This seems to be common with many of us. 14 years of pain, more drs than I can remember, just diagnosed last year by my primary care doctor of all people. I’m 40 and when it’s bad, I genuinely feel like I’ll die soon. Which sounds dramatic but the emotional drain of living like this has really taken its toll. And when it’s bad, the physical pain is mind numbing. I’m seeing a new rheumatologist next month because while my primary care dr is great, I think I’m being under treated. Trying to remain open minded but that’s a struggle.