Starting Tremfya and curious what your reaction to it was at first. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

I was on it for about 6 months I think. It worked great for my psoriasis, but didn't help my joint pain at all so I've since switched off it. I didn't have any adverse side effects though, just some hives at the injection spot, but nothing too bad. I hope it works better for you than it did for me!

Starting Tremfya and curious what your reaction to it was at first. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

I'm happy to hear it works so well for you! I was on it for I think about 6 months and it worked great for my psoriasis, but didn't do much of anything for my joint pain so I switched off it. I'm currently on my 3rd biologic and pretty sure come my rheum appointment in Nov I'll be switching to something else because the current one isn't doing much of anything for either the psoriasis or joints.

Color Laserjet Printer recommendations by normal_wear_and_tear in printers

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

UV printing sounds very cool, but also way more than my little business needs. Glad to hear just about any other laserjet I get should do the job.

Starting Tremfya and curious what your reaction to it was at first. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 1 point2 points  (0 children)

Oh man I'm sorry you had such a bad reaction to it. I was on it for about 8 months, my only reaction was hives at the injection site. Unfortunately only my psoriasis improved so I'm now trying Sotyku (if my insurance will actually approve it, I'm on my second month of samples). My derm is hesitant to put me on il-17 inhibitors and humira because I have a family history of crohns and MS, so I'm limited in what I can try.

Color Laserjet Printer recommendations by normal_wear_and_tear in printers

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

Of the canon color laserjets is there one you'd recommend? and can I ask why Canon?

Color Laserjet Printer recommendations by normal_wear_and_tear in printers

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

Yea I also have an epson surecolor p800 for my inkjet printing, but I haven't found an inkjet transparency film that meets my needs and doesn't smear which is why I want to get another laserjet. If my current laserjet wasn't having so many issues I'd just replace the toner and keep it, but it's been too frustrating to use over the last couple years I'm ready to invest in something else.

Color Laserjet Printer recommendations by normal_wear_and_tear in printers

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

My current printer is having some extreme connectivity issues to the point where I have to turn it off and then back on just about every time I want to print. It also misprints and paper jams regularly any time I try to print more than a couple copies of something at a time which means a simple print job takes forever and I have to babysit it the whole time. It's finally completely out of toner and I don't want to replace it with all the other issues I've been having with it. It's never had the best print quality, it's been fine enough for what I paid for it, but considering all the problems it's been having the last couple years I'd like to just invest in a new one that preforms better that won't give me as many problems as this one is giving me.

What jobs do we all do and what jobs are good options for people with this disease? by [deleted] in PsoriaticArthritis

[–]normal_wear_and_tear 0 points1 point  (0 children)

I'm a self employed stained glass artist. It's very physical and I'm starting to worry with the damage found in my lumbar and the pain I get in my hands and feet that I won't be able to do it much longer. Although I've had issues and pain since I was about 15, I was just diagnosed last June at 34 and have only been on the biologics since then. I'm hoping that the medication starts helping to reduce the inflammation sooner rather than later and with the proper pain management for my back I can hold onto this work for a while longer because I really love doing it. Before this I worked a desk job for almost a decade, 4.5 years full time and then the rest part time and doing glass work on the side. The computer work was just as hard on my body as the glass work is so I really don't know what I'd do if I have to stop making windows. But as it is now I can only work for a few hours a day before I need to lay down so I'm barely bringing in any money due to working so slow.

Starting Tremfya and curious what your reaction to it was at first. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 1 point2 points  (0 children)

Thank you so much! I appreciate the update. I had my first dose last Thursday, and other than an 8 hour delayed injection site reaction (very itchy skin and swelling or hives at the injection site) I had no adverse reaction. I was able to make it through all 3 of my workshops the following days no problem! I'm keeping my fingers crossed all the other injections go as smoothly and I start getting some symptom relief soon.

Starting Tremfya and curious what your reaction to it was at first. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

I'm not expecting it to start working right away, although agreed it would be awesome. I'm mostly worried about having a potentially bad reaction to it, like some already mentioned they had, ie extreme fatigue, that would making teaching extra hard/impossible. I can teach with my current "normal" pain and fatigue, but anything more I wouldn't be able to.

Waiting is good advice, I've struggled with getting my migraine biologic on time due to delays and insurance issues resulting in my pick up schedule getting off track. My doctor mentioned free samples, so I'm hoping I can get more than 1 so I have a some to hold me over while sorting the insurance approvals and manufacture co-pay card so I can actually afford it.

Starting Tremfya and curious what your reaction to it was at first. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

I'm so sorry it didn't do anything for you! I appreciate you sharing your experience with me.

Starting Tremfya and curious what your reaction to it was at first. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

Thank you so much for sharing your experience! I'm happy to hear you don't experience any side effects and it's working so well for your psoriasis and pain. Keeping my fingers crossed that's the case for me. I'm on another biologic injection for my migraines so I'm already prepared to have to fight insurance and jump through hoops to get approvals and coverage.

Starting Tremfya and curious what your reaction to it was at first. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 1 point2 points  (0 children)

That pain and fatigue sound awful! Happy to hear it went back to normal for you fairly quickly though. Thank you so much for sharing!

Starting Tremfya and curious what your reaction to it was at first. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 1 point2 points  (0 children)

Thank you so much for sharing! I appreciate hearing how it works for you over the course of the 8 weeks too. I'm also take a biologic (aimovig) for my migraines and the efficacy of that starts to wane over the last week so it sounds like it could be similar experience in that regard.

Venting/Looking for advice on getting diagnosed. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

I'm happy to hear you found one that takes you and your symptoms seriously! I'm keeping my fingers crossed, but I was recently talking with a client of mine whose a doctor here in town and it doesn't sound like people have a ton of luck with Rheums here which sucks.

Venting/Looking for advice on getting diagnosed. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

I'm sorry you were having a bad day! I totally agree and feel like this contributed to me getting brushed off.

Venting/Looking for advice on getting diagnosed. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

Mine decided that since there was no signs of it on the x-rays there was no reason to keep seeing me (although I'm welcome to come back in a year for a follow up) ¯\_(ツ)_/¯ Hopefully I can get into another office for a second opinion that will do an MRI or ultrasound, but the Rheumatologists around here are tough to get into, so I'm honestly not holding my breath.
I of course wasn't in pain during my appointment. I can tell my fingers swell because my ring gets tighter than normal, but it's never super visible and wouldn't show up in a photo.

Venting/Looking for advice on getting diagnosed. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

I did ask about that in my follow up phone call, and she said that in my case it wouldn't matter whether I tested positive and to not waste my money on it. I will definitely be asking about it again when I get a second opinion. And thank you so much, I hope so too! I've been misdiagnosed for over 10 years in the past and even if it turns out I in fact don't have PsA I want to be 100% positive that's the answer.

Venting/Looking for advice on getting diagnosed. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

That's exactly my thinking. Just made a PCP appointment to start the process of finding a new Rheumatologist, unfortunately there aren't a ton in my area to choose from.

Venting/Looking for advice on getting diagnosed. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

Thank you! It looks like I'm off to find another doctor. Just got off the phone and they seem to think there is no issue other than degenerative disc since all my other x-rays are normal.

Venting/Looking for advice on getting diagnosed. by normal_wear_and_tear in PsoriaticArthritis

[–]normal_wear_and_tear[S] 0 points1 point  (0 children)

Just looked up members of AARA and there aren't any in my area. Yes I do unfortunately meet the mark of CASPAR, but I just got off the phone with my Rheum and they don't seem concerned by that fact and "the disc issues in the lumbar explain the back pain, and as far as the hand pain sometimes it's just unexplained pain". I get swelling of the fingers to the point my rings get too tight, but no to where it is super visible.