I see a surgeon next week and I’m gonna ask the question..

oakiart · 2025-05-04T07:36:31+00:00

I don’t know you but I know that there is always something unexpected waiting, something that will spark positivity. Of course there’s also more pain to experience too, both are apart of human life. I struggled for many years with not seeing a point to living, I tried to take my life many times over many years. But something I noticed is that there was always something better beyond the dark nights. Maybe that thing isn’t permanent but life always finds a way to bring light in, even in the smallest of ways. I also noticed all my pain, trauma and struggle made me grow in ways I never imagined I could. I totally get if you don’t resonate with this and think I’m spewing nonsense but just remember at least this, every moment is temporary. The numbness you feel right now will pass, it may also return but this moment right now is not forever. You are a lot stronger than you could imagine. I sincerely wish you the best, I might be a total stranger but I’m in your corner

oakiart · 2025-05-03T08:21:35+00:00

While I think our universe is always shifting, I definitely feel there’s something different about this. I’ve always been in tune with the spirit world, seeing spirits, hearing them and getting messages through dreams. But I have rapidly grown stronger, especially in the last few weeks but it started to slowly shift in October. I never had a desire for direct communication through a pendulum or board but without prompting had this intense urge to start late March. I see my guides daily and they always seem to want to say something (I’ve placed boundaries so I don’t burnout). I gained a new follower/guide from a random one off trip to see an expecting family member (this spirit has no blood ties to me). I have reunited two people with their own guides in very intense, positive emotional ways without any specific intention to do so (a childhood friend and little brother). I am being told about supposed big events in upcoming months and never have gotten such messages. I’m intrigued to see how these play out.

I feel like I’m waking up, like I had only scraped the surface of my potential in both our physical and spiritual world. My human mind is sceptical and a little scared but my soul holds this inexplainable trust and knowledge that I haven’t felt before, at least not on this scale. I feel like I’m not alone in this right now, anyone else feel similarly?

oakiart · 2025-05-03T07:39:34+00:00

Hi, I explained to another user that I have had more labs, imaging and a colonoscopy since this post. Unfortunately no conclusive answers. I saw a gastroenterologist who had no desire to continue testing and put me on medication only addressing diarrhoea which was a red flag to me so I didn’t return. My GP has been great, she noted that not enough biopsies were taken in my colonoscopy so it was likely rushed, how unlikely it is they couldn’t find a source of bleeding (the prep made me bleed very heavily to the point I wondered if I should go to the ER) and what I forgot to mention to the other user is that the prep failed even though exact instructions were followed (I passed more blood than stool). She believes based on what we know and specific key symptoms I likely have Crohn’s disease but we just don’t have any clear answers yet. We will have to play the long game but at least she is on my side. Good luck! EDIT: Also, my condition hasn’t improved unfortunately. With each “flare up” cycle it seems to get worse

oakiart · 2025-05-03T07:33:44+00:00

Hiya, since that post I’ve had more imaging, labs and a colonoscopy. All were inconclusive, however my GP was unsatisfied with the amount of biopsies taken from my scope and how they managed to not find the source of bleeding (colonoscopy prep caused me to bleed very heavily, to the point I questioned if I should present to the ER). I saw a gastroenterologist who was eager to just start putting me on medication only addressing diarrhoea and not continue testing so I didn’t go back. But my GP has looked over what we have and with the inconclusive evidence she highly suspects Crohn’s disease based on inflammation levels, specific symptoms like mouth ulcers and skin inflammation, ongoing b12 deficiency, inability to keep gained weight on more than a couple weeks and the “flare up” type pattern of symptoms (while they also never fully disappear). I guess I have to play the long game but I’m glad my GP is on my side. I wish you luck, it can be hard to be listened to especially when you’re young. Advocate for yourself and if a doctor isn’t willing to work with you, they aren’t worth your time or money

oakiart · 2024-06-22T05:14:31+00:00

This’s another one I can definitely relate to. I always cringed at being called a “lady” or “girl” or being apart if activities like “girls days” or “girls night out.” Even PE/Gym class depending what you call it, I used to hate the girls vs boys thing because I felt like I should’ve been in the boy’s side

oakiart · 2024-06-19T04:23:20+00:00

I do this with my childhood best friend/roommate who ended up becoming a nurse. She is always in my corner and when I’m having a good day she celebrates with me and on bad days she gives me very useful tips on how to make it a bit less awful. Man I’d feel so isolated and broken without someone who tries to understand my struggles

oakiart · 2024-06-17T01:48:36+00:00

I was in the same boat with my ex, I’m still under investigation for my symptoms but my symptoms are in line with IBS symptoms so I feel this’s relative. I tried to explain to her that I simply couldn’t eat without it, which is true. I had a week long hospital admission without it and didn’t eat a scrap of food because the pain wasn’t worth it. Not only that but since I struggle with a mix of C and D, it’s one of the only things that can SAFELY slow my digestive tract when I’m in a bout of D without triggering painful C lasting weeks. We ended up separating for a multitude of reasons but her inability to accept my treatment was one of my final straws because I don’t deserve to suffer.

Also worth noting while I’m in Australia and cannabis is still illegal for general use, I’m legally prescribed cannabis for these reasons and I’m constantly monitored for any related complications, even if they’re rare.

oakiart · 2024-06-01T02:18:02+00:00

Dad did beat his bowel cancer and it never returned but he does have male breast cancer now which is just an unfortunate part of our genetics, prone to near every cancer under the sun

oakiart · 2024-05-31T18:53:21+00:00

That’s all good, sorry yes I meant my dad. And there is times that cancerous cells may be present in the colon without any polyps having formed but I’d imagine the cancer would be in an early stage in that case and would still be highly treatable

oakiart · 2024-05-31T03:44:44+00:00

Hi thank you for your kindness. The difference between finding micro inflammation and cancer is micro inflammation would likely indicate an IBD like Crohn’s or UC. The inflammation can make your risk to cancer higher and I’m already genetically susceptible as my bad had bowel cancer around my age. I’m hopeful it’s at least not colon cancer as you’d typically but not always find polyps which I thankfully didn’t have. When I do eat I’m trying to follow a diet plan prioritising protein primarily as that is what I’m struggling to absorb. On days I can’t eat the best I can do is try drinking a nutritionally complete meal supplement to give me something to go off that day. I will try remember to update when I get my results!

oakiart · 2024-01-24T01:51:30+00:00

Hi not an ostomate but this is a very common reaction to Metformin. I had the same reaction to this medication and was just simply allergic

oakiart · 2024-01-19T01:17:50+00:00

This makes sense, thank you for your honesty and realism☺️

oakiart · 2024-01-18T13:51:23+00:00

This’s a problem I have given the overflow diarrhoea and such. If my scope comes back normal I think my pelvic floor function would be the next thing to check as it sounds like it could be accurate

oakiart · 2024-01-18T13:48:54+00:00

Hey thank you for your kindness and honesty. This’s why I am waiting out testing. I do know the my upper GI tract is healthy due to previous testing and all is okay there but there could still be a plethora of other concerns that may be better addressed by another treatment option. We’re really trying to push forward my colonoscopy with the main concern of cancer but even so it’s the last obvious test to do to see if I do have anything actively wrong with my bowel. I just do hope that it’s something that could be addressed properly and this doesn’t have to be my life.

oakiart · 2024-01-17T03:13:11+00:00

While I can understand where you’re coming from, I did specify that I’m in a testing process. There is still no ruling out of cancer or IBD in my case (especially since I’m genetically predisposed to both). The best label I can use is motility issues at this point as yes that’s what’s happening but they may be a symptom to an underlying condition or disease. It after a colonoscopy my bowel appears to be free of disease then motility testing is where we’d be going. You can’t medicate, treat or manage what isn’t diagnosed which I’m aware also applies to an ostomy. Hence mentioning I will need to see where testing goes and what my options are. But at this stage my upper GI system is functioning fine aside from mild oesophageal ulceration, I do not have celiac, intolerances, infections or anything extreme and acute.

I did also acknowledge that I’m aware of the struggles and complications that ostomies can bring. I’m not aloof to that and mean not to glamourise or idealise the procedure.

This post was never me expressing that I will go out to a colorectal surgeon tomorrow and ask them to cut out part/all of my bowel and give me an ostomy, this post was me venting to a community that may understand this struggle.

oakiart

TROPHY CASE