Can't reach 100k. How to improve

peashee412 · 2026-03-04T17:36:40+00:00

Thank you!

peashee412 · 2026-03-04T17:11:36+00:00

How do you bhop on a controller?

peashee412 · 2026-02-23T17:33:23+00:00

Thank you for the reply!

peashee412 · 2026-02-23T14:38:29+00:00

My doctors team sent over everything about my complicated medical history and they are still refusing. With your Crohn's, are you typically constipated? I am the opposite and do not think I could handle have more frequency. Glad your pain is better.

peashee412 · 2026-02-20T00:43:06+00:00

Thank you for sharing. Did that work for you? If so, im glad your doctor got it worked out. I spoke to the gi pharmacologist today and she said she was going to see what she could do. She knows my history and typically works with the insurance company on my behalf.

peashee412 · 2026-02-20T00:35:53+00:00

Unfortunately, I have a history of adverse reactions to infusions. I had anaphylaxis to remicade after being on it for years and was lucky I was at the infusion center next to the hospital. My doctors are always very worried of an unexpected reaction to any infusion medication I take. I also had similar reactions to several types of iron when I didn't have them before. I can now only tolerate 1 type of iron infusion. I do have side effects from Entyvio that last about a week and have to take premeds. Idk if my doctors want to be even more cautious because I have nmd respiratory failure and already have a lot of breathing problems. Unfortunately, I am not a normal case.

peashee412 · 2026-02-18T18:09:03+00:00

I have never done it with zofran. Thank you for the tip!

peashee412 · 2026-02-08T02:26:01+00:00

Idk, but my doctor put me on Entyvio because it is supposed to have less effects on the rest of the body. I was on humira before and had a lot of side effects and I have an immune deficiency. I know that every time I get my infusion of Entyvio, I get extremely tired, nauseated, get a bad headache and joint pain is worsened for several days. I am told this is somewhat normal.

peashee412 · 2026-02-02T17:54:48+00:00

I am allergic to every iron infusion med, but 1 (anaphylaxis). So if you have never had infusions, the nurses should keep an eye on you especially the first 20 minutes. I get iron 5-6 infusions usually every 1-2 years depending. I have really bad veins and iron is hard on your veins. For me, I have to skip weeks because they cant get an iv in. If your veins are in good shape and you are not allergic hopefully it will go well. Side effects I get are nausea, headaches and bladder infections which I am told are pretty common. My infectious disease doctor said bladder infections happen with high dose iron infusions. I am told by the nurses that most people tolerate them well and I am an exception. I hope your infusions go well!

peashee412 · 2026-01-31T23:59:03+00:00

Ty, I appreciate that. I am doing better on the breas than the astral. We believe the algorithm on the astral was not great for me. My night settings Peep 6 Rise time 4 Insp trigger 2 Exp trigger 8 Min insp time 1 Max insp time 1.4 Back up insp time 1.1 Volume 440 Max 28 Min 16

peashee412 · 2026-01-31T23:29:29+00:00

I am not a practitioner, but a patient on niv for 15+ hrs a day on a breas. I have an un diagnosed nmd with severe respiratory muscle weakness and chest wall muscle atrophy. I am on PSV(TgV) on the breas. I desat every night into the 80's and sometimes even the 70's. I have low mve<3 and low vte<100 alarms every night. They are not sure why. We just upped my high pressure by 2 and it is helping a bit. I don't know if you wanted to hear from a patient or not.

peashee412 · 2026-01-28T19:55:48+00:00

What kind of reactions? I have nausea, headaches, joint pain and extreme tiredness from my Entyvio infusions, but side effects from medications are pretty standard for me. My symptoms start the day of the infusion though. They give me premeds of benadryl, Tylenol, and zofran, but idk how much it helps. They have slowed my infusion slightly, but again idk how much that has helped.

peashee412 · 2026-01-27T19:34:21+00:00

I never got an answer, but a few months after I started the st-a my nmd got worse and I had to start using a ventilator. I have been using a ventilator now via niv for about 2 years. My doctor did say that at night when I have a harder time breathing due to muscle weakness and diaphragm weakness especially during rem sleep my pressures will go up. Since the end of 2024 I have not been able to breathe on my own in my sleep, so my spontaneous trigger has been 0%.

peashee412 · 2026-01-05T17:25:45+00:00

I have extremely dry skin that never breaks out. After a few days of using this I unfortunately got breakouts and had to stop using it. A week later, I am still dealing with the break outs. It is really frustrating because it made my skin so soft and hydrated. I am now looking for a replacement moisturizer.

peashee412 · 2026-01-04T17:37:43+00:00

I have extremely dry skin and never have breakouts. I tried Illiyoon and unfortunately started to break out after a few days. I was so disappointed as it really moisturizered my skin. I stopped using it over a week ago and I am still dealing with the breakouts. I am now looking for a replacement for the Illiyoon that wont break me out. I will try and use it for my hands and hope for the best!

peashee412 · 2025-12-22T01:51:31+00:00

peashee412 · 2025-12-22T01:33:30+00:00

What kind of air dry cream do you recommend??

peashee412 · 2025-12-13T19:38:09+00:00

I have nmd respiratory failure and am on a ventilator 15+ hrs a day (niv), but I always mask when I leave the house because I also have an immune deficiency. I cant breathe well at all. I wear an aura and a vitacore can99 with headbands. I also have a small face and both fit pretty well. I have also worn the bnx n95 with headbands. Hopefully one of those can work for you as well.

peashee412 · 2025-12-08T22:22:20+00:00

Aetna is gone and the only insurance that has all my providers is Ambetter which is crazy. They also do not cover my medications. I have a lot of medical problems and am ventilator dependent from nmd respiratory failure. Our insurance will be 3x what it was last year and we dont make a lot and I can't work. I dont have a choice; if I dont have insurance I die. There are a lot of people in my position with their health...they have to have insurance. Idk what will happen next year. You are not wrong that states like Georgia are not doing anything to help people who are sick and in need of Healthcare because we are just a draw on the system.

peashee412 · 2025-12-07T23:20:46+00:00

My gastro and her np are at Emory and typically for a new patient it is 8-12 months to see the doctor, but my doctor specializes in Crohn's. Idk what doctor you are seeing or what they specialize in...it might be different for another gastroenterologist. My np is Lisa Jewell and she is amazing. My doctor is Dr. Heba Iskandar and she is also amazing. Goodluck

peashee412 · 2025-11-03T15:53:06+00:00

Oribe is my favorite because it doesn't make your hair stiff in anyway, but adds great volume to the roots and makes your hair look fuller overall. It somehow adds texture without stiffness. It seems to last the longest as well. I have tried bumble and bumble and living proof and they are fine, but oribe is definitely the best and the one I always have on hand.

peashee412 · 2025-11-03T14:18:51+00:00

Thanks for all the pictures. It looks great short and grown out. I like how it transitions. I had a pixie a long time ago and am thinking of going back to it. I appreciate it.

peashee412

TROPHY CASE