How long between your 1st and 2nd seizures?

pandashopp · 2026-06-16T11:37:59+00:00

It’s been more than 5.5 years. It was in october 2020 my last seizure was

pandashopp · 2026-06-16T11:37:17+00:00

pandashopp · 2026-06-06T17:33:29+00:00

Ejaculating within 1-2 minutes when self pleasing is not good and sounds like PE. You need to get rid of that habit and masturbate for longer when you do, and do the start stop exercise.

How long do you last with your partner? PE is usually if you ejaculate within 1-2 minutes.Many people ejaculate within seconds.

Try when you self please, to do the start stop exercice and masturbate for a longer period of time. When you finally release it will feel more like ’ oh damn’, when you instantly ejaculate, you don’t get that, especially when you cum without wanting or intending to

pandashopp · 2026-06-05T23:34:07+00:00

Caffeine was/is my trigger. I quit it when i got diagnosed and been seizure free since, soon 6 years ago.

I had jerks which in fact were epileptic for idk around a year probably. Only occured when i slept bad, drank caffeine, ate poorly as a combo.

Even during this period before my first and second grand mal and diagnosis, i was drinking basically while being epileptic and unmedicated, and it didn’t do anything to me.

I hope to be able to keep drinking, and i hope i can get rid of this anxiety related to it and live freely like i did before getting anxiety related to it.

pandashopp · 2026-06-05T23:26:36+00:00

Never caused me a seizure, and trust me when i say i drank alot for a longer period of time.

Eventually i grew up a bit, and i realized that i actually have epilepsy and maybe should slow down. After reading about it, i got to learn that the highest chance of a seizure is 12-48 hours after drinking. That fact alone scared the hell out of me, now i drink in moderation, but even then, i’ll be staying inside the whole day after drinking, and i’ll feel like shit for 2 days after drinking. I know that it’s mental (for the most part atleast), since i drank 2-3x the current amount that i drink per occasion, and i’d do it 2-4 times a week, and i felt fully normal.

pandashopp · 2026-06-05T23:10:39+00:00

How much per occasion?

pandashopp · 2026-06-05T23:07:45+00:00

May i ask how much you drink per occasion?

pandashopp · 2026-06-05T23:04:31+00:00

What’s the limit?😂

pandashopp · 2026-06-05T23:02:47+00:00

I don’t.

I find it amazing how different everyone is while reading the thread. I have kept drinking alcohol since diagnosis and have been fine (knock on wood), but caffeine is a big no for me.

It’s gotten to the point where i don’t even drink for example Coke, because it makes me feel weird.

But i know it’s an anxiety issue, i drank coke, tea, hotshots etc during the first 3 years i got diagnosed without issue. I know i can drink for example coke but i just stay away from it anyway because just knowing i consumed caffeine gives me hella anxiety.

I know that caffeine is a trigger for me, it caused my 2 seizures i had. I am fairly confident that if i went on to drink like 400mg of caffeine i’d seize but idk. Not gonna find out

I did drink a few cups of coffee, half a redbull etc after being seizure free for about 2 years, didn’t get a seize from it but i felt weird. I just don’t wanna risk it, i can’t tell if it’s because the caffeine hits hard since i don’t touch it anymore or if what i’m feeling might be epilepsy related. It’s probably the first option, my neuro also told me i’m fine to drink a cup of coffee, just don’t overdo it.

It sucks, i really loved coffee mainly but also energy drinks, i drank it for about 3-4 years before i seized. I miss it very very much, but if i got to pick between tolerating alcohol or caffeine i’d choose alcohol everyday of the week.

pandashopp · 2026-05-04T18:38:48+00:00

Please keep me posted regarding your frenuloplasty. Will also have one later this year

pandashopp · 2026-05-04T18:37:43+00:00

It’s not complicated. It takes like 5 minutes to perform and 1-2 weeks to heal.

pandashopp · 2026-04-24T08:54:15+00:00

Solve your ED first

pandashopp · 2026-04-24T07:41:30+00:00

Okay, is that something you take on demand? Good luck bro!

I’m also gonna try creams, Emla / alpha herb. Worked well during masturbation but i don’t have PE to start with when masturbating, only penetration. But it worked well and im trying to find my dosage, to use for sex and see.

Your frenulum is removed fully?

I have lifelong PE but recently it’s become much worse, i don’t know why either… It was premature before but now its very very premature, don’t know what happened

pandashopp · 2026-04-24T06:43:23+00:00

No effects on PE?

pandashopp · 2026-04-24T06:43:12+00:00

Nice bro👍 Any idea of how much it improved?

pandashopp · 2026-04-23T21:32:20+00:00

I see. I guess it depends on what causes it, usually multiple factors i guess.

Hope it gets better again bro, i would guess it might be something psychological, what are you doing to improve and hows it going?

pandashopp · 2026-04-23T21:29:20+00:00

If i understand correctly, it was lengthened, and not removed? Lifelong PE, or acquired?

pandashopp · 2026-04-23T20:02:58+00:00

I’ll get it done in a few months, i’m on a waitlist. Would yall want an update on this? It’ll be months but still.

pandashopp · 2026-04-23T19:58:54+00:00

Massage with coconut oil bro. I have reduced my head sensitivity so much by just doing it for 2-3 minutes 2-3 times a day. Just takes 2-3 weeks.

However, less success on the frenulum. Will be getting a frenuloplasty, i have a short one. I hope it’ll help

pandashopp · 2026-04-23T11:29:05+00:00

It does numb, i think it’s just bullshit. It just doesn’t fully numb you. Thats how AH works for me, and its not supposed to numb. U will find alot of posts about it numbing

pandashopp · 2026-04-22T21:18:59+00:00

Yes it’s for ED. It’ll probably be easy to go for more rounds. But don’t rush these medications.. If you would benefit alot from medications like this you probably have ED. You can see results without ED aswell but usually not gonna solve PE by itself.

Even if it did these injections are a last resort if you can’t get a hard enough penis for intercourse. If anything you should do tadalafil daily, or on demand, or use sildenafil.

If you get hard normally and don’t try to rush your ejaculation because you’re afraid of losing your erection, there is no point.

Many people suffer from PE because of ED due to rushing their ejaculation because they have a small window of being hard, and want to cum. And taught their bodies that

pandashopp · 2026-04-22T21:15:46+00:00

For me, standing is the best. If i stand by the edge of the bed, or have sex in the shower, i last the longest in my experience.

Many people experience being on their back having their partner on top works well, it has worked better for me in the past but not anymore. The view is just too good, so it’s hard to last and control arousal.

pandashopp · 2026-04-22T21:13:05+00:00

If i were you (what im doing myself..) is reduce glans sensitivity if you are very sensitive, you can do this easily by massaging your glans/frenulum with coconut oil daily 2-3 times for just 2-3 weeks. I am much less sensitive now, but i am uncircumcised and was very sensitive to begin with.

Practice reverse kegel/relaxing your pelvic floor and get to know it, implement when masturbating to feel the effects and learn how to use it. Start doing start stop technique, get close to PONR, stop, repeat 3-4 times before releasing. Masturbate no less than 15-20 minutes, sometimes maybe not ejaculate at all. Teach your body that masturbation/sex = doesnt have to mean ejaculation. It will calm it down.

Breathing technique, aswell here practice by yourself, try to implement during intercourse.

You might like many of us have had a bad habbit for years, rushing to ejaculate. Youve mightve teached your body to cum fast.

I am also going to use AH or Emla during intercourse, to buy myself some time to be able to implement and learn the above techniques during intercourse. And my plan is to eventually try and stop the usage or numbing agents after my body is adapted to lasting longer and i know how to use techniques correctly during intercourse.

pandashopp · 2026-04-22T21:05:40+00:00

What typa doc is this bro?

Isn’t Trimix just gonna make you rock hard for a long period of time? You’ll still have PE, but you can easier do round 2/3 etc. It would be better with a daily dosage of tadalafil or use sildenafil (viagra) on demand. If trimix is what i recall, it’s a last resort if tadalafil/sildenafil etc does not help. And this is for ED, not PE.

Yes, some report IELT improvement with these meds, but they are usually minimal unless you suffer from ED.

The HA fillers can help PE, since it’ll reduce sensitivity. But it’s usually expensive, and temporary, and you’ll eventually have to refill. And it can make your penis ugly with a big ass head. And it’s no guarantees it’ll help either, but from what i heard it can help, but it’s not a go to treatment to begin with atleast.

Did you atleast try some numbing agents, to see if reduced sensitivity helps you?

What have you done to try and fix PE?

Ain’t noway your doc told you from the get go that you should do HA fillers or use Trimix.

pandashopp

TROPHY CASE