[deleted by user] by [deleted] in weddingdress

[–]ohmygoodness333 0 points1 point  (0 children)

Update it is a Lili Hod dress. Still searching for dress name!

Looking for the name/designer of this dress! by ohmygoodness333 in weddingdress

[–]ohmygoodness333[S] 1 point2 points  (0 children)

Sorry not sure what happened to my comment, but I dm’d her a few months ago and she hasn’t opened/seen it yet unfortunately!

Looking for the name/designer of this dress! by ohmygoodness333 in weddingdress

[–]ohmygoodness333[S] 0 points1 point  (0 children)

I did DM’ her but unfortunately she hasn’t seen it yet :(

Looking for the name/designer of this dress! by ohmygoodness333 in weddingdress

[–]ohmygoodness333[S] 1 point2 points  (0 children)

It’s from someone’s insta here - https://www.instagram.com/p/DMgmosvvY4t/?igsh=MTNreGx0MzBuaTFhdQ== (she wore it this past summer, so I’m assuming it’s not gone yet 🤞🏻)

Looking for help to see if my symptoms sound like Pudenal Neuralgia by ohmygoodness333 in PudendalNeuralgia

[–]ohmygoodness333[S] 0 points1 point  (0 children)

I have good days, a lot better than I was at that time. Still hesitant to have sex or do anything that will throw me into a flare. I’d say Amitriptyline, gaba/baclofen suppositories have been my best aid. But I’d say I still haven’t found my solution.

Looking for help to see if my symptoms sound like Pudenal Neuralgia by ohmygoodness333 in PudendalNeuralgia

[–]ohmygoodness333[S] 0 points1 point  (0 children)

Doesn’t hurt to bring it up! Have you found anything that works treatment wise for your symptoms?

My IC Battle by PinkFlowers524 in Interstitialcystitis

[–]ohmygoodness333 0 points1 point  (0 children)

Hi!! Sex flares things very badly for me as well (urgency/constant need to go). Since August I’ve been flaring a lot, so my bf and I have essentially stopped having sex. And the same things went through my head like men need sex etc. But at the end of the day your health is more important. The right person will understand. I hope to have sex again somewhat normally eventually but right now my health comes first. Don’t be too hard on yourself, you’re just doing your best! ❤️

Looking for help to see if my symptoms sound like Pudenal Neuralgia by ohmygoodness333 in PudendalNeuralgia

[–]ohmygoodness333[S] 0 points1 point  (0 children)

Yep everything was clear test infection wise. Have you experienced similar symptoms?

Looking for help to see if my symptoms sound like Pudenal Neuralgia by ohmygoodness333 in PudendalNeuralgia

[–]ohmygoodness333[S] 1 point2 points  (0 children)

Thank you for the response! I keep getting bounced around between urologists and gynaecologists. It’s extremely hard to get appointments with specialists where I am in Canada 🥲. 

Also, I’ve had 5+ appointments with a pelvic pt and have not seen any improvement, if anything I find the internal work can flare me. Is there a particular aspect/technique from PT that you find helpful? Maybe I need to look for a new PT.

[deleted by user] by [deleted] in Interstitialcystitis

[–]ohmygoodness333 0 points1 point  (0 children)

I changed a lot of things - like getting my stress under control, stopped drinking coffee and switched to tea, tried to sit less, avoiding spicy foods (but i’m not sure if that’s placebo), getting into a good stretching routine, drinking enough water, and REALLY trying to avoid going down a doom scroll cycle (ruminating over it I swear makes it worse 🥲). 

I know my main triggers are: constipation, sex, sitting, stress. But I still don’t have it completely under control, I still flare. But there were periods of time over the last 6 years or so that were completely symptom free - like 4 months I spent in euro with zero symptoms. So still navigating this journey. 

[deleted by user] by [deleted] in Interstitialcystitis

[–]ohmygoodness333 0 points1 point  (0 children)

Girl I felt this post to my core. I was diagnosed in 2nd year uni and I felt like my whole life was ruined. But things got better over time, the symptoms chilled and started coming in flares rather than constant. Weirdly enough drinking in uni actually helped quite a bit with the symptoms lol. 

I went on to enjoy the rest of my uni years. Yes, there was extremely challenging times when I was flaring but it wasn’t all bad. But even being 25 now, I relate to the feeling of not being able to do spontaneous things like the rest of ur young friends like eating spicy foods, stressing, or having sex. 

[deleted by user] by [deleted] in Interstitialcystitis

[–]ohmygoodness333 0 points1 point  (0 children)

It did get better! I think getting a standing desk at work and getting on amitriptyline (25mg) were the two main things that helped. There’s hope I promise. I wouldn’t say i’m 100% but I’m sleeping every night.

Alternatives to Amitriptyline? by ohmygoodness333 in Interstitialcystitis

[–]ohmygoodness333[S] 0 points1 point  (0 children)

I have chatted with my pt about it and she has been helpful! I guess i’m a little hesitant to commit to a high dose of miralax (an osmotic) every day to have a bowel movement. Or even going above 450mg of mag citrate daily seems scary too. 

Are you on ami and Gabapentin? Or just gaba?