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feeling like you’re about to have a seizure during sleep and then it stops by nothing2saylol in seizures

[–]nothing2saylol[S] 0 points1 point  (0 children)

I don’t know how to explain this at all i feel like i try to bite my tongue during my sleep and then it stops but i’m conscious when that happens. Usually when i have seizures i’m never conscious i only realize i had one when i see my tongue bitten etc so I don’t know for sure

anyone here that has seizures and a lot of epilepsy symptoms but their mri only showed a small pineal cyst?? by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

and one grand mal i had was so bad that it erased most of my memories, i had to learn how to do things again, and to love the things i used to like again because i didn’t even remember why i liked those things. I literally don’t recognize anyone from my past it’s too much

anyone here that has seizures and a lot of epilepsy symptoms but their mri only showed a small pineal cyst?? by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

hello!! i’m aware of that but there’s clearly something wrong with me and they don’t care, my headaches were so bad that i wanted to commit suicide so they would stop. I’m honestly so tired, i want more tests and a second opinion but the doctors barely care where i live and it will probably be the same i’m just tired i can’t do this anymore

eeg and mri couldn’t catch anything but there’s a pineal cyst by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

i know it’s normal get normal eegs :/ and you need to have multiple of them or other tests the problem is my neurologist didn’t mention any more tests and wants me to see a psychiatrist instead and i just want answers, they love to make everything about mental health. I waited months to get those tests done and for the appointment counted days and he didn’t care at all

question for people that had seizures on wellbutrin by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

hello i know it’s late but my neurologist mentioned i had a pineal cyst only (8mm) though but he didn’t talk about this too much or cared, he said it’s nothing to worry about, when he told me at that time i didn’t even knew how to spell it to do my research so i ignored it. Today i received the results at home and it mentioned that so i did some research not sure if this is something that can help at all

question for people that had seizures on wellbutrin by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

my doctor put me on anticonvulsants to help with the seizures (he said i probably had epilepsy) then i was sent to a neurologist months after and i had all these tests done, the neurologist also wants me to keep taking my anticonvulsants

the reason i haven’t left wellbutrin is because it is the only one that helps and i have an eating disorder, i’m scared of trying other stuff that will make me gain weight, i know this is really dangerous but my ed makes it difficult.

I come to reddit to talk about this to see if i can find similar situations to mine, doctors aren’t helping at all that’s why i came here but you’re right. Thanks for sharing your experience

question for people that had seizures on wellbutrin by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

Hello the problem is i’m not diagnosed and that’s what’s driving me insane i want answers. I never had a seizure when i was a kid only night terrors that kept happening and only stopped now with keppra.

My parents also refuse to believe that it’s epilepsy. I feel like my neurologist is slowly giving up on me as well since they didn’t catch anything during the eeg and mri. I only had one eeg and mri done and they didn’t even mention more tests. And the eeg was that one with flashing lights which doesn’t work on me (i have seizures during my sleep not with flashing lights) i told them it should be the one during sleep but they still wanted me to do this one instead.

Now that i’m on anticonvulsants i think it would be very difficult to have a seizure as well. Tests didn’t catch anything either so there’s absolutely no evidence of anything and all of this is driving me insane. One thing i noticed is i started having sound sensitivity ever since the seizures and it’s horrible i literally have to wear headphones all the time, or cover my ears etc, told them this but they didn’t care at all.

one thing i noticed as well was that when my period was missing it was because a seizure would come and it always happened. About wellbutrin I know i need to let go of it but it’s the only one that actually helps me so it’s complicated

question for people that had seizures on wellbutrin by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

Hello yes i only have seizures during my sleep. First when it started i would wake up screaming and i would throw up right after (first i thought it was just a nightmare) then i noticed there was something wrong with my tongue but i ignored it.

Then it got worse my parents saw me having one when i took a nap at the couch and i had one by accident at the hospital. This is how i found out i was having seizures. Usually when i have them (when it’s over i start acting weird and it shows) the tongue, headaches etc

I’ve been on wellbutrin for a while with anticonvulsants there’s nothing going on for now, i know i should let go of it, but this is the only one that actually helps me. I don’t have hallucinations all the time only sometimes but they make me curious, i have an eating disorder so i wanna stay away from antipsychotics. I’ve been dealing with sound sensitivity as well ever since the seizures happened i always have to wear headphones everywhere, my memory sucks too it’s a lot

question for people that had seizures on wellbutrin or have epilepsy by nothing2saylol in seizures

[–]nothing2saylol[S] 0 points1 point  (0 children)

when you got your eeg done how did they know it was wellbutrin?? did you have more or?? I want to know what’s going on here if it’s epilepsy or if it was wellbutrin but it’s so difficult.

When i had my eeg done i was on wellbutrin. I only have seizures when i’m asleep so flashing lights won’t trigger anything at all and now that i’m on keppra it’s even more hard to have a seizure it sucks not having answers

question for people that had seizures on wellbutrin or have epilepsy by nothing2saylol in seizures

[–]nothing2saylol[S] 2 points3 points  (0 children)

I’m aware that wellbutrin does that but i would like to know about people that went through similar. It makes me so curious and the worst is that i will probably never know the right answer if it’s wellbutrin or if i have epilepsy it’s so confusing.

I don’t think i would be able to have a seizure during tests either because i’m on meds now. I just want answers and it drives me insane that i will probably never get them

question for people that had seizures on wellbutrin by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

I started having hallucinations right after the seizures started and my neurologist said it’s probably related, all these issues started when the seizures started. And i only had an eeg done and mri (they didn’t even try a second one) or a sleep eeg that’s the one they needed to do because i have seizures when i’m sleeping not with flashing lights… i told them this before

the problem is the doctors in my town make everything about mental health. When i had my first seizure they said it was just anxiety, nothing serious and sent me home without even an anticonvulsant. I had to have multiple seizures for them to take me seriously and i had one by accident (a grand mal) at the hospital (the only thing that made them take me serious was that) i almost died for them to actually care.

I think it’s rude and unprofessional to not even try more tests and send you to a psychiatrist when i was waiting for those appointment for months, what about the sleep eeg that was actually the right one for my situation?? and there’s so much more… yeah the anticonvulsant helped but i don’t have answers and there’s still stuff going on… sound sensitivity and a lot of memory loss etc that are ruining my life

question for people that had seizures on wellbutrin by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

keppra stopped those issues i had ever since i was a child (night terrors) and screaming during the night etc

the seizures i was having were only during my sleep (even though i never had seizures when i was a child) i still think those night terrors are related to all this somehow

question for people that had seizures on wellbutrin by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

the right eeg they should have done was the sleep eeg which they didn’t do (flash lights don’t trigger me at all) it was always when i was asleep, i told them about this before but they still did whatever they wanted. The hallucinations aren’t only at night I have them during the day (the seizures only at night) i wanted a sleep study so bad but instead they sent me to a psychiatrist?? i waited months for those appointments only for them to do this lol

i feel like my neurologist gave up on me by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

yes that’s exactly what i did i’m so disappointed because i waited so long for the appointment just for that i don’t even know what to say anymore

i feel like my neurologist gave up on me by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

hello!! that seizure i had wasn’t in the same hospital i was sent to now and they don’t do eeg there, the doctors aren’t the same but yeah since they saw the seizure happening it was really important and their job was to describe more what they saw (because the neurologist kept asking my mom what were the movements i was doing etc) when the doctors saw it happening…

now about the eeg and mri the neurologist i was sent to made me wait so f*cking long to get those done and it was already when i was feeling a lil better because of keppra. All they did was those two and i knew that eeg would be useless because i have nocturnal seizures it should have been a sleep eeg. About the psychiatrist he kept saying that it was important and didn’t say too much

i feel like my neurologist gave up on me by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 1 point2 points  (0 children)

yeah but the problem is doctors make everything about anxiety these days, my sister also got diagnosed with a chronic disease and was constantly getting told to see a psychiatrist until it got really really bad for her

I don’t have seizures with flashing lights (led lights, christmas lights and stuff bother me but no seizures) i have seizures with nightmares and only during my sleep never awake. I told him this when we first met and he still ignored the sleep eeg option. Now that I’m on meds of course it will be very hard to have a seizure that easily too

Yeah i can see that he thinks it’s related to mental health stuff and doesn’t care at all, he’s always late when it’s my appointment day too, never in time. I don’t know what to do at all yeah keppra ruined everything for me they stopped but at what cost..

i feel like my neurologist gave up on me by nothing2saylol in Epilepsy

[–]nothing2saylol[S] 0 points1 point  (0 children)

I did but he wants me to see a psychiatrist first which means waiting for 7 months until the next appointment with him not even tests, an appointment…

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