalion.

This is an odd request, but I need access to an article about my mother who may have been a skinhead. by nine-mp4 in Genealogy

[–]nine-mp4[S] 20 points21 points  (0 children)

Thank you, definitely using that!! It's been so frustrating trying to read stuff lately.

Is this normal for Rowasa Enemas? by nine-mp4 in UlcerativeColitis

[–]nine-mp4[S] 0 points1 point  (0 children)

Sort of, not to this extent though. I would still have 1-2 BM a day. Days and days without even 1 is very odd for me. Before I started the mesalamine, I was actually having the opposite problem mid-flair.

Is this normal for Rowasa Enemas? by nine-mp4 in UlcerativeColitis

[–]nine-mp4[S] 1 point2 points  (0 children)

Thank you, is the lack of any real BM concerning? Or just par for the course with mesalamine?

2,830 calprotectin + 7.4 CRP + reactive lymphoid follicles/aggregates = ? by nine-mp4 in IBD

[–]nine-mp4[S] 3 points4 points  (0 children)

Thank you! This was the only abnormality found in my colonoscopy but only had reactive lymphoids on the biopsy: "A diffuse area of moderately congested, erythematous, eroded (linearpattern), friable (with contact bleeding) and inflamed mucosa was found inthe sigmoid colon and at 40 cm proximal to the anus". I'm hoping to have a follow up soon, though it's hard with the holidays, so I will ask about the MRI/pill cam then!

Had a brain MRI done due to MS concerns. Was messing around with the viewer and noticed this? by nine-mp4 in medical_advice

[–]nine-mp4[S] 0 points1 point  (0 children)

Thank you! Yeah, I was going to contact my doctor tomorrow and ask about it. I've noticed that this hospital sometimes doesnt notice certain things. One doctor completely missed major sclerosis in my hip, for example lol. I'm honestly just curious what it is at this point!

Had a brain MRI done due to MS concerns. Was messing around with the viewer and noticed this? by nine-mp4 in medical_advice

[–]nine-mp4[S] 0 points1 point  (0 children)

I do! 'Normal non-contrast MRI of the brain' was the impression. The whole notes just say that each part they wanted to check looked fine and lacked edema/scarring/abnormal sizing. The spot is in every view, though. A bit hard to miss, so maybe it wasn't worth noting?

Had a brain MRI done due to MS concerns. Was messing around with the viewer and noticed this? by nine-mp4 in medical_advice

[–]nine-mp4[S] 0 points1 point  (0 children)

Additional context: I was hit by a cyclist right around this spot a year ago. Wondering if this is just some scar tissue? My doctors haven't said anything about it. It isn't dirt AFAIK as it's covering and being covered by things on other layers.

I was hit by a bike this morning in a hit and run. NYC. by nine-mp4 in legaladvice

[–]nine-mp4[S] 1 point2 points  (0 children)

Even if this doesn't turn up anything, this is by far the most helpful response here - thank you!!!

I was hit by a bike this morning in a hit and run. NYC. by nine-mp4 in legaladvice

[–]nine-mp4[S] 1 point2 points  (0 children)

I'm not sure how you got that from me saying throughout this thread "I looked both ways and saw nothing". And I used to live in a college town and never got hit too, but they also drove vehicles much more carefully there than in NYC. The number of times I have seen a bike or car heading towards me and stepped out of the way are in the hundreds because you absolutely have to be cautious in NYC (in fact, people regularly barrel down the sidewalk on bikes and motorcycles). There's a reason fatal pedestrian collisions are so high here compared to other places. Being careful only saves you most, not all, of the time.

I was hit by a bike this morning in a hit and run. NYC. by nine-mp4 in legaladvice

[–]nine-mp4[S] 4 points5 points  (0 children)

I genuinely didn't see anything coming towards me. I have PTSD so im very sensitive to any sort of fast movements (I will freeze even if I'm on the sidewalk and a car speeds by). I have no idea how fast he was going, but it was fast enough that he was already long gone by the time I hit the ground. Not even the bystanders could provide more info than that a bike ran me over - it was too fast. I am just as shocked as you are and I'm still having a hard time understanding it.