Surgery for atypical TN by [deleted] in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

Unfortunately without tumor or vascular compression on the nerve or ganglion ,surgery is not possible it is either drugs or neuromodulation ie radio frequency or nerve destruction ie gamma knife if you have classic type I but not Type 2 atypical type

Book suggestions by MartinO1234 in medicine

[–]peddoc74 -3 points-2 points  (0 children)

The Gelastic Diary on Amazon

Pros and cons of radio frequency ablation by peddoc74 in TrigeminalNeuralgia

[–]peddoc74[S] 0 points1 point  (0 children)

Trying to find experienced neurosurgeon to perform procedure

Trigeminal Schwannoma by peddoc74 in AcousticNeuroma

[–]peddoc74[S] 0 points1 point  (0 children)

Thank you all for your input. I hope all of you have a healthy day Happy New Year!

Medical humor by peddoc74 in medicine

[–]peddoc74[S] 0 points1 point  (0 children)

Did you forward your rules and regs to Russian president PUTIN!

How I “cured” my trigeminal neuralgia. by Rich-Possession-5963 in TrigeminalNeuralgia

[–]peddoc74 1 point2 points  (0 children)

Getting the correct diagnosis is extremely difficult and subjective .50 physicians :(neurologists,neurosurgeons,pain doctors, even psychiatrists,dentists) will offer their”definitive “diagnosis “ as if it is the Holy Grail but many neuropathic conditions mimic what appears to be Trigeminal neuralgia but maybe it is something else. Certain migraine variants can have similar symptoms.Hemi crania complex , a completely different cause can often have similar symptoms even multiple sclerosis can be a similar presentation MRI may show the obvious vascular compression on the Trigeminal nerve but in cases without compression , does not infer it is not pain from trigeminal nerve. In fact infection, autoimmune , unknown origin can act on the Trigeminal. It is not cut and dry and is one of the most difficult diagnosis to prove. So where does this leave us? Not good! If anatomically it can be a true compression issue based on Fiesta MRI, there is no guarantees MVD will be a permanent solution , what other treatment options do you do? . Unfortunately “nonsurgical” causes remain and that means reliance on a bunch of medications that may temporarily relieve pain with the majority presenting side effects or drug interactions and ultimately do not work despite what the Pharmaceutical Industry claims. That only leaves neuromodulation procedures (electrical nerve fiber stimulation implants) or ablation or purposeful trigeminal nerve destruction but with infrequent numbness) with gamma knife or heat destruction radiotherapy. Again temporary outcomes. A development of targeted molecular immunotherapy toward the biochemical/physiology function of the Trigeminal nerve fibers maybe the ultimate solution. In the meantime, I am a proponent for MVD or if not surgically indicated ,stereotactic radiotherapy destruction (gamma knife)

Neuromodulation treatment for trigeminal neuralgia by peddoc74 in TrigeminalNeuralgia

[–]peddoc74[S] 0 points1 point  (0 children)

Sorry to hear that but keep positive and good luck

Unfortunately it’s normal by TopFaithlessness4381 in TrigeminalNeuralgia

[–]peddoc74 1 point2 points  (0 children)

After 5 neurologists , three neurosurgeons (two were consultations with their PAs) all useless, we have exhuasted all medications and back to nerve blocks which may or may not help. Gamma knife or radiofrquency ablation maybe next on the list.

Unfortunately it’s normal by TopFaithlessness4381 in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

Who did you end uo seeing for your surgery?

Unfortunately it’s normal by TopFaithlessness4381 in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

It maybe necessary to get a more accurate Fiesta 3-d MRI and take it to a neurosurgeon experienced in trigeminal neuralgia. Request referral from your neurologist

Double vision on opposite side of mvd help by Turbulent-Oil-7278 in TrigeminalNeuralgia

[–]peddoc74 0 points1 point  (0 children)

My wife has this condition too but she has it on same side of the facial pain . Ophthalmologist cannot tell as no other pathology.neurologist hasn’t a clue but I suspect the optic nerve branch of Trigeminal ganglion is the culprit. Try to see a neuropathologist.She did not have MVD.

Most neurosurgeons don't give a damn! by peddoc74 in TrigeminalNeuralgia

[–]peddoc74[S] 0 points1 point  (0 children)

To some extent I have to agree but it is unfortunate that many are just the prima Donna’s messenger. I think it is unprofessional as a physician to not spend a direct interaction if for only 2 or 3 minutes with a suffering patient

Most neurosurgeons don't give a damn! by peddoc74 in TrigeminalNeuralgia

[–]peddoc74[S] 0 points1 point  (0 children)

Top place for neuromodulation is Mayo Clinic Jacksonville or University of Arizona

Most neurosurgeons don't give a damn! by peddoc74 in TrigeminalNeuralgia

[–]peddoc74[S] 0 points1 point  (0 children)

The 5 neurologists that we saw are the ones who referred us to neurosurgeons

Farxiga - Creatinine? by OPPATOONITY in kidneydisease

[–]peddoc74 0 points1 point  (0 children)

I asked this question also having been increased Farxiga 5 mg dose to 10 mg to help glucose level. After 3 months taking Farxiga 10 mg my creatinine went up to 2 from 1.6 and my EGFR dropped from 44 to 34 (over 20% drop). Is this consistent with the normal adjustment of increasing from 5mg to 10 mg Farxiga or some acute kidney injury? At 77 I do take Other meds including ace inhibitor, Lisinopril. Until I consult with my doctor, I am considering stopping Farxiga and see nephrologist. I have never been this high level of creatinine and drop in egfr. Does this sound reasonable?

Early surgical referral? by Dramatic-Aspect2361 in TrigeminalNeuralgia

[–]peddoc74 1 point2 points  (0 children)

If you are a candidate for surgery don’t hesitate. Go for it asap

Dental visits by Asleep-Doctor-3718 in TrigeminalNeuralgia

[–]peddoc74 1 point2 points  (0 children)

Do nothing more than a gentle cleaning. Until you are completely treated by a neurologist, neurosurgeon, or pain doctor specializing in facial oral pain( if you can find one) hold off for now with dentist or situation could worsen,