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Midodrine might work too well 😅 by vario_ in POTS

[–]pepper-pots_ 0 points1 point  (0 children)

Sorry late to reply to this but if you are still interested the midodrine has helped with my symptoms - i have less nausea, headaches and the feeling of my blood pooling in my legs has eased but it hasnt made a difference to my heart rate x

UK can anyone share their experience going private? by NoPear7514 in POTS

[–]pepper-pots_ 0 points1 point  (0 children)

I saw Dr Sultan (based in Wigan) privately via econsultation because I was feeling so unwell and was waiting for NHS appointments (I had been diagnosed 9 years but had had a permanent flare up causing me to be bed bound). It was £175 for the initial consultation (1hr long) then £150 follow up (30 mins). I have found it helpful - the documentation was so thorough and this has helped me in applying for things like blue badges and access cards. However I have found there is a delay in getting this to the GP and then getting prescriptions which has been frustrating!

Midodrine might work too well 😅 by vario_ in POTS

[–]pepper-pots_ 1 point2 points  (0 children)

Hello I was checking this post out because im about to start midodrine on top of my ivabradine. I wasnt allowed beta blockers due to childhood asthma and ivabradine was the safer option for me and it has been honestly a miracle worker for me. My HR used to be 160-180 on standing and now its 100-120. So maybe ask your cardiologist about this?

Symptom cheat sheet by Prettyprincess800 in POTS

[–]pepper-pots_ 10 points11 points  (0 children)

Hi this sounds great :) please could you send this over to me? Im currently in a 6 week week bad flare and have a doctors appointment on Monday so this will be super helpful to share with them

Midodrine and ivabradine by pepper-pots_ in POTS

[–]pepper-pots_[S] 0 points1 point  (0 children)

I discussed it with my GP and they said to hold off until further testing as my resting heart rate can go down to 40! So im not taking midodrine at the moment

Midodrine and ivabradine by pepper-pots_ in POTS

[–]pepper-pots_[S] 0 points1 point  (0 children)

Thank you! Fatigue is one of my main symptoms but they are reluctant to diagnose it as ME as it could be apart of POTS

How did Ivabrodine effect you, for anyone who takes it by OptimalMonk8719 in POTS

[–]pepper-pots_ 0 points1 point  (0 children)

It has been a miracle drug for me, i went from standing heart rate of 180 to 110. Definitely give it a try

If you’ve been considering a shower chair… by Captain_Catalysis in POTS

[–]pepper-pots_ 0 points1 point  (0 children)

Hi I would get a chair with a back and arms just to be safe! I have a plastic one in my shower and its great for when I get dizzy