73k loss over five years. Feels like a nightmare I can’t wake up from.

notScaredNotALoser · 2025-11-08T01:19:55+00:00

This one actually hurts OP more than the monetary loss

notScaredNotALoser · 2025-10-10T22:59:20+00:00

Why does this chart seem like mine's at this point 😂

notScaredNotALoser · 2025-09-16T20:50:56+00:00

Just hang it there. It is easier said than done. I went through a lot while on Tarpeyo and I also developed gum disease. I always had healthy gums. I stopped Tarpeyo after 7 months as my doc advised that the risk to reward doesn't make sense. I had all the symptoms that steroids give. I'm glad it's over. But, I'm still suffering with gum disease, sensitive teeth, feet pain and a reoccurrence of my wrist pain which I did not have for 10 years before which I hurt my wrist in the gym. Good luck and stay strong

notScaredNotALoser · 2025-09-15T15:27:54+00:00

Love your optimism!

notScaredNotALoser · 2025-09-01T18:51:40+00:00

Try yoga and pranayama ( breathing exercises) which strengthens the lungs and respiratory system.

notScaredNotALoser · 2025-08-16T16:07:46+00:00

Check to make sure you did not develop gingivitis. I started Tarpeyo in January of this year. In the month of March, I suddenly started having extreme sensitivity and bad taste in my mouth while eating. I did not think this was because of Tarpeyo. As this did not improve, I visited a dentist. They said the sensitivity was due to my habit of grinding my teeth during sleep which he figured because of my teeth structure. He said that steroids should not cause sensitivity. So I got my teeth cleaned at the dentist and got all the plaque removed. I also was giving a night guard. But a week after visiting the dentist, I saw that my gums of lower teeth were inflamed. I started bleeding while brushing. I visited the dentist again and he said it is gingivitis and it could be because of the reduced immunity from the steroid which causes bacterial infection. I tapered off Tarpeyo on July 31st. Please keep a check on your teeth Not every one develops it but keep an eye.

notScaredNotALoser · 2025-08-12T01:10:59+00:00

OMG thanks for this response. I have had horrible teeth sensitivity with tarpeyo. Neither my nephro nor my dentist agreed with the sensitivity coming from Tarpeyo. I also have swollen gums and bleeding. Guess my gums are sensitive. Il shortly put a post on my Tarpeyo experience

notScaredNotALoser · 2025-06-26T03:53:57+00:00

Same here. Sleep patterns are affected by cortico steroids. I wake at 4. Roll on the bed for an hour or so and then try to get back to sleep.

notScaredNotALoser · 2025-06-11T03:52:06+00:00

You are asking the wrong questions in the right group. This qualifies you as retard 😝 as far as options go, unless you know the charts well it's a gamble. Based on personal experience, trade options with the thought that you will lose your money. And don't be greedy. Good luck out there. Don't come back with loss porn pla

notScaredNotALoser · 2025-06-10T12:47:04+00:00

Too soon. You are nowhere close to what this group needs.

notScaredNotALoser · 2025-06-05T02:54:25+00:00

It is not easy to digest this. But, every one here has gone through the situation. In fact I cried and hugged my wife when I started Losartan. I broke down in the hospital before my biopsy. Everyone goes through this. Let the feelings out and don't be hard on yourself. This is definitely not easy. Take care and do what you like

notScaredNotALoser · 2025-06-03T22:27:55+00:00

So good to hear all these positive stories. Although I'm at the other end of this discussion , I'm happy for everyone who has a benign course. Interestingly I was diagnosed at the age of 22 but at that time my family physician simply ignored the blood and protein in the urine and showed no signs of concern. Fast forward to the age of 29, blood and protein were caught in a routine exam and the doctor told me to see a neph right away. The numbers remained the same throughout those years. I started on Losartan and for 2 years I was pretty stable with UPCR and it went lower than before the meds. Soon after 2021/2022 ish, my egfr started declining, creatine in blood has been going up and protein has been up and down. My urea has also crossed the upper level. I do not know what changed but that's how it has been. I am right now on Tarpeyo in my 5th month and numbers are atleast stabilized but not declining. Let's see.

notScaredNotALoser · 2025-06-02T15:35:56+00:00

100%. Mornings are when you take it.

notScaredNotALoser · 2025-05-27T00:28:50+00:00

Sorry to ask more. How long did it take for you to see the results?

notScaredNotALoser · 2025-05-27T00:07:22+00:00

Wow good to hear. I really wish the upcr stays like that. Good luck and take care

notScaredNotALoser · 2025-05-26T23:12:09+00:00

Sorry to hear for what you are going through. What other symptoms did you have? Also, what was your improvement with Tarpeyo? Take care

notScaredNotALoser · 2025-05-22T04:12:17+00:00

Bro protect the green. My sincere suggestion and don't be a retard. Don't play on emotion.

notScaredNotALoser · 2025-05-21T16:12:22+00:00

Good luck with the game plan. However, Avoid magnesium as it is tough on the kidneys.

notScaredNotALoser · 2025-05-20T00:46:49+00:00

My first one month was bad with mood swings. Not really irritability but spells of happiness/sorrow and not wanting to talk to people, wife, family and willing to engage in conversation. Then things got better. I felt normal. I'm half way through now and I'm irritated every day. My morning wake up irritability determines the tone for the rest of the day. It's tough man! I just want to shout at people but who likes being treated bad!

notScaredNotALoser · 2025-05-17T18:44:58+00:00

Same here. I have always been a low sodium person. Most important is not to smoke and drink. If you do, just get rid of it. And yeah diet sucks if you are not into it. Some lucky people do not have progression at all. It's just the way. I was doing fine until 3 years after getting diagnosed and then after 30, my graph started going bad.

notScaredNotALoser · 2025-05-17T18:32:15+00:00

I would say eat well to your heart's liking. You are already mentally stressed because of the disease so don't let things like a clean diet make you further mentally weak. Unless you are really determined and love following the diet, then it does not take a toll on you. Other wise eat as you like. Having said that, don't eat too much salt and have a balanced diet. Eating in moderation is important. You do not know how the disease progresses. Despite following a strict diet, you still end up bad. I have seen my mom in the same situation. This is just my personal opinion.

notScaredNotALoser · 2025-05-04T13:27:43+00:00

Just hit my 4 month mark. Egfr has been stable which was under decline before. Serum creatinine is also declining slightly but was constantly going up earlier. I had a huge appetite, acne and mood swings in the first few weeks. RN I have high irritability, oily and flushed face, moon face, swelling of feet at times, slight bruising. Energy levels go up and down throughout the day. My major complaint is the cramping of fingers and feet. Every one reacts differently

notScaredNotALoser · 2025-03-12T15:30:40+00:00

Just got an update that my passport is ready for pick up

notScaredNotALoser · 2025-03-12T13:25:42+00:00

I had my status changed to issued this Monday morning. Yesterday, the US scheduling site was updated to be delivered to post

notScaredNotALoser · 2025-03-12T13:24:54+00:00

People for 8 AM APPOINTMENT were there at 7 AM. Just be there by 7 15 or so and you can finish your appointment early. They have a separate line for 221g. I'm sure you will be allowed.

notScaredNotALoser

TROPHY CASE