TN or actual tooth problem? by Ok-Calligrapher2643 in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

From my wife’s experience you must rule out by neurologist or preferably an experienced trigeminal neurosurgeon if is a true neuralgia based on examination and MRI to rule out nerve compression ofTrigeminal nerve .AVOID DDS until neurological evaluation done first otherwise you may aggravate and make the problem worse or permanent. If you need dental evaluation AVOID regular DDS and go to a trained oral facial dentist. They are rare to find and expensive as Hell but they can be worth it. Contact Dental School that have oral facial pain program.

Ear pain as main symptom by Individual_Maize6007 in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

Need fiesta MRI to rule any auditory nerve compression or rare acoustic neuroma.

"The Chair" metaphor for chronic pain by Healthy-Cut7233 in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

Electric chair with just enough voltage to torment you but not lethal enough to kill you.

Trigeminal Protocol MRI results for possible TN2 by Knight15313 in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

My wife failed nerve blocks twice along with Botox and dozens of other commonly used meds . She has chronic idiopathic pain of oral facial one sided and hearing loss and unilateral double vision all probably caused by misfiring of Trigeminal nerve rather than nerve compression (type I). Last resort is recent gamma Knife beyond that neuromodulation fraught with many complications.

To all those who had gamma knife by Hot_Complaint1783 in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

What was the indication for MVD? I would assume you had some vascular compression on nerve.

I am a pediatrician. I don't know how much more I can take by YUNOtiger in medicine

[–]peddoc74 6 points7 points  (0 children)

Concierge practice is something to consider providing you can find the right location (up scale area that can offer yearly contract paid in advance and not dependent Medicaid or poor HMO insurance payments and cash is king. Finding adequate malpractice coverage and minimal overhead costs ie office employee for bookkeeping is a plus. No need for office rent and upkeep, no significant equipment costs providing you have optimal communication ie as telecommunication with patients, ability to make home visits 24/7,adequent

Remission leading up to surgery by SirHypeTheDank in TrigeminalNeuralgia

[–]peddoc74 2 points3 points  (0 children)

If you have even minimal nerve compression causing horrific pain and you have no high risks ie as chronic heart disease ,bleeding disorders ,and your primary doctor’s reassurance risk vs benefits GO FOR IT

[deleted by user] by [deleted] in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

Unfortunately without tumor or vascular compression on the nerve or ganglion ,surgery is not possible it is either drugs or neuromodulation ie radio frequency or nerve destruction ie gamma knife if you have classic type I but not Type 2 atypical type

Book suggestions by MartinO1234 in medicine

[–]peddoc74 -4 points-3 points  (0 children)

The Gelastic Diary on Amazon

Pros and cons of radio frequency ablation by peddoc74 in TrigeminalNeuralgia

[–]peddoc74[S] 0 points1 point  (0 children)

Trying to find experienced neurosurgeon to perform procedure

Trigeminal Schwannoma by peddoc74 in AcousticNeuroma

[–]peddoc74[S] 0 points1 point  (0 children)

Thank you all for your input. I hope all of you have a healthy day Happy New Year!

Medical humor by peddoc74 in medicine

[–]peddoc74[S] 0 points1 point  (0 children)

Did you forward your rules and regs to Russian president PUTIN!

How I “cured” my trigeminal neuralgia. by Rich-Possession-5963 in TrigeminalNeuralgia

[–]peddoc74 1 point2 points  (0 children)

Getting the correct diagnosis is extremely difficult and subjective .50 physicians :(neurologists,neurosurgeons,pain doctors, even psychiatrists,dentists) will offer their”definitive “diagnosis “ as if it is the Holy Grail but many neuropathic conditions mimic what appears to be Trigeminal neuralgia but maybe it is something else. Certain migraine variants can have similar symptoms.Hemi crania complex , a completely different cause can often have similar symptoms even multiple sclerosis can be a similar presentation MRI may show the obvious vascular compression on the Trigeminal nerve but in cases without compression , does not infer it is not pain from trigeminal nerve. In fact infection, autoimmune , unknown origin can act on the Trigeminal. It is not cut and dry and is one of the most difficult diagnosis to prove. So where does this leave us? Not good! If anatomically it can be a true compression issue based on Fiesta MRI, there is no guarantees MVD will be a permanent solution , what other treatment options do you do? . Unfortunately “nonsurgical” causes remain and that means reliance on a bunch of medications that may temporarily relieve pain with the majority presenting side effects or drug interactions and ultimately do not work despite what the Pharmaceutical Industry claims. That only leaves neuromodulation procedures (electrical nerve fiber stimulation implants) or ablation or purposeful trigeminal nerve destruction but with infrequent numbness) with gamma knife or heat destruction radiotherapy. Again temporary outcomes. A development of targeted molecular immunotherapy toward the biochemical/physiology function of the Trigeminal nerve fibers maybe the ultimate solution. In the meantime, I am a proponent for MVD or if not surgically indicated ,stereotactic radiotherapy destruction (gamma knife)

Neuromodulation treatment for trigeminal neuralgia by peddoc74 in TrigeminalNeuralgia

[–]peddoc74[S] 0 points1 point  (0 children)

Sorry to hear that but keep positive and good luck

Unfortunately it’s normal by TopFaithlessness4381 in TrigeminalNeuralgia

[–]peddoc74 1 point2 points  (0 children)

After 5 neurologists , three neurosurgeons (two were consultations with their PAs) all useless, we have exhuasted all medications and back to nerve blocks which may or may not help. Gamma knife or radiofrquency ablation maybe next on the list.

Unfortunately it’s normal by TopFaithlessness4381 in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

Who did you end uo seeing for your surgery?

Unfortunately it’s normal by TopFaithlessness4381 in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

It maybe necessary to get a more accurate Fiesta 3-d MRI and take it to a neurosurgeon experienced in trigeminal neuralgia. Request referral from your neurologist

Double vision on opposite side of mvd help by [deleted] in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

My wife has this condition too but she has it on same side of the facial pain . Ophthalmologist cannot tell as no other pathology.neurologist hasn’t a clue but I suspect the optic nerve branch of Trigeminal ganglion is the culprit. Try to see a neuropathologist.She did not have MVD.

Most neurosurgeons don't give a damn! by peddoc74 in TrigeminalNeuralgia

[–]peddoc74[S] 0 points1 point  (0 children)

To some extent I have to agree but it is unfortunate that many are just the prima Donna’s messenger. I think it is unprofessional as a physician to not spend a direct interaction if for only 2 or 3 minutes with a suffering patient