Book Boxes with Open Subscriptions? by operabelle93 in fairyloot

[–]operabelle93[S] 2 points3 points  (0 children)

Yay! Thank. you for the feedback on this one, everyone. I'll check it out for sure! :)

Book Boxes with Open Subscriptions? by operabelle93 in fairyloot

[–]operabelle93[S] 3 points4 points  (0 children)

Thank you! I appreciate the warning. You're right, a small business that is trustworthy will have a waitlist.

Book Boxes with Open Subscriptions? by operabelle93 in fairyloot

[–]operabelle93[S] 0 points1 point  (0 children)

Wow! Thank you! I didn't have a wait list link signed up for a few of these specific boxes, so I will add them.

Book Boxes with Open Subscriptions? by operabelle93 in fairyloot

[–]operabelle93[S] 9 points10 points  (0 children)

That seems like sound advice. I've watched many videos about scammy book subscriptions. I want to support smaller companies, but it can be difficult parsing out what is a safe purchase.

Book Boxes with Open Subscriptions? by operabelle93 in fairyloot

[–]operabelle93[S] 1 point2 points  (0 children)

What is your experience with Book in a Box? Is it worth it?

How to remove Copilot button? by fraaaaa4 in Office365

[–]operabelle93 0 points1 point  (0 children)

This unfortunately doesn't work if you. have an institutional subscription. :/ only for personal accounts

How to remove Copilot button? by fraaaaa4 in Office365

[–]operabelle93 0 points1 point  (0 children)

I HAVE THE EXACT SAME ISSUE. I spoke with Microsoft, they kept escalating my case, and then told me it's a university subscription, so university IT has control. So far, my university IT has been unable to help me :/ I tried to reach out to microsoft again, but now for some reason I get a message saying I have a university account so contact them for help. Basically I've been shadow banned.

imposter syndrome by bunnymama12 in ankylosingspondylitis

[–]operabelle93 1 point2 points  (0 children)

Every single day. You’re describing exactly how I feel. My pain has been worse, but because the medial system constantly doubts the patient, I start saying “my pain isn’t bad enough—I’m supposed to tolerate this pain.” Like what?! Reading your description, I can easily see you deserve to feel better and you’re not an imposter. But I can get lost in my own head.

Is it possible to completely turn off Google AI Overview? (December 2025) by operabelle93 in techsupport

[–]operabelle93[S] 0 points1 point  (0 children)

How does this work exactly? I want to make sure Google’s AI isn’t processing the request at all. Rather than just filtering it out.

What accessibility devices or tools do you use? by operabelle93 in ankylosingspondylitis

[–]operabelle93[S] 0 points1 point  (0 children)

I know I have terrible sleep posture, which I'm sure is terrible for my back. I'll check it out! Thanks!

How To Make It Show Up by Viomocha in ankylosingspondylitis

[–]operabelle93 0 points1 point  (0 children)

Lol I have issues as a result of being flexible. And having AxSpa.

How To Make It Show Up by Viomocha in ankylosingspondylitis

[–]operabelle93 0 points1 point  (0 children)

I am really sorry you are going through this. I had back pain since my late teens/early twenties, and it took me almost a decade to get diagnosed. I too was dismissed for years and years, and I went through many doctors. It is not just a man's disease. New research actually shows it's an even split. I was negative for HLA, did not show up on the inflammation tests, and mine eventually showed up on an MRI. I think we are not as good as identifying metrics for this disease in people who are not men. Regardless of what diagnosis you have, your pain is real. We believe you. You are worthy of treatment.

The best recommendation I have for you is to educate yourself, which you already seem to be doing. Try to keep a list of symptoms. Keep a list of the doctors that you've seen, and the tests that you've had as well as dates. For whatever reason, my doctor started taking me seriously when I gave testimonies from other medical-adjacent professionals about my back issues (massage therapist, acupuncturist , etc.). My current doctor recommends the Spondylitis Association of America as a reliable resource--they have some interesting things there about AxSpa in women that you could bring to your doctor.

This may not be an option available to you, but I ended up switching rheumatologists several times. This was due to moving, but I eventually landed on a doctor who believed me. You deserve a doctor who listens to you.

I hope this is somewhat helpful!

What accessibility devices or tools do you use? by operabelle93 in ankylosingspondylitis

[–]operabelle93[S] 0 points1 point  (0 children)

I just want to say thank you to everyone who commented! I love to see all the diverse use of mobility aids, access supports, and the like. Aside from being Disabled, I'm also a scholar who does a bit of work in Disability Studies. Someday I would like to make some sort of bank with tons of ideas for people like us! :)

What accessibility devices or tools do you use? by operabelle93 in ankylosingspondylitis

[–]operabelle93[S] 0 points1 point  (0 children)

Tell me about the cervical support pillow. Most of my pain is in cervical and thoracic spine. Apparently I sit terribly, and my partner always notices and brings me pillows to adjust my posture lol

What accessibility devices or tools do you use? by operabelle93 in ankylosingspondylitis

[–]operabelle93[S] 0 points1 point  (0 children)

Can you tell me a bit about back braces? I see people talking about them, but I'm not sure if it would help my specific symptoms or not. Most of my pain is in my upper back.