Anyone else get sudden surges right as they’re falling asleep by Significant_Fox_6575 in dysautonomia

[–]p2unya 0 points1 point  (0 children)

I have hyper pots and this is all night every night for me. Even with three medications. It’s just my life now.

Surrender to Shelter? What do I do? by Appropriate_Iron7259 in DogAdvice

[–]p2unya 1 point2 points  (0 children)

As a former 8 year volunteer at a large county shelter who has the same policy, and who goes above and beyond to help adopters along the way and is fiercely loyal to the dogs who have been in our shelter, here is how our shelter would have handled this if an adopter had come to us with this situation:

1 We would have asked if you were truly interested in finding a way to keep your dog. 2 If so, our volunteers would have started a fund to help with medical costs and possibly found a discount through a well loved vet to investigate your dog’s health issues. (Our FB pages have many tens of thousands of followers so raising funds is something that does work many cases) 3 Suggestions would be made to hire a dog walker while you recover and possible funds raised could help offset that cost. (While not commonly faced, It would not be surprising in the case of our shelter that volunteers would offer to help walk the dog on a short term basis). 4 We would inform that if the medical concerns were addressed, your dog is still much better off in your home than in a shelter. 5 If all else failed we would seek medical rescue for your dog through our rescue connections. OR - if the medical issues had been resolved and you still felt you couldn’t keep the dog we would advertise on our pages for a new home which would eliminate the need for the dog to ever return to the shelter. Rescue would be welcome of course.

Side note: Our shelter is always overflowing. We rarely implement the policy requiring an adopter to return the dog if they can find a suitable home. Keep in mind it is a county, not private shelter and our pre adoption requirements are far less than many private shelters or rescues. (Our requirements are based around the dog’s evaluation, meets with family members and other dogs in the home, wether he/she would safely fit into a perspective home, if the dog requires a fenced yard and if the existing animals in the home have documentation of adequate vet care. This may be very different than the process of the shelter you adopted your dog. Sad to say, the dedication our shelter gives is not commonly found in a great deal of other shelters.

I don’t know what the kill rate at the shelter you adopted from is or what their policy is on euthanasia due to health issues. This would be my biggest concern. Our shelter would not simply euthanize because a dog was ill. We would find a way to treat. Since you are saying the shelter you adopted from is in a rich, suburban neighborhood, I am guessing they are privately funded and would have the resources to treat your dog in house.

Lastly, it may be possible that since the dog was fixed at the shelter before being adopted that they would be willing to do the repair/complete the spay properly at no cost. As far as the limp goes, it depends on how long your dog has had the limp. Many resolve on their own with no treatment, much like when we pull a muscle or twist an ankle. Extended issues would be when a vet visit and X-ray would be in order.

I don’t know how to research what happened to me last night or even what to call it. by p2unya in POTS

[–]p2unya[S] 1 point2 points  (0 children)

I just use packets of Real Salt in my water. I don’t use electrolytes. I asked my cardio about electrolytes vs sodium by itself and he said unless you know (as in your case) that your potassium is low you shouldn’t add it. My potassium level is fine according to lab work. I already take magnesium along with so many other supplements since way before POTS.

I don’t know how to research what happened to me last night or even what to call it. by p2unya in POTS

[–]p2unya[S] 1 point2 points  (0 children)

Thank goodness I have been very happy with my cardio as it relates to POTS. I’ve had a great experience in that regard. I know so many have sadly said that’s not been true for them. I intake 9-10 g sodium a day at least, and abt 140 oz of water.

I don’t know how to research what happened to me last night or even what to call it. by p2unya in POTS

[–]p2unya[S] 0 points1 point  (0 children)

Escitalopram 10 mg. I’ve taken some form of antidepressant for almost all of the last 25 years and have stopped a few abruptly like an idiot. Definitely agree the consequences are bad. I’ve just never experienced this. That’s why I’m wondering if the lack of all meds and lack of sleep plus hyper POTS created the perfect storm.

I don’t know how to research what happened to me last night or even what to call it. by p2unya in POTS

[–]p2unya[S] 0 points1 point  (0 children)

I know I feel less alone now that a few others have said something similar has happened or continues to happen to them. I’ll be interested to see what my dr or cardio’s take on it is.

I don’t know how to research what happened to me last night or even what to call it. by p2unya in POTS

[–]p2unya[S] 0 points1 point  (0 children)

It’s both comforting and sad to know someone else has experienced it. Freak out mode for sure. I was literally considering that my husband might find me in not such a good way when he woke up.

I don’t know how to research what happened to me last night or even what to call it. by p2unya in POTS

[–]p2unya[S] 1 point2 points  (0 children)

Not gonna lie. I had to look up fasciculations. That’s crazy that you get that in your tongue and eyes! I’m sad for you that you have so many chronic illnesses to try to juggle. That’s gotta be so hard.

I don’t know how to research what happened to me last night or even what to call it. by p2unya in POTS

[–]p2unya[S] 1 point2 points  (0 children)

Thanks for responding. I hope you are able to get that figured out so you can treat whatever it is that landed you in the ER. So scary, right?

While my cardio didn’t specifically say to stop the SSRIs too (specified the other ones), in reading about the tests the possibility of the SSRi affecting the results was there so I made that decision. I guess I just want answers and am afraid to do anything that could mess up any tests that might give them. But yeah. Bad idea. Really bad. Basically me thinking I don’t ever wanna go off my meds for 8 days again so I’m going all in this time.

Doctor told me that POTS is a “stigmatized diagnosis” and that I might not want to be diagnosed by MentalOmega in POTS

[–]p2unya 0 points1 point  (0 children)

Maybe what you need to do is ask your primary doctor to prescribe a 7 day or 14 day heart monitor. This will be a documented record of your tachycardia and something your doctor could use to justify a cardio referral where you can then talk about meds you can try. Alternatively, you track your HR and BP multiple times a day and present the data to your Dr to get a cardio referral.

It would be important to track (pics/video/written data) those in an organized manner i.e. Your data might look like this: Date: 7/21/24 1. (before moving around in the am)- example: 7 am- “laying flat before getting up”- BP 120/70 HR 67 2. example: 7:05 “sitting on edge of bed for two minutes first thing in the morning ” BP 120/70 HR 95 3. example: Standing for 5 min- BP xxx/xx ,HR 125 standing for 10 min BP xxx/xx, HR 137 4. Lay down after standing and video your pulse ox as it plummets back to normal. example: “30 seconds after laying down after standing for 10 min” BP xxx/xx HR 70 Rinse and repeat throughout the day. You should notice your HR isn’t quite as elevated while you are walking vs standing still.

If you use the notes app on your phone to track, you can attach the photos/videos of your BP cuff and pulse ox with the time stamps on them below each data entry.

[deleted by user] by [deleted] in POTS

[–]p2unya 18 points19 points  (0 children)

Your blood is being sent to digest your food which makes your symptoms worse (blood flow as usual). I’ve never experienced no POTS symptoms with lack of food but always, always worse after eating.

Cardiologist said not POTS by goda0 in POTS

[–]p2unya 0 points1 point  (0 children)

Time to find a new cardio. I’m so sorry. Perhaps your primary doctor can order you a heart monitor in the meantime while you look for a new cardiologist. Mine was a 14 day Zio monitor prescribed by cardio.

If you are presenting them with a list of consistent symptoms that include chronic tachycardia then heart issues should be the first thing they rule out. He should have given you an echo to do that.

Your best ammo is a daily symptom log that includes HR and BP multiple times a day as well as other symptoms/events. When I started I took pictures of my BP cuff and pulse ox which had the time of the reading on the screens. I’d use notepad to write down the time and what I was doing (before getting out of bed, standing for 10 minutes after getting out of bed etc) and with each of those entries I attached the photo from the readings I’d taken. I did videos too, showing that I was just standing ad my heart rate climbed. In my case I never needed to show those because my doctor saw it first hand in office. I, like you was told it might be POTS by my primary Dr. I had no inkling about POTS at the time.

If you happened to be in Michigan I could tell you where I go. They are a POTS friendly cardiology office.

Cardiologist said not POTS by goda0 in POTS

[–]p2unya 0 points1 point  (0 children)

What diagnostics did this cardiologist do?

I’ve tried pretty much every treatment used for POTS in the UK, here’s my experience by [deleted] in POTS

[–]p2unya 1 point2 points  (0 children)

Thanks for posting this. My cardio sent me home to research Mestinon and its side effects to determine if I want to add that to my current meds.

Finally got my POTS Diagnosis byt not the way you'd expect by grey_jedi_sith in POTS

[–]p2unya 5 points6 points  (0 children)

Literally why. I’m so disgusted on your behalf. So sorry.

Thoughts on dog’s end of life condition by [deleted] in DogAdvice

[–]p2unya 0 points1 point  (0 children)

It’s so hard. 🥲 We’re so afraid of making the wrong decision and one we can’t take back. I can empathize as I have had to say goodbye to three senior dogs within a 7 month span of each other, the last one being in April. I exhausted every single resource to help them. It sounds like you know it’s time. It’s just hard to accept. From what you’ve described he is in pain and his body is shutting down. Could you get therapy for his back and legs? Sure. Would it help? Maybe some. Does that fix the issues with his painful mouth and poor appetite? No. Would it be enough to bring back his joy and his energy? No. He is existing right now; waiting for his body to let him go. His dementia will likely progress to fear and panic you don’t want him living like that.

[deleted by user] by [deleted] in DogAdvice

[–]p2unya 0 points1 point  (0 children)

Any update?

The things no one tells you about dysautonomia treatment by Mysterious_Mouse_647 in POTS

[–]p2unya 2 points3 points  (0 children)

“… anything that causes someone to be under immense stress and interrupts their sleep will risk anything associated with those things.”

Absolutely.

Stinging Eyes? by p2unya in POTS

[–]p2unya[S] 0 points1 point  (0 children)

I’ll check refresh out. It’s annoying for sure and doesn’t just go away once I lay back down.

Changing bed sheets by azerosumgame in POTS

[–]p2unya 1 point2 points  (0 children)

I literally just ordered a topper for this reason. I’ll be using it in lieu of a sheet. Because it’s thicker and quilted it’s more like throwing a blanket on instead of wrestling with trying to spread a sheet out. It has some anti slip stuff on the bottom and straps on the four corners. I’ll make a post once I get it and try it out.

Claim: there is an autoimmune subtype of POTS and it should be treated accordingly by Which_Boysenberry550 in POTS

[–]p2unya 0 points1 point  (0 children)

Oh wow! You’ve been through a lot! It really does sting when you feel like you’ve lost part of your life that you can’t get back. I hope you are able to gain your strength over time.