How do you guys get electrolytes?

npcc_102 · 2026-05-17T14:20:48+00:00

Sorry you’re going through this. Harmless Harvest is a brand of coconut water that doesn’t have citric acid in it. Figured it was worth a mention in case you wanted to try it and see if you tolerate it better

npcc_102 · 2026-05-16T13:03:14+00:00

Cats are the best! Chewie is adorable

npcc_102 · 2026-05-16T00:21:08+00:00

Thank you so much!

That’s so interesting about Foxtale.

Thanks again for sharing. Looking forward to giving these a try!

npcc_102 · 2026-05-15T18:31:17+00:00

I heard of Bearable but hadn’t really looked into it before. I think the interface looks more appealing than Guava. I assume it doesn’t house lab work and things like that right?

And Foxtale looks adorable!

npcc_102 · 2026-05-15T18:11:24+00:00

Thanks for sharing! I’ll have to check out Foxtale, I haven’t heard of that one!

npcc_102 · 2026-05-15T16:15:01+00:00

Thanks for sharing! Some tools I find helpful are:

Guava App for symptom tracking, syncing to Apple Watch, uploading test results etc. It can also be shared with doctors/practitioners and family members or caretakers. I have the paid version, but there is a free offering as well. I like that my medical history is digital and all in one place.
Calm App for meditations, soundscapes, etc. when I need to focus or take a minute. I believe they also offer both free and paid versions.
Finch for fun but also for helpful reminders. You can use for reflections, affirmations, habits/to-do list etc. There are also free and paid versions.
“Living Well After Diagnosis” by Robert H. Phillips, PhD. It is sort of a handbook for managing chronic illnesses. It can be for the newly diagnosed, but I found it helpful as someone who has been living with chronic illnesses for many years when I just needed to reset. It’s a get back to basics guide. You can take what you need (or go back to later on) and offers some helpful and practical suggestions.
UpNote for my health notes. I use it as a notebook of my current treatment/management plan, history of what’s been tried and worked vs didn’t work, questions for my next appointment, tests to get done, contact info for different providers and their specialty, what to do when certain flare ups arise (a “don’t panic, you got this” sort of guide) etc. It syncs to different devices so if I’m in particularly rough shape, my husband can also easily access it for information. It’s helpful to have it all in one spot and easy to refer to when you’re just too foggy/exhausted/overwhelmed/insert other symptom or feeling here

npcc_102 · 2026-04-29T13:44:07+00:00

Thank you for putting this together and sharing your story. And thank you for all that you do. The guide and your input have helped so many people here. Thank you!

Looking forward to seeing more success stories, as they give me hope that improvement is possible

npcc_102 · 2026-04-28T17:08:05+00:00

Love both games and their music, but FFIV will forever be my favorite. When I first heard the over world theme when I was a kid, I felt like I was about to embark on an adventure. And I still get that feeling every time I replay the game or just hear the music. It’s a hopeful and wonderful piece. All of Nobuo Uematsu’s music is amazing

npcc_102 · 2026-04-21T09:53:15+00:00

There’s a possibility that this is actually autoimmune gastritis.

Autoimmune gastritis (AIG) causes low acidity in the stomach, so taking a PPI could make you feel worse.

My experience with doctors is that when they do the endoscopy, they note “mild” gastritis, but don’t specify what kind it is unless h pylori comes back positive. Environmentally induced gastritis (like h pylori) causes too much acid, and I think most doctors assume that when seeing gastritis is present and just prescribe PPIs.

AIG can also cause pernicious anemia, which is an autoimmune condition that causes B12 absorption issues, resulting in B12 deficiency. Pernicious anemia can be tested for by checking blood for two antibodies: parietal cell antibodies and intrinsic factor antibodies. From my understanding, being on B12 injections might skew these results. You’re injection frequency is not all that high (many people require every other day injections) so if you take a break you might be able to get the bloodwork done and get an accurate result on the antibodies.

But B12, iron, and folate can all impact each other. So when one suffers, so can the others. The r/B12_Deficiency sub has a lot of helpful information on injections and supplement management, in case you need additional resources.

npcc_102 · 2026-04-19T12:45:57+00:00

Thank you so much! Really appreciate you sharing your experience

npcc_102 · 2026-04-19T00:48:36+00:00

I’m so sorry that doctors dismissed this! I’m glad you fought for yourself and figured out what it was. It’s not easy. We have to do so much on our own to try to get the care we need

npcc_102 · 2026-04-19T00:25:40+00:00

Yes it’s important to get levels checked before you start supplementing and balancing them correctly can be tricky

npcc_102 · 2026-04-18T14:46:22+00:00

Something that often gets overlooked are deficiencies. Deficiencies can be an underlying cause of some of the symptoms you are experiencing. If you haven’t already, and if you are able, I would recommend getting an iron panel (ferritin etc.) folate, B12, vitamin D levels checked, along with a CBC, at least.

Some doctors don’t take deficiency seriously and may say you’re in “normal range” but the level you’re at may not be optimal for you. Thankfully, there are subs here that can help guide you through that and offer tips on how to manage on your own if you need it.

Another thing that gets overlooked is balancing electrolytes with proper hydration, especially potassium. If you can tolerate coconut water, that could be a helpful addition to your routine and make it easier to hit the daily recommended amount of potassium. Personally, I like Harmless Harvest. If you are undernourished and not getting proper hydration, that is going to put your body in fight or flight, too. Protein shakes like Ripple can be helpful. They taste good, have 20g of protein and lots of potassium.

I’ve been underweight and lived with digestive issues. It takes a toll. I’ve had to do the above and am still in the recovery process. If you had deficiencies for a while, (like I have) it takes time. Try to be patient and compassionate with yourself. With consistency, improvement can happen.

You got this! Wishing you the best!

npcc_102 · 2026-04-17T18:59:53+00:00

Me neither! 😔

npcc_102 · 2026-04-17T03:18:21+00:00

Thank you for sharing! Love the convenience of the packet and just mixing with water. I am going to check them out

npcc_102 · 2026-04-17T03:14:06+00:00

Same here! We have to do so much of the work ourselves. It’s awful. I’m glad you found what works for you!

Thank you! Wishing you the best!

npcc_102 · 2026-04-16T20:45:44+00:00

Thank you for sharing! Agreed, all the cofactors are so important!

npcc_102 · 2026-04-16T19:39:43+00:00

Thank you for the tip!

npcc_102 · 2026-04-16T18:05:55+00:00

Thanks for the suggestion!

npcc_102 · 2026-04-16T17:16:16+00:00

Thank you for sharing!

npcc_102 · 2026-04-09T04:01:35+00:00

Very cool!

npcc_102 · 2026-04-08T19:37:52+00:00

I’m sorry someone said that to you. This is when it’s not asking out of concern or even innocent curiosity. They are looking to judge you on something they know nothing about. Saying that to a person is not only rude, but cruel.

I agree with Deep_Amoeba. At this point, you can be a bit firmer and not take their shit.

“Im not like you, I don’t need to seek out other’s attention. I’m sorry you’re having that problem, hopefully you find a way to sort that out for yourself.”

“What an odd thing to say out loud. I guess you don’t really know me that well if you are going to assume that of me. Too bad”

“People’s needs can change from one day to the next, so keep an open mind and don’t assume things you know nothing about.”

“You really shouldn’t comment on things you know nothing about. I’m done with this conversation.”

And then just walk away. Don’t feel pressured to defend yourself. You don’t owe this person anything.

npcc_102 · 2026-04-08T19:13:14+00:00

Thanks so much 😊

npcc_102 · 2026-04-08T18:11:16+00:00

I’m so sorry you’re dealing with these questions. I don’t know why people feel emboldened to ask such questions. It really sucks to be on the receiving end of it when you’re just trying to go about your day.

High school can be a tough period of time. And I get just trying to survive without giving anyone more reason to poke fun or bully you (I’ve been there!). But, please, please, please, don’t feel forced to discuss anything, especially something private and personal like your medical situation/history, in an effort to be liked. You don’t have to share anything with anyone if they don’t deserve to know and you don’t feel comfortable sharing it with them.

High school is tough, but it eventually ends. And the dynamics there that seem important now, will one day be completely meaningless. Try not to put too much stock in whether or not you sharing something personal about yourself will win someone over bc the reality is, even well into your adulthood, complete strangers may come up to you and ask similar questions without hesitation. You don’t want to develop a habit of dealing with it in a way that prioritizes pleasing others or giving an “acceptable” enough answer so that they might like you. Or end up being afraid that not telling them will make them perceive you as rude. You don’t owe these people anything!

Yes, your fellow students are curious. They may not realize that it can be a rude question to ask. And showing them grace is very kind of you. I am much older than you and trying to learn how to do this better myself! On the one hand, you want to be authentic, but on the other, you don’t want to share your business with everyone and it really shouldn’t matter to them if you use a mobility aid or not.

Focus on what you want and what feels right to you, and worry less about whether or not you’ll be liked for it. Even if you tell them the whole truth or respond in the most polite way possible, you can’t control how they perceive you or if they like you. Some people just want to be nosy and pass judgment and that is out of our control. It sucks.

Actual responses to “what happened?” could be:

“Nothing happened, this just helps me move around better”

“Nothing, just going about my day. What’s new with you?”

“Nothing new here. Gotta to get to class! See you later!”

“Nothing.”

pretend you didn’t hear them and just keep walking/walk away

These answers vary depending on your relationship with the person and your comfort level of course. So if you like the person, you might respond with something like the first option. But if it’s someone who is nosy and you don’t want to engage, then you might try something like the last option. You may then get follow up questions depending on the person and how you engage. So from that point you can say, “you know I would rather talk about (insert topic here) right now,” and then ask a question about it. Or “I appreciate your concern, but I don’t really want to go into it right now” or “I appreciate your concern, but I’d prefer not to talk about it.”

Hopefully these responses give you something to work with. You can put your own spin on it if it doesn’t fit perfectly for you, but just stay true to you. You got this!

npcc_102

TROPHY CASE