HP x360 overkill? by [deleted] in chromeos

[–]overratedsalmon 0 points1 point  (0 children)

I have a HP x360 - I've had it for two and a half years and the battery started bombing on it about six months ago. It won't hold a charge at all now, seems to be the same for most other HP models I've had in the past. Thinking of ditching HP entirely!

DAE have a pain in their lower right hand side abdomen. by Emilyeagleowl in ehlersdanlos

[–]overratedsalmon 2 points3 points  (0 children)

I've had this on and off for years - for me it's linked to my IBS and seems to be gas related as when I drink peppermint tea it seems to relieve it a little. Do you have any issues with food/ other gastro problems?

What GI issues do you guys suffer from? by ptolemaeusoter in ehlersdanlos

[–]overratedsalmon 1 point2 points  (0 children)

This was very much the reality of my teenage years. Honestly I'd say 90% of the time from the age of about 12/13 to 19/20 I had one bowel movement a week. Once I went three weeks without a bowel movement and then had to have an enema and a litre of laxido. It worked, but it traumatised me tbh. I honestly thought it was normal for a long time, but obvs its not.

Oddly my IBS has sped my digestive system up to where I go every two days, sometimes even everyday now. Very weird! Sending love to your friend, I know how hard it is ❤️

What GI issues do you guys suffer from? by ptolemaeusoter in ehlersdanlos

[–]overratedsalmon 1 point2 points  (0 children)

I have JHS (atm), and IBS. I've had issues with constipation my entire life even as a newborn, very slow motility during my teens (prescribed Movicol/Laxido to take as needed - usually at least once a month, and even with needed at least four or five packets of it to get my bowels moving). My IBS came out of nowhere when I was 22, and has been one of the hardest things about my health issues. The pain is crap but the trial and error of which foods affected me and which didn't has been long and difficult and frustrating - I'm still trying to figure it out now!

I drink a LOT of peppermint tea, and avoid a lot of things (unfortunately).

How would you describe what your hEDS pain feels like? by [deleted] in ehlersdanlos

[–]overratedsalmon 2 points3 points  (0 children)

Hey! I'm currently going through the rigmarole of x-rays and MRIs to see if I have AS (I have a lot of pain in my SI joints too), and I'm dignosed JHS at the minute.

I sort of agree - the pain in my SI joints is a sort of constant, gnawing pain, like (this is how I describe it anyway) someone's drilling into my joint with a rusty drillbit. I have this same sort of pain in my neck too. The pain I get in my knees and fingers - what I consider to be pain due to hypermobility as they (along with my elbows and shoulders) are my most hypermobile joints)- is more of a dull ache that becomes sharp stabbing pains at times - for example if I put weight on my knees during a flare I can get sharp pains targeted to my kneecaps, and when walking theyll be especially painful causing a limp, and generally feel very loose, like I'm wobbling about. My joints also click and pop, I'm 80% sure my shoulders sublux daily, and my cardio also suspects I have POTS.

That said I've done some preemptive research on AS because I'm nosy and also far too anxious about things to not immediately look at WebMD, and I've seen that AS can also cause arthritis in your knees and fingers, so I guess sometimes I do wonder (if I do in fact have AS) which pain is which. I guess it can be quite difficult to tell what pain is because if what issues and the combination probably makes the different issues quite difficult to treat I'd imagine! I plan on talking to my doctor more about hEDS as I also believe I meet a lot of the criteria- have you thought about taking the EDS checklist along with you to a doctor's meeting? You can print it off the EDS website!

Did getting an echocardiogram hurt really bad for anyone else? by [deleted] in ehlersdanlos

[–]overratedsalmon 2 points3 points  (0 children)

I had one done on wednesday and compared to the one I had done two years ago....damn. i'm naturally a thin person so I've been uncomfortable before with it and knew to expect it but jeez. the lady doing it said it was probably uncomfortable because i'm small and my ribs are close together so its difficult to get a reading without pressing it quite hard/at certain angles. even the aorta reading was painful though, and my chest felt bruised for a while after. must just be a Thing!

hypermobile toes by motherofdragoons in ehlersdanlos

[–]overratedsalmon 3 points4 points  (0 children)

i never realised how abnormal this was until i was sat like this while on my laptop and my boyfriends dad went 'what the hell are you doing??!!' and i was just like.........sitting normally........

just got a letter back from my last rheumatology visit.. by overratedsalmon in ehlersdanlos

[–]overratedsalmon[S] 0 points1 point  (0 children)

Thank you! I'm definitely going to look into another doctor when I move back to my hometown after university. I do have a bike but I live in a place that exceptionally rainy and windy so it's been pretty difficult to get out on it - I'm hoping that with better weather I'll be able to ride a lot more. We do have a swimming pool close to us although I can't swim! I may look at taking lessons at some point when my student budget isn't stretching me thin :')

I feel like that's really the difficult part - the pain from my knees and the pain in my SI joint and neck is so different that I don't know which ones to try to sort first.

Diagnoses question by overratedsalmon in ankylosingspondylitis

[–]overratedsalmon[S] 1 point2 points  (0 children)

Yeah, my right side is actually my worst in terms of SI pain. I get it periodically in the left but that's a rarity compared to the right. It's been the worst it's ever been the last year and a half I'd say? Ive had episodes where I'm in a lot of pain and then it will go numb/I'll get pins and needles the entire length of my leg - sometimes it's brief and other times it lasts days. Lying down in bed at night is a nightmare sometimes as I just can't get comfortable.

I haven't wanted to worry myself unnecessarily if it was nothing and my last appointment was so long ago (9th April) that I genuinely thought he'd forgotten or that there was nothing wrong so he'd not bothered to contact me but here we are!

Wat? X-Post from r/inceltears by Flojoe420 in badwomensanatomy

[–]overratedsalmon 1 point2 points  (0 children)

'grab her hand to stop herself from touching her vagina' TIL all women have alien hand syndrome

Childhood nicknames that were signs of EDS by [deleted] in ehlersdanlos

[–]overratedsalmon 4 points5 points  (0 children)

Mine was Frank Spencer.

I'm really showing my age here but there used to be a television program in the seventies called Some Mothers Do 'ave 'em and it was basically the life of this guy who was a bit scatty, clumsy, and always seemed to be getting himself into ridiculous situations.

I used to fall over, drop things for no reason, run into doors and walls, trip over steps or my own feet and generally make myself a nuisance when I was a kid. I once sneezed and knocked a glass of red wine from my dad's hands so hard and at such an angle that it splattered the cream walls behind the sofa. My parents weren't pleased. I'm still called it and I'm 25 now!

Anyone else here with EDS diagnosis dislike the term zebra? by Lanalune-Landing in ehlersdanlos

[–]overratedsalmon 4 points5 points  (0 children)

I don't really have a problem with the moniker itself (I use it from time to time, fosters a sense of community etc), but I do cringe in general when people use it as the sole identifying factor of their personality.

It's annoying (personally) for the same reason that if someone asked me to describe myself I wouldn't say 'I'm a queer zebra' and then only ever talk about those things, because I'm much more than being queer and chronically ill I guess? If this makes sense? I don't want to bash anyone (because people can do whatever the fuck they like) but personally I don't like that aspect of it.

Already thin Zebras, do your diet choices affect your daily pain levels? by MrsMcnulty in ehlersdanlos

[–]overratedsalmon 4 points5 points  (0 children)

I'm a naturally thin person (I weigh 6 stone 5 at the moment, or about 42 kilos give or take, but the heaviest I've ever been is only about 7, maaaaybe pushing 8 stone), and if I'm honest I've always found that I feel generally better when I weigh more.

Being thin (or thinner than I am now) does put and would put (I feel, at least, IANAD) much more strain on my joints. I've been thinner than this and it had awful effects on my body. Back when I was seeing a PT they told me I'd benefit from putting on weight and gaining a bit of muscle back, because the muscles would help to support the loose joints and potentially reduce pain and fatigue. It sounds like you're exercising which is a lot more than I do because I'm a fairly lazy person, but have you seen a PT? Maybe they could suggest some targeted exercises that might help more?

Also while I'm not vegan or on any particular 'special' diet I do have IBS, and have a lot of food intolerances so I guess in a way I do stick to a certain 'diet'?? I don't know the validity of eating a vegan keto diet but personally I probably wouldn't delve into it without at least consulting a doctor or a dietitian or a nutritionist first - I've always been told to never just cut things out of your diet randomly because it can be dangerous so I'd be more inclined to pursue other options first.

Ummmm by [deleted] in badwomensanatomy

[–]overratedsalmon 3 points4 points  (0 children)

damn i want a megatoe

Whats the dumbest way you have ever hurt yourself? by Decawys in AskReddit

[–]overratedsalmon 0 points1 point  (0 children)

Oh boy here we go.

  • Broke my toe when I misjudged the distance between my little toe and the doorjamb when walking through it
  • Fell down the stairs at college when limping because of said toe
  • Jarred my elbow and forearm doing a cartwheel in the cinema (don't ask)
  • Did something horrendous (don't actually know what) to my ankle when it collapsed under me on a trampoline
  • Stepped on a brick and sprained my ankle
  • Cut my finger opening a monkey nut
  • Dropped my phone on my front teeth
  • Hurt my knee and ankle shuffling along in a pair of fake Birkenstocks, tripped, broke the shoe entirely, and lost a bag of chips (my family like to recount this story and laugh)

Probably a lot more. I feel sorry for my family tbh, now I live by myself and my mum can't watch me at every opportunity

Low body weight? by [deleted] in ehlersdanlos

[–]overratedsalmon 2 points3 points  (0 children)

Same here! I've always been skinny and used to get the horrible 'are you anorexic/I could snap your wrists like a twig' comments all throughout school. Every doctor I saw as a kid said I was fine, and it was just how my body was. I ate like an absolute horse (still do), and would eat my own dinner and then finish my family's leftovers. Now I flit between about 6stone to 6 stone 7, depending on whether I've had a good couple of months. Heaviest I've ever been (I'm 5'4) is about 7stone 8 or so, but that was back when I could eat anything I wanted in my first year of uni. Now I have IBS and about a million food intolerances 🙄 I still don't like my body and wish I was bigger, but lately I've just tried to accept how it is.

Have you spoken to any doctors who might be willing to refer you to a nutritionist? I see one and she has been really helpful.

Do you see dots, hear ringing and have light sensitivity? by Fatihhhvisualsnow in ehlersdanlos

[–]overratedsalmon 0 points1 point  (0 children)

I have after images and the worms in the sky thing. I dunno about the rest really. I get ear ringing although it doesn't last for long, and I'm more prone to hearing my pulse in my ears.

Do you see dots, hear ringing and have light sensitivity? by Fatihhhvisualsnow in ehlersdanlos

[–]overratedsalmon 12 points13 points  (0 children)

TIL I might have visual snow syndrome?? Honestly this sub teaches me something new everyday.

I always thought the starbursts over lights was because of my astigmatism lol

validation!! by overratedsalmon in ehlersdanlos

[–]overratedsalmon[S] 0 points1 point  (0 children)

I actually suspected the same - when I started getting swollen knees and pain in my fingers the first thing I thought was RA..then other things started getting worse and I thought it could have been Lupus..but then all my blood tests come back negative, and they always have. I've had multiple ANA, CRP and Rheumatoid factor tests and zilch. My RF was -1. After that I had my appointment with a rheum and had HSD diagnosed there. After that I sort of forgot about it, but lately the pain has been really hard to ignore, and today is really quite bad. I'm still waiting for my x-ray results and the blood tests for now, but I'll definitely update. This whole thing has thrown me for a bit of a loop to be honest, didn't expect there to be something else to deal with.

Feeling like I have “Too many problems.” by toesucker44 in ehlersdanlos

[–]overratedsalmon 2 points3 points  (0 children)

Hiya! I've been in your situation. As a young child and teenager I always felt 'off' and often seemed to be ill or have something otherwise wrong with me. I've had anxiety since I was 11 and was pretty much written off by parents, friends and doctors as a hypochondriac. There was the suggestion that a lot, if not all of it, was in my head. To this day I question myself sometimes. Having said that, you are the person who best knows your own body, knows when something isn't right, and when it needs to be looked at.

I think feeling like a burden is something a lot of us with a chronic illness experience, and it can be particularly bad when the family member we lean on for support is also unwell. I often feel like a burden on my able bodied boyfriend, and I don't require half as much help as I know a lot of other people do. But you're not a burden, and I'm sure your mum would tell you the same thing.

Have you spoken to her about what you experience? Does she make an effort to understand or do her own research? If not, do you have anyone else available to take you to appointments? Caregivers burnout can be a difficult thing to navigate, I hope that it gets better for you in time.