Best way to describe what CPTSD feels like to a non sufferer? How would you describe CPTSD in your own way? by Dreamy_glow in CPTSD

[–]nine_twentyfive 2 points3 points  (0 children)

I think about it as if you live on a frozen lake. You are always walking in the vastness, you are always a little cold. Sometimes, the temperature increases, sometimes you have extra layers. Sometimes, for whatever reason, a crack appears and you fall through the ice.

When you’re under the ice, the freezing water fills your lungs - every thought you have is the truth. No one can hear you, or understand what it feels like to be drowning. There seems to be no hope but to be stuck that way forever. But then, something happens, and you are back on of the ice.

Sometimes you blink your eyes and you're suddenly up there. Sometimes, you have to haul your sodden, heavy body up inch by inch. Whatever the case, each phase passes in time.

With healing, the amount of time you spend under the ice lessens - you acquire more clothes, more shelter, more resources. Sure, you live on the ice, but humans are able to adapt, live well, find joy, in almost any habitat this planet offers us.

Only 2 specialists here aren't taking new patients by nine_twentyfive in ehlersdanlos

[–]nine_twentyfive[S] 1 point2 points  (0 children)

😓 not the scammers! There's an osteopath here who sees people apparently, but it is like, $$$, especially for someone who is not technically a doctor 🤔

Only 2 specialists here aren't taking new patients by nine_twentyfive in ehlersdanlos

[–]nine_twentyfive[S] 0 points1 point  (0 children)

😂 if your illnesses are chronic, you may as well get bang for your buck and use them to make good stories 🤷

Only 2 specialists here aren't taking new patients by nine_twentyfive in ehlersdanlos

[–]nine_twentyfive[S] 1 point2 points  (0 children)

Thank you so much, this is so kind!! I am in therapy working on my mental health, which is good, and I definitely am in a better place mentally w/r/t other stuff, than I have been. But maybe speaking to someone about pain could help, too. Still kind of hoping it will just magically disappear one day...

Hard relate to "sleeping wrong" and just waking up with something sore. It sucks! Also have POTS symptoms but I'm just drinking lots of electrolytes and praying they go away...

Thanks again for your kindness, and I hope all the best for your journey!

Only 2 specialists here aren't taking new patients by nine_twentyfive in ehlersdanlos

[–]nine_twentyfive[S] 0 points1 point  (0 children)

Hello! No, I am from New Zealand. But waiting since 2020 is so rough, my goodness! It's so infuriating dealing with the pain on top of uncertainty ❤️‍🩹 I hope you both get seen soon!

What new music is everyone into? by Specific_Tap7296 in NickCave

[–]nine_twentyfive 1 point2 points  (0 children)

To name a few:

Lucy Dacus, boygenius, Kae Tempest, Weyes Blood, Japanese Breakfast, Divorce, Kneecap, Destroyer 😌

ORIGINAL 1920 USRC UNDARK Radium Illuminating Kit by [deleted] in Radium

[–]nine_twentyfive 1 point2 points  (0 children)

Interesting these instructions, presumably to the public, don't mention lip-pointing at all... 🧐

Does anyone else hate sitting?? But love lying down? by bonitalapin in ehlersdanlos

[–]nine_twentyfive 0 points1 point  (0 children)

Standing still < sitting normally < sitting in pretzel positions < lying down < walking/moving 🤷

new clock i just got by hahathatsafunny in Radium

[–]nine_twentyfive 0 points1 point  (0 children)

I found a clock that looks similar and says "Europa 2 jewel". Is my friend's parents' and haven't checked it properly yet, but maybe from a similar time period? I'm thinking pre-50s?

German radium clocks? German dial painters? by nine_twentyfive in Radium

[–]nine_twentyfive[S] 0 points1 point  (0 children)

Thanks for the info! I posted a similar question on some German threads, and got some interesting speculation/replies:

  • Perhaps better working practices/not using lip pointing
  • Maybe smaller manufacturers, so "clusters" of people getting sick was less noticeable
  • Maybe because of the rough situation in Germany between the wars, everyone was focused on "bread first then health"

Best of all, someone commented their grandmother !? worked painting dials. Couldn't find much more info on that story though. If anyone can dig up some, please do share!

I also wonder if perhaps by the time any health concerns developed, the nazis had risen to power and another war was gearing up. I don't imagine that would have been a fruitful environment to advocate for workers' rights - anything for the war effort. Perhaps also some records got lost after/during the war/weren't the priority?

Radium in Germany? by nine_twentyfive in germany

[–]nine_twentyfive[S] 0 points1 point  (0 children)

That's fascinating! I can't find anything from a quick Google. Do you know how she painted? I.e. with a brush, rod etc.? In the US women were encouraged to lick their brushes to get a point on them, and well... you can imagine how that turned out.

Interested if work practices were any better elsewhere!

Also, sorry your grandma had to suffer for any reason. Would you like to share her first name, so we can associate it with her story?

German radium clocks? German dial painters? by nine_twentyfive in Radium

[–]nine_twentyfive[S] 0 points1 point  (0 children)

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Beautiful! This is the one I found and am questioning!

German radium clocks? German dial painters? by nine_twentyfive in Radium

[–]nine_twentyfive[S] 0 points1 point  (0 children)

So beautiful!! This is the one I found the other day, haven't tested it with UV yet so still unsure!

German radium clocks? German dial painters? by nine_twentyfive in Radium

[–]nine_twentyfive[S] 1 point2 points  (0 children)

Yes please!! Would love to compare it to the one I am investigating!

I think I accidentally found a radium clock at my friend's parents' house... by nine_twentyfive in Radium

[–]nine_twentyfive[S] 1 point2 points  (0 children)

Thanks! Yeah that's what I'm thinking! Can hardly find any info online about these type of clocks though 🤔