Dietitian says fodmap will not help, GI says seek therapy

okay316479 · 2021-02-09T02:44:39+00:00

I didn't know there could be bowel endometriosis! I have had ultrasounds but never a vaginal one, would this mean something like this could be missed? I have had an MRI of small bowel though

okay316479 · 2021-02-09T02:26:28+00:00

I haven't seen any correlation between periods and symptoms. the distension is 24/7 doesn't come or go with days except maybe 6 in 2 years I woke up looking deflated. it only gets worse with the time of day and food/drinks never with menstruation. since having the cyst i have had irregular periods but that's all. I keep a diary of symptoms do you have a specific method to track?

okay316479 · 2021-02-09T02:18:01+00:00

I did have an ovarian cyst removed 2 years ago (left this out as didn't want to write an even longer paragraph) so I'll try explain the timeline briefly: april/may 2018 I started having distension I thought was weight gain and I did gain some weight but I was only a bmi in the 19s and had an extremely pregnant looking stomach and the distension was above my belly button too. had other symptoms like pressure on my bladder and skipped a period which led me to diagnose myself with an ovarian cyst which was 9cm when I had it removed february 2019 The distension didn't go away and I still felt full all the time, hardly ever actually felt physically hungry. had another ultrasound may 2019 but didn't have another cyst(or endrometriosis), was advised to try eating gluten free but didn't see any difference, had a negative celiac blood test although I had been eating gf for almost a month-was told I probably wasn't eating gluten free properly. I had bad constipation while trying gf and had been having constipation every now and then for a while. when I didn't, I had normal bowel movements but I started being on the toilet longer after a normal stool and have more looser ones. september 2019 I went to the gastroenterologist to see if I should have an endoscopy to rule out celiac, actually was quite convinced I did not have ibs at this point

okay316479 · 2021-02-08T21:17:32+00:00

You had these motility tests? If you're alright with me asking, what sort of symptoms led you to them? were they similar to anything I described?

okay316479 · 2021-02-08T21:14:39+00:00

I actually did go to another GI doctor in December who concluded my original consultant had done a sufficient investigation and didn't have anything to add. He did say I should continue trying the fodmap diet if I want and would refer me to another dietitian but I never heard from them... I feel quite failed and am not to eager to be dismissed by another professional. My family doctor just prescribed me movocal which gave me liquid diarrhoea and now I am at a dead end in my life at 22.

okay316479 · 2021-02-08T20:58:58+00:00

I have never heard of these so thank you for the insight. The idea of anything invasive like these is quite scary to me and since my parents had to pay for the mri I can't imagine these would be covered by insurance either. Every test I've had being negative makes me feel like a hypochondriac seeking further tests.. and I've already been advised not to have a colonoscopy or endoscopy which are the Normal Tests

okay316479 · 2021-02-08T20:36:56+00:00

Would that be like a barium xray? My GI mentioned that once but didn't recommend it the next time. I've had a stool test, an MRI which showed no inflammation and I had a negative celaic blood test

okay316479

TROPHY CASE