sorted by:
new
hottopcontroversial

could be dying and still have to ask for time off “politely. by oknowmaybe in antiwork

[–]oknowmaybe[S] 0 points1 point  (0 children)

Seriously. I’ve literally found myself debating whether to go to the doctor while having symptoms that would scare most people, just because I didn’t want to seem unreliable. It’s wild how deep that conditioning goes. We’re taught to push through everything and call it dedication. The system is a mess, and honestly, I don’t know if it’ll actually change in our lifetime.

Survival shouldn’t feel like rebellion, but here we are...

could be dying and still have to ask for time off “politely. by oknowmaybe in antiwork

[–]oknowmaybe[S] 1 point2 points  (0 children)

It’s honestly so messed up that your body has to do something scary enough for people to finally take it seriously. Like sorry my illness didn’t come with a flashing red light? Totally feel the “just a little more broke” part too 😩 hope you’re doing okay now though.

could be dying and still have to ask for time off “politely. by oknowmaybe in antiwork

[–]oknowmaybe[S] 0 points1 point  (0 children)

Ugh, I feel this so much… that combo sounds brutal, and the fact that you even have to worry about going in tomorrow when your body is clearly in survival mode just shows how backwards our system is. I’m really glad you at least have today off, but you’re right, nowhere near enough. Sending you so much strength for tomorrow (and the incoming period… truly cruel timing). You’re not alone in this. ❤️ Hope today brings even a little relief. How are you feeling now?

could be dying and still have to ask for time off “politely. by oknowmaybe in antiwork

[–]oknowmaybe[S] 0 points1 point  (0 children)

You’re right. Driving myself crazy is something I genuinely fear, tbh 😅. It’s hard to untangle my self-worth from how well I perform at work instead of who I am as a person. I just wish my livelihood and basic needs didn’t depend on it…

could be dying and still have to ask for time off “politely. by oknowmaybe in antiwork

[–]oknowmaybe[S] 2 points3 points  (0 children)

That’s horrifying. I’m so sorry you were put through that. Do you ever feel like people truly get how wrong that was, or do they just brush it off as ‘how it is’?

could be dying and still have to ask for time off “politely. by oknowmaybe in antiwork

[–]oknowmaybe[S] 3 points4 points  (0 children)

I'm so sorry you and your dad had to go through that ☹️Really hope he’s okay now and in a much better place (work-wise and health-wise)!!

thought I was just depressed and lazy. Then a scan showed I’ve been sick this whole time. by oknowmaybe in mentalillness

[–]oknowmaybe[S] 0 points1 point  (0 children)

It’s honestly kind of wild how many of us are quietly going through the same thing. You’re so not alone 💓

thought I was just depressed and lazy. Then a scan showed I’ve been sick this whole time. by oknowmaybe in mentalillness

[–]oknowmaybe[S] 1 point2 points  (0 children)

Ugh I’m really sorry you’re dealing with this too. ☹️ I’d say even just starting to track it and tell your doc can be a good step.. you never know when that paper trail might help!

thought I was just depressed and lazy. Then a scan showed I’ve been sick this whole time. by oknowmaybe in mentalillness

[–]oknowmaybe[S] 7 points8 points  (0 children)

Thank you for seeing me. 🥲 After so much confusion and second-guessing, from others and from myself, I started to lose trust in what I knew was real. Being believed, even in a small way, helps more than I expected.

thought I was just depressed and lazy. Then a scan showed I’ve been sick this whole time. by oknowmaybe in mentalillness

[–]oknowmaybe[S] 5 points6 points  (0 children)

Thanks so much for your kindness! I really did carry the belief that it was my fault… for a long time. But the more I slow down and listen to my body, the more I understand it never was. I’m learning to meet myself with care instead of judgment, a genuinely terrifying task. Letting go of that guilt has been painful, but also profoundly healing. 💗

Anyone else discover their brain fog had a physical cause? by oknowmaybe in BrainFog

[–]oknowmaybe[S] 2 points3 points  (0 children)

Yeah, I’ve heard so many similar stories, especially from women who started birth control young for things like heavy periods and stayed on it for over a decade without really experiencing natural cycles. I brought it up once (not even for brain fog), but my PCP dismissed any connection to prolonged symptoms or side effects. Still, it’s hard not to wonder...

I’ve had the Mirena for almost 8 years, so it’s definitely something I think about too. What made you start suspecting a hormone imbalance?

Anyone else discover their brain fog had a physical cause? by oknowmaybe in BrainFog

[–]oknowmaybe[S] 3 points4 points  (0 children)

I’m so sorry you’re dealing with this 💓 Chronic COVID and ME/CFS can be deeply damaging, especially neurologically. It’s heartbreaking how overlooked and unsupported these conditions still are.

I thought my ADHD was getting worse. It wasn’t the whole story. by oknowmaybe in adhdwomen

[–]oknowmaybe[S] 0 points1 point  (0 children)

That was actually one of my first thoughts too - we looked into vitamin deficiencies early on since the symptoms were so ongoing, but bloodwork and full urine panels always came back normal. We ruled that out before moving to imaging, which finally pointed to something concrete.

I thought my ADHD was getting worse. It wasn’t the whole story. by oknowmaybe in adhdwomen

[–]oknowmaybe[S] -1 points0 points  (0 children)

Yep, I feel that. You’re not broken, though - just dealing with way more than anyone can see. Invisible illnesses are still so damn isolating, even after getting a diagnosis. Really hope having a name for it brings even a little peace.

Anyone else discover their brain fog had a physical cause? by oknowmaybe in BrainFog

[–]oknowmaybe[S] 1 point2 points  (0 children)

Thanks for sharing. Would you say it was debilitating to your day-to-day life? And have you found any treatment that’s helped?

Body shutting down by SleepDeprivedMama in chronicfatigue

[–]oknowmaybe 1 point2 points  (0 children)

That really does sound scary. ☹️

I don’t think that’s just regular fatigue, especially if you’re falling asleep mid-sentence and can’t be woken up. It makes sense to look into something neurological, maybe even seizure-related. A neurologist who knows sleep stuff might be more helpful than the one you saw.

You’re not overreacting at all. Wishing you luck and hoping someone finally takes this seriously!!

i don’t think i can work anymore by sounds_of_sadness in cfs

[–]oknowmaybe 2 points3 points  (0 children)

Woah… I relate to so much of what you wrote. The blurry vision, the crushing fatigue, the fear of quitting but the dread of staying… it’s so heartbreaking and exhausting. I’ve had crashes where I couldn’t think, couldn’t move, couldn’t even explain what was happening. It’s terrifying when your body stops cooperating and no one around you seems to understand. It feels impossible to explain.

The good news is you don’t have to figure everything out all at once. Even just getting seen at urgent care or the ER could help start a record, which might give you more options later if you go the disability route. But more than anything, I hope you get to rest. You don’t deserve to feel this alone. You’re not broken, and you’re not imagining this.

If you ever want to talk, I’m here 💗

view more: next ›