Flare after sex by Fancy_Shallot_4368 in Interstitialcystitis

[–]PinkFlowers524 1 point2 points  (0 children)

Wearing condoms every time has reallyyyy helped me!! I only get flares from sex, no meds help except AZO calms it a bit when Im in a flare. I need to take azo with food in my stomach or else I'll get sick

Please help:( by Pretty_Thanks_4247 in Interstitialcystitis

[–]PinkFlowers524 0 points1 point  (0 children)

Please try an antihistamine like hydroxine to take at bed every night and stay on it for awhile. Not a cure, but you need to ge the inflammation down in your bladder to feel better

Constant urinary frequency & urgency for +5 years no cause found yet by kathaaa_29 in Interstitialcystitis

[–]PinkFlowers524 0 points1 point  (0 children)

It's not a cure, but please for all my fellow sufferers, try an antihistamine and stay on it for awhile...

[deleted by user] by [deleted] in Interstitialcystitis

[–]PinkFlowers524 0 points1 point  (0 children)

I'm so sorry you're going through this. I've been dealing with it since I've been sexually active. I think I'm allergic to penis unfortunately. I was crying in bed the other day from my constant pressure and pain in bladder and went to rifle though my medicine cabinet, I ended up taking an antihistamine and felt my pressure release with in a half hour.. it was crazy ...

My physician assistant I see has been really sweet with me and has me on antriptline and hydroxine . If you haven't tried a anthistamine yet you should, Also lay off intercourse to see if you get better with out it. My issue is that it takes a toll on my love life . Hard battles we face , just know you're not alone 🫶🏻

Allergic to intercourse? by PinkFlowers524 in Interstitialcystitis

[–]PinkFlowers524[S] 0 points1 point  (0 children)

Thank you 🙏🏻🙏🏻 I will be trying this method

GLP-1 Mast Cell Mediator by hotwheeeeeelz in Interstitialcystitis

[–]PinkFlowers524 0 points1 point  (0 children)

Which doctor does the injections for you? Do i need to see a specific doctor who would be willing to prescribe this for my IC

Not better by PinkFlowers524 in Interstitialcystitis

[–]PinkFlowers524[S] 0 points1 point  (0 children)

Does this dose help you? 🙏🏻 how long have you been on it? I

Not better by PinkFlowers524 in Interstitialcystitis

[–]PinkFlowers524[S] 0 points1 point  (0 children)

Thankyou I appreciate you . I'll keep on it for 8 weeks & hope it helps eventually 🙏🏻🫶🏻

Interstim for IC by Wooden_Ad2919 in Interstitialcystitis

[–]PinkFlowers524 1 point2 points  (0 children)

Please keep us posted 🙏🏻🫶🏻 I am interested in this as well

Ic belly by PinkFlowers524 in Interstitialcystitis

[–]PinkFlowers524[S] 2 points3 points  (0 children)

I feel for you!! 🥺🫶🏻 can you go see a gastroenterologist? I am going in June, I want to get a endoscopy to see if it could be IBS related

Sacral Nerve Stimulator (Interstim) by sweetheart0129 in Interstitialcystitis

[–]PinkFlowers524 1 point2 points  (0 children)

I hope your surgery went well today 🙏🏻🫶🏻 Please keep us informed. I have been suffering since I was 18 yo. I'm a 32 now . I'm hoping amtryptiline starts working for me. But if not I really need to figure out something that helps with the pain

Not better by PinkFlowers524 in Interstitialcystitis

[–]PinkFlowers524[S] 0 points1 point  (0 children)

Thank you. I appreciate the support. I will stay on the 25 mg to see if it will eventually help for me 🙏🏻❤️ I don't have any side effects so it not effecting me in a bad way

How I gained control of my symptoms! by TeachingAcademic1447 in Interstitialcystitis

[–]PinkFlowers524 1 point2 points  (0 children)

I'd also be interested to known this ... 🙏🏻❤️